Disabled People’s Right to Control (Pilot Scheme) (England) Regulations 2010

Baroness Campbell of Surbiton Excerpts

Monday 8th November 2010 Grand Committee

I hope that as we work towards a full evaluation in two years’ time, the trailblazers will help us find the best way to optimise a comprehensive right to control package. I therefore seek approval for these regulations and commend them to the Committee.

[Baroness Campbell of Surbiton]

My Lords, I also really welcome the regulations. I, too, pay tribute to the noble Lord, Lord McKenzie, for introducing them; it was a very inspirational thing to do. It was risky and I think it will pay great dividends in the future. How nice that all sides of the Committee can support this initiative.

The right to control is, as the Minister said, a significant landmark for disabled people. For decades, disabled people have campaigned for the right to have choice and control over our lives. A small thing, you may say, but it is something that we have not been able to take for granted in the way that non-disabled people have. Now we have equality.

The regulations take us a long way towards the goal of choice and control. If implemented well—and they do need to be implemented well—they have the potential to transform the way we live. By exercising the right to control, disabled people will inevitably become more confident in taking personal responsibility for their role in the community and family life. It will enable greater freedom to plan and pursue educational, work or volunteering opportunities. In short, disabled people have at last been put in the driving seat of their own destiny. What is more, this is a legal right, enshrined in legislation—not a gift or a charitable favour, for which one must be grateful, but a right. This is a real step forward for disabled people.

As the Minister said, one of the key articles in the UN convention on the rights of disabled people is Article 19. It concerns the right of disabled people to live independently and be included in the community. As noble Lords will be aware, the UN convention states clearly that disabled people should have and enjoy the same human rights as everyone else. It sets out obligations on states to ensure that those rights are met. The right to control goes straight to the heart of Article 19 and provides a vehicle to realise this right and, consequently, goes a long way towards implementing the convention. That is terrific.

In addition, the way in which the right to control legislation has been conceived and developed accords well with the UN convention duty on states to involve disabled people in the planning and implementation of such rights. Both the previous Government and now the coalition Government have involved disabled people at every stage of developing the right to control legislation and now its implementation. I should know because I am the chair of the advisory group of disabled people and experts in independent living who helped to shape the legislation, proposals for the trailblazers and the evaluation. Everything about us was discussed with us during this process. The seven trailblazers are following the same model of co-production at a local level. This will ensure that the experience and knowledge of disabled people permeates how the right to control continues to be delivered and developed.

The way in which we have developed the right to control over the past two years, as an advisory group and on the ground with our buddies, has taken the personalisation agenda a step further and set a new dynamic support service culture whereby disabled people, who once had to apply to five or six different agencies for support, will now engage with one support planning process. This is something for which disabled people have been asking for a long time. A new public support service where disabled people will, again by legislative right, decide for themselves how best to use their resource allocation is at the heart of this process. We will be able to devise creative solutions of our own for our own support, and exercise as much control in the commissioning of the outcome as we feel able. If you do not feel that you can control everything, you do not have to; you can have a plurality approach.

I know that some noble Lords have concerns that some disabled people may not be able to take that kind of control over their lives in this way. However, I can reassure them that on the advisory group we looked at this issue and made sure that the right permits flexibility and will be well supported throughout the process. Flexibility, of course, is the key. Disabled people can ask for a particular service to be provided or take a mix of existing services and a direct payment, or, in my case, use a direct payment to purchase all their support themselves and be totally 100 per cent in control. However, I know that most disabled people are not control freaks like me.

There will be support and advice for those who want their payments to be managed by a third party, and advice, training and guidance for people who want to employ personal assistants. Advocacy and support will be an integral part of the right to control. I am particularly keen to see how well the trailblazers fulfil this important part of the right-to-control culture and keen that we scrutinise it as it develops.

Peer support is incredibly powerful in demonstrating to disabled people what can be achieved. It is another important part of trailblazer activity. Before I began employing my personal assistants more than 20 years ago, I needed to observe how other disabled people managed their employees and I learnt from their mistakes—as I am sure others have learnt from mine.

We all have dreams or expectations from life; disabled people are no different. Delivered successfully, a right to control will change for ever the way in which the state responds to our needs. I am confident that, by transferring power from the state to the individual in this way, we will overturn decades of low expectation and witness a transformation in people’s capability and well-being.

However, I recognise that this is an ambitious project. We are overturning a culture of dependency and philanthropy. There will be teething problems as we bed it down. However, I have been extremely pleased to be part of this transformative exercise. I have seen how people have grown, even during the two years in which I have had the privilege of chairing the advisory group. I am looking forward to seeing the success of the trailblazers and their eventual rollout across the country.

[Baroness Thomas of Winchester]

My Lords, as my noble friend said, it is just over a year ago that the band of Peers who speak on DWP matters welcomed the amendments to the Welfare Reform Bill, now Act, of 2009 which have triggered these regulations for pilots. I, too, can give them a hearty welcome.

I said a year ago that the amendments, now regulations, would herald a real shift in power from the state to disabled people, ensuring that they are in the driving seat when it comes to the support they need. I seek a few clarifications and have a few questions.

The amendments, which inserted a new clause, included a power for the Secretary of State to issue directions under existing community care legislation to deliver alignment under existing enactments. The then Minister, the noble Lord, Lord McKenzie of Luton, to whom I also pay warm tribute, said:

“Alignment means delivering the effect of the right to control to individuals in receipt of adult community care services”.—[Official Report, 27/10/09; col. 1114.]

My noble friend Lord Freud responded that it made far more sense to base the right-to-control approach on community care services, which are likely to be required on a sustained and long-term basis, than on the more transitory requirements surrounding support for disabled people to secure employment.

I should be grateful for clarification on that point. I think it means that adult community care is not included in these regulations because it comes under other legislation on direct payments, but that under these regulations authorities are enabled to share information about community care. Is this correct? Presumably this means that assessments will be shared so that disabled people do not have to undergo multiple assessments.

We all know how stretched local authorities’ financial resources will be. Will any support be provided to authorities to enable them to develop and implement a single assessment system? Will there be any practical support for organisations that provide information, advice, peer support and advocacy? There is an obligation for authorities to give to the disabled person information about organisations that provide advice and assistance, but there is no duty to sustain those organisations, nor is there a right to advocacy. Perhaps my noble friend can say what support there will be for the pilots.

Having read the document helpfully provided by the Office for Disability Issues, Making Choice and Control a Reality for Disabled People, I end by asking my noble friend one or two questions arising from that document. On page 20, I see that the Office for Disability Issues is working with the Department of Health to consider allowing, within the trailblazers only, third parties to carry out non-complex assessment reviews. Are we talking about people other than healthcare professionals? I was not sure. If we are, there is already a certain amount of controversy about those who carry out the work capability assessment, and it is important to get all these assessments right.

Another small point is the rule that a disabled person has to be informed in writing of various things. We are told that this means,

“in a format that is accessible to the person”.

If that is what the regulation means, why does it not say so?

Finally, have we got anywhere with the idea that the excellent access to work provisions might be guaranteed to a disabled person before the offer of a job, so that a potential employer would be more encouraged to offer that person employment? I hope that my noble friend can answer those questions—perhaps in writing, if not today. However, in general, I welcome the regulations most warmly.