Terminal Illness (Support and Rights) Bill

Ben Everitt Excerpts

2nd reading
Friday 18th November 2022 Commons Chamber

[Chris Clarkson]

I said in the previous debate that I enjoy Friday sittings, because people introduce Bills to address concerns that are probably not covered by current legislation.

I agree with quite a lot of what the Minister said. There is a great deal of support in the current framework, but the point of the Bill, as I understand it, is to try to address the places where that support is not getting to people who need it in a timely fashion. The example of a person having to go to an employment tribunal when they may have only a few months left to live is very powerful, because it throws the situation into stark relief.

Part of the problem is that we can go into abstraction, because there is no ticking clock showing how much longer we have on this earth. People will have myriad concerns at that moment in their life. They will want to tidy up their affairs and they will want to make sure their family are looked after, but they will probably also forget to take care of themselves in the way they normally would. They might lose out because they do not necessarily know what support is available, as they will be so busy trying to ensure that, when they exit the stage, those around them are able to carry on, and we do not want them to lose out. Nobody in this country should ever be in a position where they are not able to look after themselves properly. People should die with dignity. Dying well is a good way of looking at it. We need to remove the stigma that attaches itself to being terminally ill. I am the son of a cancer survivor. We were very lucky, but many families are not. That moment crystallises people’s thinking about what has to happen in a very short period of time.

I congratulate the hon. Member for Stockton North on bringing forward this Bill. It is a worthwhile piece of legislation, and I can tell that he has given it serious thought and has worked with partners. I implore the Minister to make good on his promises to bring together people from the various Departments that will be affected. We have a good suite of things available. The special rules for the end of life provide pretty powerful protections but, as we saw in the previous debate, even where we have a framework that is supposed to work, it is not always the case in lived experience.

I would like to see the Bill continue in some form down the legislative pathway, which will rely on us all working together to understand where pressure needs to be applied to things that are not working, and where best practice can be enhanced by looking at other sectors. I look forward to seeing what comes next, but I go back to my original point. We need to lean on the existing protections. We need to better understand what levers we need to pull and how we can apply best practice where we have it, so that we can ensure that everyone around us has the option to live with dignity and to die well. I look forward to having a conversation with the hon. Member for Stockton North, because the Bill has piqued my interest. As I said, I like Friday sittings because I get to think about things I would not normally think about.

[Ben Everitt (Milton Keynes North) (Con)]

I am struck by the point my hon. Friend makes about people being tied up with legal wranglings in the last part of their life. It is incumbent on everybody to make sure that they do not have to fight the system while they are also fighting for their life.

[Chris Clarkson]

My hon. Friend makes a powerful point. Far too often, we become the system and we should not do so. We should want to be there to support.