Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to reduce the time taken for people displaying symptoms of inherited cardiac condition to receive a diagnosis from (a) GPs and (b) cardiac specialists.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
In 2017, NHS England published a national service specification for inherited cardiac conditions (ICC) which defines the standards of care expected from organisations commissioned by NHS England. The specification sets the national minimum standards for the diagnosis, treatment, and outcome of patients with ICC.
NHS England is reviewing this service specification, working with a broad range of stakeholders, including National Health Service clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation. This review considers the referral of ICC patients from primary care into ICC specialised services and considers how families of ICC patients are supported through the screening and identification process. The service specification review has also considered referrals directly from primary into secondary care, which would improve the timeliness of patient diagnosis.
Department ministers regularly have discussions with their colleagues and counterparts in Wales, Scotland, and Northern Ireland on matters of cross border interest.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) support and (b) ensure equitable access to new treatments for people with inherited cardiac conditions.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
In 2017, NHS England published a national service specification for inherited cardiac conditions (ICC) which defines the standards of care expected from organisations commissioned by NHS England. The specification sets the national minimum standards for the diagnosis, treatment, and outcome of patients with ICC.
NHS England is reviewing this service specification, working with a broad range of stakeholders, including National Health Service clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation. This review considers the referral of ICC patients from primary care into ICC specialised services and considers how families of ICC patients are supported through the screening and identification process. The service specification review has also considered referrals directly from primary into secondary care, which would improve the timeliness of patient diagnosis.
Department ministers regularly have discussions with their colleagues and counterparts in Wales, Scotland, and Northern Ireland on matters of cross border interest.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with his Welsh counterpart on levels of diagnosis of inherited cardiac conditions in Wales.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
In 2017, NHS England published a national service specification for inherited cardiac conditions (ICC) which defines the standards of care expected from organisations commissioned by NHS England. The specification sets the national minimum standards for the diagnosis, treatment, and outcome of patients with ICC.
NHS England is reviewing this service specification, working with a broad range of stakeholders, including National Health Service clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation. This review considers the referral of ICC patients from primary care into ICC specialised services and considers how families of ICC patients are supported through the screening and identification process. The service specification review has also considered referrals directly from primary into secondary care, which would improve the timeliness of patient diagnosis.
Department ministers regularly have discussions with their colleagues and counterparts in Wales, Scotland, and Northern Ireland on matters of cross border interest.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to improve the uptake of (a) existing and (b) new treatments for people with inherited cardiac conditions.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
In 2017, NHS England published a national service specification for inherited cardiac conditions (ICC) which defines the standards of care expected from organisations commissioned by NHS England. The specification sets the national minimum standards for the diagnosis, treatment, and outcome of patients with ICC.
NHS England is reviewing this service specification, working with a broad range of stakeholders, including National Health Service clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation. This review considers the referral of ICC patients from primary care into ICC specialised services and considers how families of ICC patients are supported through the screening and identification process. The service specification review has also considered referrals directly from primary into secondary care, which would improve the timeliness of patient diagnosis.
Department ministers regularly have discussions with their colleagues and counterparts in Wales, Scotland, and Northern Ireland on matters of cross border interest.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the potential impact of the regime of discounts applied to meat charges incurred by undertaking inspection obligations under Official Controls Regulations on the small abattoir industry in Wales.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
On 28 February 2025, further to engagement with industry representative bodies, the Food Standards Agency published the 2025/26 charge rates for inspections in meat premises in England and Wales. As in previous years, charges in 2025/26 will be offset by a taxpayer-funded discount scheme which will provide the greatest proportional support to smaller abattoirs, and will therefore benefit the small abattoir industry in Wales. A separate exercise is being conducted in respect of 2025/26 charges for abattoirs in Northern Ireland.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will take steps to include reform of inherited cardiac conditions in the 10-year plan for the NHS.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The 10-Year Health Plan will deliver the three big shifts the National Health Service needs to be fit for the future: from hospital to community, from analogue to digital, and from sickness to prevention. All of these are relevant to improving cardiac health in all parts of the country.
