Paediatric Cancers of the Central Nervous System

Carolyn Harris Excerpts

Monday 22nd October 2018 Commons Chamber

[Chris Elmore]

I agree with my hon. Friend and endorse his tribute to his two constituents. I will speak later about some of my asks regarding international research, to which I hope the Minister will respond positively.

It is of course vital that we continue to undertake the best research possible into brain tumours in adults, but I must impress upon the Minister that it is essential that we give equal priority to childhood cancers. It is extremely positive to see groundbreaking work being undertaken in Wales, including through the Wales Cancer Research Centre, which is funded by the Welsh Government and led by Cardiff University. In recent years, it has been very positive to see the new drug/radiation combination trials coming to Wales, which could lead to new world-leading treatments being made available in the Welsh NHS. Clinicians and politicians of all political colours agree that this is an uphill struggle, but I know that it is a fight that colleagues in the Welsh Government will face head-on.

I pay tribute to the charities doing such vital work to advance research. I am pleased that the charity Brain Tumour Research is working closely with Cardiff University to fund research into some of the most aggressive forms of brain tumours. I know that Brain Tumour Research and CLIC Sargent have raised concerns about the hidden costs of treatments for the families of patients being treated for such cancers. CLIC Sargent finds that parents of children suffering from cancer spend as much as £600 a month on top of their normal travel expenses. We must work together, across health boundaries, to decrease that cost and provide financial support where possible.

[Carolyn Harris (Swansea East) (Lab)]

Will my hon. Friend join me in paying tribute to Cian’s parents? As a parent in a similar position, I know how difficult it is for them to talk about their personal loss and to campaign for their son. They should be applauded for their courage in allowing us to discuss this important issue.

[Chris Elmore]

I thank my hon. Friend for her, as ever, courteous and heartfelt intervention. I know of the trauma she is facing in her family life. Richard and Lorraine are extraordinary people, as are their wider family. I have been impressed by their courage throughout Cian’s illness and, now, his passing.

We must not forget those who are lucky enough to survive such aggressive forms of cancer. Survivors often face a lifetime of other health complications, including mobility issues, cognitive challenges, infertility, growth complications and other conditions that require a high level of medical support. We must ensure that aftercare for those children is world class, and that they are able to lead as full, happy and long a life as possible.