"My Lords, I start by thanking all noble Lords for an extensive, passionate and insightful debate. As noble Lords have observed throughout this debate, its quality and its conduct have been exemplary, and I believe that that has allowed the expression of differing and deeply held views. I thank my …..." Baroness Merron - View Speech
"I can only repeat the point I made that the Government Chief Whip will listen to the will of Parliament and will review as necessary.
The Motion and the amendment in the name of my noble friend Lady Berger refer to a Select Committee reporting to the House ahead of …..." Baroness Merron - View Speech
"My Lords, as set out in the 10-year health plan, this Government have an ambition to offer newborn genomic testing as part of routine NHS care, subject to evidence gathered through the Generation Study, which is using whole-genome sequencing to test 100,000 newborns for over 200 rare conditions. With advice …..." Baroness Merron - View Speech
"My Lords, the Generation Study is particularly designed to inform policy of the type that my noble friend is rightly concerned with. These are extremely important issues, and I am glad to have spoken to our noble friend Lord Winston about these matters. Perhaps I could give the assurance that …..." Baroness Merron - View Speech
"The noble Lord raises a very good point. Certainly, it is part of how we develop the use of data. I am aware that he did not directly ask me this, but perhaps I might use the opportunity to say that data safety, which I know is a matter of …..." Baroness Merron - View Speech
"I am grateful to the noble Lord and will be very pleased to write to him on that specific. Part of this work in the programme we are referring to is on treatable diseases. For example, the Generation Study covers hereditary fructose intolerance, which means that babies would not be …..." Baroness Merron - View Speech
"As I mentioned to the noble Lord, Lord Kakkar, the matter of ethics is crucial in this development. It might help if I restated— I absolutely understand the noble Lord’s point—that that is why the Generation Study, which is directed at newborns, is for treatable conditions that may develop in …..." Baroness Merron - View Speech
"There were a number of very helpful points in there. To reconfirm and satisfy your Lordships’ House, this is for conditions that may develop up to the age of five. As with all screening, consent is required. As the noble Lord rightly says, a baby of course cannot consent, but …..." Baroness Merron - View Speech
"A debate in this House will be a matter for my noble friend the Chief Whip. Members of your Lordships’ House may seek to encourage such a debate, which I would certainly welcome. I can say to the right reverend Prelate that the sequencing of 100,000 newborns through the Generation …..." Baroness Merron - View Speech
"That is an interesting assessment of where we are; it is not one that I was about to speak of, but I hear what the noble Lord says. Let me say that, in implementing contract changes, it is absolutely usual—and, in my opinion, correct—that regulations are important and are consulted …..." Baroness Merron - View Speech