Disabled People

Baroness Jolly Excerpts

Thursday 28th June 2018 Lords Chamber

[Baroness Jolly (LD)]

My Lords, I join noble Lords in thanking my noble friend Lady Thomas of Winchester for initiating this excellent debate. I think it is the first that I can remember in getting on for seven years in which we have discussed such a wide range of disabilities. As often happens in this place, a huge range of experience and expertise has been demonstrated, which brings me to my second point: to join noble Lords in welcoming the right reverend Prelate the Bishop of London. I am delighted that she brings with her expertise on the south-west as well as on health. She will enrich our debates.

When we think of a disability, invariably it is physical and often visible. For those with a learning disability, it is not always physical and not always visible. When considering the challenges those with disabilities face in the UK, we need to remember that it is about making that person’s life the best it can be: how they can experience a meaningful life, ensuring their safety, well-being and interests are met.

Many organisations work in a person-centred way and some do not. I declare my interest in the register as chair of Hft, a charity supporting those with learning disabilities through independent housing and support services across England. I will talk about learning disability and the challenges faced, and about what two young people with learning disabilities did about them.

Person-centred models exhibit the right and freedom of choice, while always keeping in mind a person’s health and safety. People with learning disabilities enjoy engaging in hobbies and interests, just as we do, but sometimes extra support or care are needed to take part in these activities. Charitable organisations such as my own ensure that those with learning disabilities can do the things they love the most while also having fun in a safe and independent environment. Socialising is part of most of our daily routines but for those who live in a sheltered environment, meeting and chatting to friends can be challenging and opportunities infrequent. That is precisely why Luv2meetU and Hum Tum were created at Hft. Luv2meetU, a friendship and dating service, brings together people with learning disabilities at Hft-run events: games, sports, nightlife events and more. Hum Tum allows adults with learning disabilities of south Asian heritage to bond on social, cultural and religious levels. The funding we raise as a charity goes towards running those sorts of events.

The noble Lord, Lord Holmes of Richmond, spoke about disability on TV. I was delighted recently that “Silent Witness” had a storyline about a young couple with learning disabilities who were in love. It does happen. The point is for people to connect, laugh, share stories and feel that spark with someone special. We take these things for granted. Those with learning disabilities should not feel alone—don’t we all need that friend who understands?

We have considered the challenges facing those with learning disabilities but it is also critical to consult trusted friends and families. At Hft half the trustees are family members of those supported by the charity. At our council, the human elements are never forgotten. Family members can articulate to other trustees and executives issues that those without that experience could not understand in the same way. This offers invaluable insight. It would not be right or fair for charities to make critical decisions about those they care for without the consultation of the very people whom they support. The voices of those with learning disabilities must be heard, especially when it comes to preferences in care.

That is why our staff and people with learning disabilities are partnered up at local, regional and divisional level. Each house and region has a group where concerns and questions are posed and deliberated. These councils are to ensure consistency of communication and that shared knowledge and experience lead to better understanding. We call the meetings Voices to be Heard. It is worth mentioning that a frequent topic of concern is “mate/hate crime”, where somebody befriends you and hate comes out of it. The noble Baroness, Lady Uddin, demonstrated that admirably today.

Two people with learning disabilities in our care travelled to Geneva to share their personal experiences of the effects of austerity with a United Nations hearing. The noble Lord, Lord Low, mentioned this earlier. They are two members of our national Voices to be Heard council. They attended the 18th session of the United Nations Committee on the Rights of Persons with Disabilities. The hearing invited disabled people to share their personal experiences to help inform the committee’s investigation into how the UK Government’s austerity policies have impacted on people with disabilities. Hft’s evidence fell under Article 19, the right to inclusion and participation in the community. Each addressed the 18 members of the committee, warning that increased pressures on care funding are impacting on the opportunity for people with disabilities to live the life they choose. We believe that this violates the rights enshrined in Article 19 of the CPRD:

“Living independently and being included in the community”.


Since February last year, through its It Doesn’t Add Up campaign, Hft has been aiming to raise awareness of the funding pressures faced by social care providers following the introduction of the national living wage in April 2016. This has not always been reflected in money given by the Government to local authorities to fund care packages. Data from the campaign was used to respond to calls for information from the UN Office of the High Commissioner for Human Rights on service provision for persons with disabilities. This was a great opportunity for Henry and Becky to have their voices heard at the highest level and to play a key role in driving positive change against the austerity measures disproportionately affecting people with learning disabilities. They argued that inadequate funding of the social care sector was prohibiting providers properly supporting adults to live independently.

Reductions in benefits are preventing people living as full a life as before, and benefits are now more about enabling people to survive rather than thrive—their expression, not mine. They expressed concerns about provision of Easyread resources in several settings, particularly in health and at elections. Do the Government have a view about where Easyread communications should, and could, be available? It is worth noting that last year, an awful lot of people with learning disabilities, carrying a polling card, were turned away from their polling station by the officer in charge, who told them, “People like you can’t vote”. We visited our MPs. It happened, and we are going to try to sort something out for the next election. However, that was really shameful.

The chair of the committee called the UK Government’s policies a “human catastrophe” for disabled people. It issued recommendations under all chapters of the CRPD. Regarding Article 19, it argued for adequate and earmarked ring-fencing of moneys so that local authorities are properly able to execute their responsibilities in enabling disabled people to exercise choice and independence. Our Government responded by saying that the UK maintains that it is a world leader in disability rights. The response will be published in the summer.

The sector feels that conversations about funding for social care are always about older people, not those with disabilities, despite the fact that within a few years the funding required for people with disabilities will outstrip that for elder care. Can the Minister feed back the frustration of the learning disability sector that, when discussing disabilities, the Government invariably refer to those with a physical disability and rarely to those with a learning one?

I commend to the Minister, if she has not already seen it, the British film “The Silent Child”, which won an Oscar this year. It is all about the power of sign language. The makers of that film went to see the Department for Education and they were promised a GCSE in sign language.

Those with disabilities share many of our own desires: a voice wanting to be heard, preference in the way our daily lives work, a friend or companion to call or hold. The challenge is enabling the quality and opportunity of those practices. Whatever the disability—whether it is hearing loss or lack of sight, mobility problems or a learning disability—it is all about making a life safe and worth living. We should all agree that that is something which brings value and happiness to everyone.