Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 7th June 2011

(13 years, 6 months ago)

Commons Chamber
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Anne Milton Portrait Anne Milton
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The right hon. Gentleman is right that we are not talking just about children. A number of people have languished and failed to achieve their potential, particularly their educational potential, for the lack of speech and language therapies. I take this opportunity to commend the work of Jean Gross, the communication champion, in raising and highlighting these issues.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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10. What recent representations he has received on the future of NHS Blood and Transplant; and if he will make a statement.

Anne Milton Portrait The Parliamentary Under-Secretary of State for Health (Anne Milton)
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Since February 2011, we have received about 60 representations on the future of NHS Blood and Transplant, including from MPs, Unison and the public. Representations continue to come in. I am happy to meet the hon. Lady if she would like. I should make it clear that the current review is not considering the sale of any part of NHSBT.

Annette Brooke Portrait Annette Brooke
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I wonder whether the Minister can give further assurances to address the great concern that voluntary donations of blood and organs might be put at risk if it is perceived that profits are being made in any part of the operation.

Anne Milton Portrait Anne Milton
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My hon. Friend is right. The altruistic donor system is one of the rocks on which the NHS is built, and we will do nothing to jeopardise public confidence in it. I am alarmed at some of the scare stories that have been circulating. They serve nobody any good, least of all those who need the necessary donations that are made.

Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 26th April 2011

(13 years, 7 months ago)

Commons Chamber
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Lord Lansley Portrait Mr Lansley
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The point I made was that average waiting times are stable. Maximum waiting times continue to be a right of patients under the NHS constitution. I recommend that the hon. Gentleman should go to Luton and Dunstable hospital and discuss with the staff there how they dealt with a combination of circumstances that led to there being unprecedented pressure on critical care beds. He must know that if hospitals do not have critical care beds immediately available, it is not in the patients’ interests for the hospitals to bring some patients in for elective surgery. That had an inevitable consequence on waiting times for a small minority of patients.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I have received representations from constituents regarding the reclassification by the primary care trust of elderly relatives for continuing health care funding, with severe needs apparently becoming moderate over time. Does the Secretary of State share my concern about this, and how widespread is this practice in the current climate?

Paul Burstow Portrait Paul Burstow
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My hon. Friend’s point is important and I regularly receive correspondence about this from hon. Members from all parts of this House. If she wishes to write to me, I will be happy to discuss the matter with her further, once I have had a chance to look at the details.

Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 8th March 2011

(13 years, 9 months ago)

Commons Chamber
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Lord Lansley Portrait Mr Lansley
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I am grateful to my hon. Friend for her question. As a registered charity, Marie Stopes is of course under an obligation to follow the rules and guidelines established by the Charity Commission on such matters. To that extent, these are not directly matters for me.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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On international women’s day, what assurances can the Secretary of State give about the protection of reproductive and sexual services within the new framework?

Lord Lansley Portrait Mr Lansley
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My hon. Friend will know that through the plans set out in the Health and Social Care Bill the commissioning of those services will be the responsibility respectively of the NHS commissioning board and local authorities. Through local authorities, and as part of our public health responsibilities, we will be looking to promote good sexual health and high-quality support for people who need assistance with reproduction.

Myalgic Encephalomyelitis

Annette Brooke Excerpts
Wednesday 2nd February 2011

(13 years, 10 months ago)

Westminster Hall
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Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.

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Ian Swales Portrait Ian Swales
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I thank the hon. Gentleman; indeed, that is right. I am not sure whether no funding is available, but it certainly is the minority of funding, and that seriously needs addressing.

My goal is to see the Government-funded Medical Research Council work with ME sufferers and biomedical researchers to achieve a proper understanding of the condition’s challenges and to change the unjust perceptions of it.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I congratulate my hon. Friend on securing this debate. It is almost a year since I had a similar debate, but I am not sure that we have moved on since then. Recently, the MRC announced £1.5 million for research, but does he agree that there appears not to be an overall strategy to deal with research into ME, and that there still seems to be concentration on the symptoms and not enough attention given to the causes?

Ian Swales Portrait Ian Swales
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I thank my hon. Friend. Yes, the lack of a strategy focused on the latest information is one of the problems.

I was delighted that two days after this debate was announced, the MRC announced £1.5 million for further research into ME—I am sure that it was just a coincidence. That important step shows that leading medical researchers and the Government are finally admitting that current thinking on ME is inadequate.

