Breaks for Carers of Disabled Children Regulations 2011

Baroness Walmsley Excerpts

Tuesday 25th January 2011 Grand Committee

[Lord Rix]

My Lords, I welcome the introduction of these draft regulations by the coalition Government. As your Lordships may be aware, in March 2008, along with the noble Lord, Lord Adonis, I tabled an amendment to the then Children and Young Persons Bill on this matter. The amendment created a new duty for local authorities to help parents caring for disabled children by providing them with breaks from their caring responsibilities. As the Minister has already kindly stated, my involvement in the campaign for short breaks for disabled children has lasted for many years. I think I introduced a Private Member’s Bill about short breaks as long ago as 1994. It went through the Lords but crashed in the House of Commons. I know that representatives from across the disability sector, including Mencap, of which I am president, and Every Disabled Child Matters, will welcome the introduction of these regulations.

The case for this new duty could not be stronger, and I welcome the £800 million identified by the Government over the next four years to help local authorities provide these short breaks. However, when faced with the competing demands of filling potholes, weekly rubbish collections and street cleaning, I fear that the temptation on local authorities to spend money for short breaks in other areas could be very seductive. That is why I would have preferred to have seen these funds ring-fenced for the specific purpose of short breaks, perhaps with a provision also to address the needs of all disabled people, including adults. It is important to remember that for many parents of disabled children, their responsibilities as carers will continue long after their sons and daughters have grown up. This is particularly the case for adults with profound and multiple learning disabilities, where the case for short breaks is arguably even stronger. However, I acknowledge that this is probably a debate for another day.

As we have been reminded, the pressure on funds for short breaks and respite services received much attention only last week, when we saw a great deal of coverage in the national media about Riven Vincent, a mother who asked for her six year-old daughter, Celyn, to be placed into care after she received a letter from Bristol social services informing her that no more respite care would be available. This extremely unhappy story highlights why it is so important for the parents of disabled children to have regular access to short breaks. Despite the pressure of cuts to services, we must ensure that the funds announced by the coalition Government reach their intended audience, together with the new duty on local authorities to provide short breaks. Can the Minister assure me that these funds will be used for those whose needs are addressed by these regulations?

[Baroness Walmsley]

My Lords, I, too, thank the Minister for his explanation and welcome the regulations. I also have some questions. Will Regulation 3(b) have regard to the needs of carers whose break from caring may involve an extended leisure activity such as a holiday, rather than simply, as the regulation says, a “regular leisure activity”? I echo the words of the noble Lord, Lord Rix, about the importance of regular breaks from caring, if that is what carers choose, because I believe that regular breaks—a little bit of respite every now and then—can provide long-term stable care for disabled children, which is vital.

Is it sufficient for local authorities merely to publish their short-break services statements on their website? Surely they should do a little more than that. Should they not be proactive in contacting existing carers, rather than just publishing the information, especially in the light of the fact that the Explanatory Memorandum indicates that only a third of those eligible currently receive short breaks? We do not know whether that is simply because they are not aware of what is available and do not apply or whether it is because of shortage of money. Can the Minister say whether the practice guidance outlined in paragraph 8.4 of the Explanatory Memorandum will provide any guidelines on the criteria by which eligibility for the services outlined in Regulation 4 will be assessed?

I move on to a point about ensuring that this all works out in practice on the ground, which of course is very important. Is there any plan to require local authorities to publish a sufficiency assessment? The Minister talked about quality, but will local authorities also be obliged to publish an assessment of whether the quantity of short breaks that they supply is sufficient?

Can the Minister also say whether he expects a large number of applications for short-break services to result from the publication of these pieces of information by local authorities and whether any extra funding is likely to be allocated to local authorities if they report a large increase in the number of carers applying for short breaks? Does he agree that there may be a risk that, although these regulations may widen the number of people who apply for short breaks, the danger is that the funding per capita will go down to the point where the efficacy of the breaks will deteriorate? I do not think that any of us wish to see that.

Finally, can the Minister say when the Government expect to publish the initial practice guidance, to which he referred? How will this guidance be disseminated to relevant groups and how frequently do the Government intend to update it? Groups such as Every Disabled Child Matters will pay very careful attention to the guidance, but individual parents will also be interested in their local authority’s guidance so that they, as individual parents, can hold the local authority to account against the guidance.

[Lord Hill of Oareford]

I am grateful for the comments made and for the general welcome for the detail of the regulations. I am glad to have had the endorsement of the noble Lord, Lord Rix, and I am grateful to my noble friend Lady Walmsley for her typically probing and detailed questions, some of which I will have to come back to, if she will allow me. I will circulate the letter to those who have an interest in the matter as she raised important questions about monitoring.

There is broad agreement and I am happy to respond to the noble Baroness, Lady Jones of Whitchurch, who said that she wanted reassurance that we will build on the momentum that has started and the work that the previous Government have done. I accept fully the point that as arrangements bed down, we will want to ensure that they work well on the ground. The ring-fence has concerned many. There is a tension operating between wanting to give local authorities more freedom to provide services that they think are best, and which best match the needs of local people. We need to bear in mind that the needs of carers in a sparse rural area like Cornwall will be different from those for families in more dense urban areas. We are keen to have flexibility, and it flows from there that we want to give that discretion to local authorities.

I hope to provide some reassurance that there is a statutory duty on local authorities to provide those services. On the publication of the statements, I agree with my noble friend that a website is one way of disseminating information but not the only one. Generally, we will all in our different ways want to make sure that people are aware of their rights and the opportunities open to them. I hope that the provision of information and the shining of a spotlight will bring healthy pressure to bear on the providers of services and make sure that they are of high quality. I accept that we need to keep a careful eye on that. It is not enough just to construct a system, but not see how it operates in practice. We will all have a common interest in pursuing that.

My noble friend Lady Walmsley asked about guidance which will be published very soon. The department has been working on it with local authorities and, as part of the guidance, two local authorities have come up with a draft statement of the services that they provide, which we will disseminate widely. One of the arguments in having a non-statutory approach to the guidance is that one can keep it flexible and keep updating it to take account of circumstances on the ground. Services will develop and we can learn from best practice in different parts of the country. We want to keep things flexible to make sure that those lessons are learnt.

On the point about the obligation and duty on local authorities, Regulation 5 requires local authorities to have regard to the views of carers. The guidance will deal with questions of quality. Overall, I welcome the points made about the benefits of these regulations. Some of the broader concerns raised about how things will work out in practice I accept and understand, and we will work to address them.

I will follow up any specific points that I have not addressed and circulate the responses but I hope that, given the support that these regulations have received from voluntary groups and those concerned in this area generally, the Committee will approve them. I have great pleasure in commending them to the Committee.