Modern Service Framework for Dementia and Frailty

Baroness Wyld Excerpts

Thursday 9th July 2026 Grand Committee

[Baroness Wyld (Con)]

My Lords, I too thank the noble Lord, Lord Weir of Ballyholme, for securing this debate and for setting out the issues, as he did so comprehensively and with great expertise. We are very grateful to him.

Like so many people up and down the country—and, as I know, in your Lordships’ House—I too have experience of helping to care for relatives with dementia. The first time was over 20 years ago, and now our family joins many others in trying to navigate the challenge of a recent diagnosis. I have been reflecting on what has changed since I first tried to help a relative over 20 years ago, and I want to start on an optimistic note, because the medical landscape is different.

As we have heard, we have entered an era where the first disease-modifying therapies have been licensed. Innovation in diagnostics is enabling us to accurately identify disease earlier in the trajectory, and blood tests in NHS trials could make the diagnostic pathway easier. So, recent breakthroughs have at last delivered hope, if we build a healthcare and research system that is ready to adopt and deliver these innovations at scale as soon as they become available.

I am grateful for the briefings I have received. The joint letter from Dementia UK, Alzheimer’s Research UK and the Alzheimer’s Society in the very helpful Library briefing confirmed that there is

“a clear opportunity to change the trajectory of dementia—if the system is ready to act”.

However, it also stressed that

“we must recognise that the health and care system is failing to deliver the outcomes that people with dementia deserve today”.

The contrast between scientific progress and the daily reality faced by many patients can be jarring. Every dementia experience is of course unique to the individual, but the vast majority of families face similar hurdles: the emotional toll, the labyrinth of health and social care services and the struggle to access specialised support. It can be a very lonely journey, and I know that for many families, it takes a crisis for help to arrive, so I ask the Government to ensure that the framework is built on a true understanding of the experience of patients and carers.

In a debate on Alzheimer’s in October 2025, the Minister described the framework as taking “a whole view”. My hope is that this means it will take a whole view of the person and indeed of the system. The title of the report from Alzheimer’s Research UK, which the noble Lord, Lord Weir, rightly referred to, is Ready for the Cure. It also highlights that dementia is one of the most feared health conditions, as we have heard. Yet we may also have a once-in-a-generation chance to move to a more preventive treatment model. We must ensure that the UK’s scientific excellence is translated into impact for patients and their families. I would be most grateful if the noble Baroness could set out how she envisages the framework achieving this.

We have so many strengths in the UK: there has been political will from past Governments and from this Government and many global leaders in the field are based here. As part of the 2012 Prime Minister’s challenge on dementia, the UK established the UK Dementia Research Institute, a beacon of scientific innovation, and the last Government established the Dame Barbara Windsor Dementia Goals programme.

We are also gaining a better understanding of prevention. The Lancet commission suggested that 45% of cases of dementia are preventable, as the noble Lord, Lord Weir, referred to. We know that it is about managing risks where we can through lifestyle interventions—what is good for the heart is good for the head—and through better health system management, particularly of conditions such as diabetes. I also want to flag that recent successive studies have shown that people who have had the shingles vaccine have a low incidence of dementia. The shingles vaccine is one of a number of vaccines where studies have suggested some preventive cognitive benefit. Understanding the science behind this better will help shape future vaccine advice, and I wonder whether the Government have thought about this as part of the strategy and whether the Minister can comment.

Finally, but most importantly, let us remember the importance of kindness and empathy. I think about the number of people I have known who have sat in a room to hear a diagnosis and, indeed, the times when I have heard news about a family member. Each time, the reaction has been: where do we go next and who can help us? The Secretary of State has set out the importance of enabling patients to live well in their own neighbourhoods. This relies on a properly resourced workforce across health and social care, with the skills and kindness to help patients and their families manage a heartbreaking disease. Navigating post-diagnostic support is difficult, even with an advocate. I hope the Minister will be able to comment on the Government’s approach to care plans. This framework must move us away from a fragmented approach which too often let-down patients and families. We stand at an inflection point. I hope the Government recognise the urgency, because decisions taken now will shape how millions of people experience the hardest chapter of their lives. I look forward to the Minister’s response.