The condition affects an estimated 250,000 people in the UK. It is not a disease of the elderly: onset commonly occurs during the 20s to 40s in adults, and between 11 and 14 in children, wrecking the lives of so many young people. Studies show that the vast majority of patients never return to their pre-illness level of functioning, and relapses can occur several years after remission. ME is an extremely complex disease for which there is no scientifically proven cause or cure. The main symptom is severe fatigue following almost any mental or physical activity which does not go away with sleep or rest. That often leads to its being defined under the term “chronic fatigue syndrome”. However, an important step in changing the misleading perceptions of ME is to recognise that CFS is a loose umbrella classification covering a wide range of illnesses of which fatigue is a prominent symptom, and that those illnesses may be neurological, malignant, infective, toxic, genetic or psychiatric in nature. Fatigue is a loosely defined symptom which can occur to some degree in a wide range of conditions.

Using that umbrella term has further compounded the already significant obstacles to the diagnosis and treatment of ME, which is now identified on the basis of at least nine different definitions. A major problem lies in the fact that different types of illness are also contained under the CFS umbrella. That makes sound scientific research difficult to conduct, as different illnesses have different biomarkers. A research group that consists of people with completely different physical and psychological causes of their fatigue or tiredness can have only limited use, and certainly cannot lead to the development of any sound findings on the causes of ME.

ME, on the other hand, has a clear definition. The term “myalgic” means muscle pain, while “encephalomyelitis” means inflammation of the brain and spinal cord and represents a clearly defined disease process which has been included in the World Health Organisation’s “International Classification of Diseases” since 1969. That poses the obvious question of why research has been mainly focused on psychological symptoms, when the very definition of the disease refers to a physiological condition. “Fatigue” is also a clumsy way of describing a complex range of extremely debilitating symptoms. It is not the kind of fatigue that non-sufferers would recognise. ME, as we heard from my constituent, can involve sudden and extreme muscle weakness to the point of not being able to lift a glass. What recognition is there in the Department that ME is distinct and different from the much broader term CFS? Equally, in the light of the recent MRC funding announcement, I urge the Minister to encourage the Department to focus its research, as treating ME/CFS as a single homogeneous condition will only encounter the problems I have just outlined.

That blurring can also lead to a uniform approach to treatment, which is unreasonable and even dangerous. An indiscriminate, blanket approach to treatment was advised by the National Institute for Health and Clinical Excellence in 2007, no matter what the disease process, infectious agent or psychological condition. Again, the symptom of fatigue gets flagged up and treated in the same way in nearly all cases. That can be ineffective for many, and positively dangerous for others. That lack of recognition of ME specifically happens at every level; yet I believe it essential that GPs have the ability to spot ME early and to prescribe appropriate, tailored advice. I would like the Government to recognise the many differences between and subtleties of ME and CFS, and urge the Minister to do the same, as the current treatment guidelines are completely unacceptable.

I decided to call for this debate because the issue has been under-researched. The lack of understanding and stigma surrounding ME have meant that sufferers have had to live with the condition without recourse to the treatments and research they deserve. I initially tabled early-day motion 778 to gauge support, and I am delighted to report that, as of yesterday, 100 colleagues from all parties have put their names to it. That shows the strong feeling in Parliament that significant changes need to be made. There has been a distinct lack of funding into ME research in the past decade. Between 2000 and 2003, not a single penny was spent by the MRC on researching the condition. Things did improve, peaking with just over £1.3 million allocated in 2007-08, but that dropped to just £109,000 in 2009-10.

I welcome the recent funding announcement. However, more than 80% of the MRC’s expenditure on ME research so far has been allocated to psycho-social therapies, instead of biomedical studies to prove the existence of a physical cause. That research has continued to pursue a well-trodden path and ignored a vast landscape of other, potentially more rewarding areas. I am concerned to see whether the new MRC funding will focus on that biomedical work. Not only has there been a palpable lack of funding for research; a past study commissioned by the Department of Health found that the quality of research was poor. For a long-term condition that affects 250,000 people in this country, with no known cause or cure and huge costs to the NHS, the amount of research funding dedicated to it, even with the recent announcement, is pitiful.

Misinformation, widespread confusion and ignorance about ME and CFS have resulted in people with entirely different illnesses receiving the same diagnosis. A London sufferer, David Eden, drew my attention to some interesting research that has been taking place in the United States. Recent studies by the Whittemore Peterson Institute, the National Cancer Institute and the Cleveland Clinic have linked ME with the presence of a newly discovered retrovirus. Blood from 68 of 101 ME patients was found to contain a human gammaretrovirus, xenotropic murine leukaemia virus—XMRV—while only eight of 218 healthy patients were found to have the same retrovirus. While that result grabbed headlines, most subsequent studies have been less clear, although one other study did support the original findings. It remains uncertain as to whether XMRV is linked to ME and is involved in causation. I would like to encourage the Minister, therefore, to explore other areas of research, such as retroviruses, in order to ascertain once and for all whether they play a part in ME. To judge by the contact I have had with sufferers, there is constant frustration that the Government are failing to fund research into key areas.