More tests and scans delivered in the community, better joint working between services, and greater use of apps and wearable technology will all help people manage their long-term conditions, including cardiac disease, closer to home. Moving from sickness to prevention will help us provide treatment earlier, rather than only intervening when conditions deteriorate.
NHS England has published a national service specification for inherited cardiac conditions that covers patients who often present as young adults with previously undiagnosed cardiac disease or families requiring follow up due to a death from this cause. NHS England is currently reviewing this service specification in line with the national service specification methods review process. The specification is available at the following link:
https://www.england.nhs.uk/wp-content/uploads/2017/11/cardiology-inherited-cardiac-conditions.pdf
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the Medical Certificate of Cause of Death (England and Wales) Regulations 2024 on the timely registration of deaths.
Answered by Andrew Gwynne
The Government is monitoring the impact of the death certification reforms, including the Medical Certificate of Cause of Death Regulations 2024, which came into legal effect on 9 September 2024. The median time taken to register a death since the introduction of the reforms in England and Wales has typically been eight days. This figure is for all deaths, as it includes those certified by a doctor and those investigated by a coroner. The median time taken to register a death varies depending on the type of certification. Deaths certified by a doctor, that comprise approximately 80% of deaths registered each week, have typically had a median time to registration of seven days. It’s important to note that the medical examiner system was active on a non-statutory basis before the introduction of the statutory system on 9 September 2024, and this makes direct before and after comparisons challenging to draw conclusions from.
The core purposes of the death certification reforms are to introduce scrutiny of the cause of death to detect and deter malpractice, to improve reporting, and crucially to put the bereaved at the centre of the process by offering a conversation with the medical examiner about the cause of death. The expectation on doctors and medical examiners is clear, that they should complete certification as quickly and efficiently as possible, and the Department is working with all stakeholders to make sure this is the case.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of the retained margin element of the NHS drug tariff.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The adequacy of medicine margin that pharmacies are allowed to retain, with medicine margin being the difference between how much pharmacies are reimbursed and how much pharmacies were charged by suppliers, is currently being considered as part of the wider funding for the Community Pharmacy Contractual Framework.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of the (a) drug prices, (b) appliance prices and (c) fees paid to pharmacy contractors in the NHS Drug Tariff.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Department undertakes a quarterly assessment of the adequacy of drug prices paid to community pharmacies through the medicine margin survey. The survey samples independent pharmacy contractors’ sales invoices for the medicines they dispense, and compares the amount paid with the amount reimbursed by the National Health Service. This has found that more than the amount agreed as part of the Community Pharmacy Contractual Framework has been delivered in total across the previous four financial years. Suppliers of appliances can optionally apply for an annual price increase on the NHS Drug Tariff. Fees in the tariff are routinely reviewed and updated when appropriate.
Medicine costs are considered as part of ongoing broader assessments of the financial health of the sector. However, if the selling price of a product goes above the reimbursement price in a given month, pharmacy contractors can request an increase to the reimbursement price from the Department via Community Pharmacy England. Where an increase is granted, this new price is known as a concessionary price. This ensures that that the reimbursement prices set are reflective of real time market selling prices, and means that pharmacy contractors are paid fairly for the medicines they dispense.
Asked by: Ben Lake (Plaid Cymru - Ceredigion Preseli)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help community pharmacies with increases in the cost of medications.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Department undertakes a quarterly assessment of the adequacy of drug prices paid to community pharmacies through the medicine margin survey. The survey samples independent pharmacy contractors’ sales invoices for the medicines they dispense, and compares the amount paid with the amount reimbursed by the National Health Service. This has found that more than the amount agreed as part of the Community Pharmacy Contractual Framework has been delivered in total across the previous four financial years. Suppliers of appliances can optionally apply for an annual price increase on the NHS Drug Tariff. Fees in the tariff are routinely reviewed and updated when appropriate.
Medicine costs are considered as part of ongoing broader assessments of the financial health of the sector. However, if the selling price of a product goes above the reimbursement price in a given month, pharmacy contractors can request an increase to the reimbursement price from the Department via Community Pharmacy England. Where an increase is granted, this new price is known as a concessionary price. This ensures that that the reimbursement prices set are reflective of real time market selling prices, and means that pharmacy contractors are paid fairly for the medicines they dispense.