(1 day, 15 hours ago)
Commons ChamberIt is a real privilege to have the opportunity to speak in this debate, particularly after so many powerful and profound speeches and interventions from Members across the House. I want to share the testimony of a constituent who has endured an experience that affects many families, yet receives very little attention: hypoxic-ischemic encephalopathy, or HIE. Her son survived a HIE event during his birth. HIE is a brain injury caused by a lack of oxygen or blood flow, which can lead to developmental delays, intellectual and physical disabilities and—tragically—in one in five cases, death. Some of these complications can remain hidden until school age.
My constituent had never heard of HIE at the time, nor had I prior to her contacting me, but it is an all-too-common condition that affects three to four births out of every 1,000. In her son’s case, it resulted in mild cerebral palsy. She was supported by a wonderful charity called Peeps, which highlights that families affected by HIE often feel that they do not belong in a baby loss space. Many of those families experience birth trauma, PTSD and complicated grief. While charities such as Peeps offer support to anybody affected, NHS mental health support can often be restricted to just the mother. This leaves fathers and partners—who are also deeply affected—to cope alone. Support must and should be for the whole family.
Peeps also emphasises the significant gaps in long-term support, especially for families whose children survive but face lifelong, severe disabilities. They are left to navigate complex needs for years after the initial intensive care ends. The trauma is compounded for families whose event may have been avoidable. A study in Finland between 2005 and 2024 suggested that a fifth of all such cases could have been prevented, or at least could have benefited from preventive measures. This compounds the trauma of affected families and underscores the importance of absolute honesty and systemic learning in our NHS services.
Additionally, HIE is not always recorded consistently in NHS systems or statistics, making it harder to advocate for policy change and obscuring potential disparities in outcomes, which we know exist for stillbirths and neonatal deaths. We must listen to brave parents such as my constituent and fantastic charities such as Peeps and ensure that HIE is no longer misunderstood or unheard of in conversations about baby loss. We owe these families recognition, compassionate care, and a commitment to address the lack of consistent data that makes it so hard for them to advocate for change.
Order. That brings us to the Front-Bench contributions, which will perhaps be in the region of eight minutes each.