Another, more practical consideration is the recognition of ME by the benefits system. Currently, disability living allowance is assessed by severity of condition, and ME is treated like the vast majority of other conditions. Due to the lack of overt clinical findings, much of the assessment rests on anecdotal evidence and whether the person’s description of their disability is consistent with their daily activities. However, despite the guidance on conducting these interviews, an ME sufferer will only be able to attend such a session on a good day. It is therefore impossible to judge accurately the severity of the condition at the assessment interview. I would argue that a more flexible approach to ME is needed. The effects of the condition can wax and wane unpredictably, meaning that often, a person’s DLA is withdrawn because of a short-term respite of the symptoms. There needs to be more consultation with and input from GPs and other medical professionals who are in contact with the individual over a prolonged period. Obviously, I understand that this issue is not directly the Minister’s responsibility. However, I strongly urge him to make representations, and to make this case, to the Department for Work and Pensions.

I thank hon. Members and the Minister for listening. To end the plight of ME sufferers, appropriate and correctly targeted biomedical research into the causes of the disease must be funded. GPs must be properly apprised of the specifics of ME; sufferers’ disability must be recognised in the benefits system, with the support of GPs; ME and CFS must be properly classified; and fatigue must no longer be used as a catch-all symptom. The current situation, which has endured for decades, cannot be allowed to continue. As things stand, 250,000 men, women and children, their families and carers, face terrible injustice and neglect. I call on the Government to put that right.

Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 25th January 2011

(13 years, 10 months ago)

Commons Chamber
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Paul Burstow Portrait Paul Burstow
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The last comment was pretty cheap, and no Government Member has suggested that the future of the cancer networks is in doubt. Indeed, in the coming financial year, the funding is secure. As we move to the new arrangements, it will be for the NHS commissioning board to decide the appropriate arrangements for commissioning in the future. We are clear that the expertise of those groups could, should and will continue to be used to support commissioning in the future.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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4. What steps he is taking to improve co-ordination of social care and health care for the benefit of patients.

Paul Burstow Portrait The Minister of State, Department of Health (Paul Burstow)
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We have set out in the White Paper “Equity and Excellence: Liberating the NHS” and the Health and Social Care Bill how we will deliver the coalition programme for Government commitment to promote greater integrated working. This includes local authorities taking the lead role in the future in joining up local NHS services, social care and health improvement via council-led health and well-being boards.

Annette Brooke Portrait Annette Brooke
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Can my hon. Friend assure me that there will be a joined-up approach when addressing patients’ interests and complaints when they straddle social care? Perhaps a single point of contact for a complaint would be a good step forward from what we have now.

Paul Burstow Portrait Paul Burstow
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My hon. Friend is right to draw attention to the need to integrate not only the way in which we deliver and plan services, but the way in which we manage complaints. That is why the Government have included in the Bill our proposals for the establishment of local healthwatch and healthwatch England. Local healthwatch will have the ability to deal with complaints and also have the capacity to refer concerns about services to the Care Quality Commission so that it can take the necessary steps to investigate. In that way, we will deliver a more integrated system for dealing with such complaints.

Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 7th December 2010

(14 years ago)

Commons Chamber
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Simon Burns Portrait Mr Burns
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I can reassure my hon. Friend. She is absolutely right that the winter period and harsh weather impose extra costs, but I am pleased to tell her that partly through winter planning and partly through the experience of past years, hospitals are aware of that. They take into their planning and financial budgeting the possibility of weeks and perhaps longer—depending on the weather—when their costs will increase, and adjust to meet those demands. I am confident that bad weather will not impact on front-line services because of the work that hospitals do to account for it over the 52 weeks of the year.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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7. What assessment he has made of the Health Protection Agency’s recent report on the incidence of tuberculosis.

Lord Lansley Portrait The Secretary of State for Health (Mr Andrew Lansley)
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I welcome the Health Protection Agency’s recent report on tuberculosis in the UK. There were 8,286 cases of TB in England in 2009, an increase of 4.3% on 2008. The rise has occurred mainly in people infected in countries where TB is common, who go on to develop active TB disease later in life.

Annette Brooke Portrait Annette Brooke
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I understand that that is a 30-year high. Evidence from New York shows that a co-ordinated approach across the city has made a real impact in controlling TB. How will the Secretary of State ensure that such co-ordination takes place, especially in cities, when GP-led commissioning is introduced?

