Dementia: Covid-19

Caroline Ansell Excerpts

Thursday 12th November 2020 Westminster Hall

[Caroline Ansell (Eastbourne) (Con)]

It is a privilege to serve under your chairmanship, Mr McCabe. I congratulate the hon. Member for Oldham East and Saddleworth (Debbie Abrahams) on securing this important and time-sensitive debate. It is a privilege to follow my hon. Friend the Member for Middlesbrough South and East Cleveland (Mr Clarke).

I am sure that hon. Members will recognise similar letters to this one from my mailbag:

“I have only been able to see my lovely Mum twice since 15th March…(241 days.) We have seen her through the window from the garden. The staff are very good and have usually moved Mum’s bed closer to the window so that we can see each other more easily. But we can’t hold her hand.”

That is just one of the heartbreaking messages that I have been sent ahead of the debate. Those words ring with the sound of sacrifice and emotional distress, and of the forbearance asked of those with Alzheimer’s and their families and friends in this crisis.

People live with Alzheimer’s in a number of settings. My constituency has a significant cluster of excellent care homes—69, in fact, which I know because my team and I have called them several times, first regarding food supplies, then PPE, and then testing. We have always known that they would be at the epicentre of this health crisis, and that their residents would be the most vulnerable. I take this opportunity to commend local carers and to pay heartfelt tribute to their work during this time. Our higher-than-national rate of covid diagnosis is testament to their dedication and means swifter care.

Out of the present crisis, I am pleased to say that new, stronger relationships and communications have been forged between our care homes and our local hospital and its community teams. That can only be good for more joined-up thinking and more joined-up work, with a new named lead now for each setting. In the summer, at a “spade in the ground” ceremony, I met the family directors of Hallmark Care Homes at their new project in Kings Drive. We spoke about their concerns, with their request to Government being: “Hear us, recognise the centre, bring us in to shape the future.”

It was interesting to hear how—even then, back in July—the covid crisis was already influencing the design of this new building, where we stood in the footings. Swift design changes will mean new safe, green routes through the home, creating all-weather visiting spaces. It also means a whole new level of tech to provide residents with a digital window on the world.

For people who are living with Alzheimer’s at home and are reliant on support from day care centres, such as the excellent Ivy House in Eastbourne, forced closure and severed connection has been especially hard for all parties. In more extreme cases, it has been dangerous for the sufferer, and almost unbearable for those who care for them. We cannot find ourselves in this situation again. Individual risk assessment is key, and an essential service designation vital, so that the work of day care centres for the dementia community in my home town is safeguarded.

In 2015, the then Prime Minister set an ambitious 2020 dementia challenge. Funding for vital research has been increased, and diagnosis rates have increased. With programmes such as Dementia Friends, awareness has increased too. There is change and there has been progress, but we must continue with new urgency to take up the deeper, wider reform of social care. Let us dare to reimagine it. There will be a wealth of learning from this pandemic about the solutions that we need to put in place to better protect people affected by dementia during the pandemic and beyond. That is the view of the Alzheimer’s Society.

I know that all hon. Members are concerned for their constituents, as am I. I am keen to hear further from the Minister, and I do not underestimate the challenge. Good work is being done, and I know she is committed to getting it right.

[Sir Graham Brady in the Chair]