Medical Data Sharing

Baroness Ludford Excerpts

Monday 1st June 2015 Lords Chamber

Asked by

[Baroness Ludford]

To ask Her Majesty’s Government what assessment they have made of the statement by the Health and Social Care Information Centre that they have been unable to process up to 700,000 requests for individuals to opt out from sharing medical data with third parties.

[Baroness Chisholm of Owlpen (Con)]

My Lords, the number of personal objections to data sharing lodged with GP practices is still unconfirmed. The Health and Social Care Information Centre is working to verify this estimated number. In the interim, for anybody who has registered a data-sharing objection with their GP, the HSCIC has taken the practical decision not to collect any identifiable GP data about that person for purposes beyond their own direct care.

[Baroness Ludford (LD)]

My Lords, in thanking the Minister for that Answer, can I clarify that I am referring to evidence given by Kingsley Manning, the chair of the Health and Social Care Information Centre, to the Health Select Committee in the other place? It concerns opt-outs from the sharing of data held by the Health and Social Care Information Centre with third parties, public and private, which could include commercial organisations. The admission was made that 700,000 people have objected to such data sharing, but the centre says that it is unable to implement or respect those objections. Will the Minister invite the Information Commissioner to investigate this worrying situation, which is undermining patient trust in NHS data sharing, to the detriment of legitimate uses for such data sharing?

[Baroness Chisholm of Owlpen]

The Health and Social Care Information Centre is working closely with NHS England and the Department of Health to put a method into place for resolving these issues. People’s private identifiable health information cannot be shared unless there is a legal basis to do so. Data will be held securely and will be made available more widely only in safe de-identified formats with crucial safeguards.