Health: Stroke Survivors

Baroness Barker Excerpts

Thursday 28th June 2018 Grand Committee

[Baroness Barker (LD)]

My Lords, I say to the noble Lord, Lord Lingfield, that it is an absolute joy to take part in this debate with him this afternoon.

Following on from the noble Baroness’s comments, I can recount that about 20 years ago a lady called Mary Anne MacLeod Trump woke up in a hospital ward in New York following a stroke. Most of her nurses thought that she was speaking gibberish, but she was very lucky because one of her nurses was Irish and knew that she was speaking Gaelic. In fact, Mrs Trump had been born on the island of Lewis in Scotland and, unlike her son, did not routinely speak gibberish—it was just the effects of a stroke—and she recovered. The noble Baroness is quite right.

The noble Lord, Lord Lingfield, set out for us the state of stroke care in England and Wales today. However, one point is so obvious that he did not make it: we have a national health service and, consequently, we are in a uniquely good place to gather information about the detection, diagnosis and treatment of stroke and about people’s recovery from it. That is something that we often overlook but it is very important. Just in the last 10 years or so, the work that the noble Lord, Lord Darzi, has done in London in reorganising stroke services has had a measurable effect. Our National Health Service is able to measure, at scale, the effectiveness of new thrombolytic or clot-busting drugs as they come in. That is why we have a real forward steal on the rest of the world in this highly complex area.

In another place back in December, MPs talked a lot about the development of mechanical thrombectomy —I am pleased that I got that out; it is not the easiest word to say. It is a marvellous step forward in the acute treatment of stroke. The ability of surgeons to remove clots and stop further neurological damage makes an immense difference to patients and their recovery.

We are, unfortunately, able to have a 24 hours a day, seven days a week, service in only very few places. Like the noble Lord, I am very lucky to be living up the road from St George’s Hospital: we are okay. Other places are not. The ambition, surely, ought to be to make that service available at specialist neurological centres around the whole country, and easily accessible to the majority of the population as soon as possible.

A particular problem with thrombectomy is that it requires the input of several different medical disciplines, specifically surgeons and others who are not normally part of a stroke response unit. Far be it from me to accuse the NHS of territorialism, but getting surgeons to change their ways is not the easiest thing to do. I ask the Minister, therefore: will thrombectomy services be commissioned via specialist commissioning, and if the provision of the service requires redesign and redefinition—not just of the services but of the medical roles in the team—how that will happen? Does he believe, as I do, that STPs may well face a real battle to get so many people from different disciplines to change the way they work?

My understanding is that the department has not yet decided to refresh the stroke strategy; it is relying on the 2013 cardiovascular disease outcome strategy. Does the Minister believe that that is an adequate way for the department to require the NHS to look at some pretty significant changes among staff?

I also refer the Minister to the experience of some MPs who looked at provision in their local areas. They mentioned the tension between university hospitals and district general hospitals. It requires the might not just of NHS England but the department to look at this problem.

My next point is on research. We have one centre of excellence in research—certainly in thrombectomy—which I think is the University of East Anglia. It is one of several across Europe. I am a Liberal Democrat spokesperson and am therefore bound to ask what the Government are doing to make sure that, post Brexit, research and research collaboration continue? I know that the Royal Society is looking across the piece at the impact of Brexit on research, taking an unbiased and pragmatic view of it. I simply ask the Minister to tell us how the Government will keep an eye on that.

My third observation is that in 2016 Stanford University reported remarkable results from a very small-scale study—about 16 patients—on the use of stem cell therapies. These are often considered to be wonder solutions to quite an array of neurological conditions. I would not go that far: there is a lot to be done by neuroscientists before they realise the potential of stem cell therapy in all sorts of conditions, but principally such neurological diseases as Parkinson’s and possibly Alzheimer’s. If and when those trials are replicated on a larger scale and get to a further stage, where they might lead to some form of therapy, will the NHS build on its track record of work in stroke treatment by taking advantage of such developments?

On the question of rehabilitation, much of what the noble Lord, Lord Lingfield, said pointed to a system in which we have highly skilled staff but not enough of them. We have highly skilled therapists, physiotherapists and nurses—I have been in awe of the ones I have had to deal with—but we need to enable them to impart information first to care workers and secondly to family members, who are there in that golden six-week gap in which recovery can be advanced if people know what to do. To what extent are we asking our NHS acute staff, as part of their duty of care, to pass on information to carers to make sure that they can be there to assist and improvise with things which work?

What do the Government intend to do about the collection of data on post-acute service provision as part of the overall stroke strategy? The bulk of stroke recovery happens in the weeks and months afterwards.

The difference between acute provision and community provision would be that acute provision will help you deal with a physical deficiency, and a community service will help you deal with a lack of confidence. For most people, life after a stroke means living with a lifelong lack of confidence, but that can be aided, helped and treated.

We have done a lot in this country of which we should be proud, but with clever thinking we could do a lot more.