Lord Lansley Portrait Mr Lansley
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The treatment services for individual patients will be commissioned through GP consortiums, but the identification and preventive work on TB is a public health responsibility. To that extent, I believe that we will be better placed to deal with it in future. Many local authorities—for example, in Birmingham, Manchester or Leeds—will be well placed as cities to respond to any incidence or outbreaks of TB on a preventive basis, using their powers as public health authorities.

Oral Answers to Questions

Annette Brooke Excerpts
Tuesday 2nd November 2010

(14 years, 1 month ago)

Commons Chamber
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Lord Lansley Portrait Mr Lansley
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The hon. Gentleman will know that the White Paper is yet to be published, so I will not pre-empt it, but it will be important to ensuring that there is a clear strategy for improving sexual health services. He will share our view that we want to deal with the extent of undiagnosed HIV and the extent to which people coming into contact with health care services are not offered HIV tests.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I recently met a group of Bournemouth and Poole college health and social care students whose research indicated that the average age for repeated sexual activity in the UK is now 16. With that and other information, they have set up a campaign to reduce the age for cervical screening to 20. What action will the Minister take?

Anne Milton Portrait Anne Milton
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I thank the hon. Lady for her question. She is right to raise the issue of the reducing age of sexual activity, and certainly the public health White Paper that we will publish later this year will have a significant impact on that. Cervical screening must be addressed, and it is important to raise the uptake rate to a much higher level to ensure early diagnosis.

Mental Health (Infants)

Annette Brooke Excerpts
Tuesday 26th October 2010

(14 years, 1 month ago)

Westminster Hall
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Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.

Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.

This information is provided by Parallel Parliament and does not comprise part of the offical record

Andrea Leadsom Portrait Andrea Leadsom
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I thank my hon. Friend for his intervention, with which I completely agree. There is no doubt that all sorts of developmental issues are affected by the earliest relationship, including communication. Why does poor attachment arise? Often, it is the result of parents’ unhappy lives. A mother who was not attached as a baby to her own mother will often struggle to form a secure bond with her baby, as might a woman who suffers from post-natal depression.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I congratulate the hon. Lady on securing the debate. Given the examples that she has cited, which clearly are drawn from all sorts of backgrounds, be they deprived or affluent, as in the case she mentioned of post-natal depression, does she agree that keeping the universal service within Sure Start is vital?

Andrea Leadsom Portrait Andrea Leadsom
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I thank the hon. Lady for her intervention. I will come on to my thoughts on Sure Start later, but I believe that public funds need to be focused on the small but significant minority of families whose lives are chaotic and where the outcomes for the children without support can be truly disastrous, not only for them and their families, but for the whole of society.

A woman who suffers from post-natal depression might struggle to form a bond with her baby, as can parents with drug, domestic abuse or unemployment problems. Poor attachment is no respecter of class or wealth and crosses all boundaries. Sadly, the cycle of misery is often passed down through generations, as a woman who did not bond with her mother when a baby can then fail to bond with her own baby.

I stress again that this is not about making parents stay at home or carry their babies around 24/7. Attachment means building a bond with a baby so that they instinctively learn how to be part of a caring relationship. Where both parents work, or where there is a single parent or adoptive parents, attachment can be very secure. The point is that the less caring attention a baby receives from a familiar adult, the greater the risk of insecure attachment. A caring nursery worker could become an attachment figure for a baby, as could a nanny, a child minder and, of course, members of extended families. Where a baby’s home life is disturbed due to divorce, death, domestic abuse, drugs or even post-natal depression, it can be a positive experience for that baby’s quality of life to be in a sensitive and caring child-care environment where a loving key worker can become an attachment figure. Where a baby’s home life is happy and there is a strong bond with the rest of the family, a caring child-care environment is not harmful and can even add to the baby’s quality of attachment.

Where a baby’s home life is disturbed, however, putting it into an insensitive child-care environment can be a disaster. It is common sense that a baby can take only so much stress, change and disorder. If you pile up that stress and disorder, the baby will instinctively resort to the basic strategies of fight or flight, which all animals have, including humans. That translates, in baby terms, into either very passive behaviour, or aggressive crying.

A nursery might measure the contentedness of its baby room by how little crying there is, but ironically, a baby that has given up on having her needs met will sometimes withdraw, not making a sound and appearing very passive. Far from being a good sign, passivity can be an indicator of a future life that is inclined towards depression, a victim mentality or even self-harm. On the other hand, a baby who cries noisily and often could just be a fighter who has instinctively learnt that getting attention requires a huge amount of noise and aggression. Violent criminals have been shown to have a high tolerance to their own stress hormones, which means that they resort to high risk-taking behaviour in order to experience what are, to most of us, only normal levels of stress. Those two examples merely show that one cannot easily judge how contented and secure a baby is by the amount of crying they do. In fact, the quality of attachment experienced by a baby is hard to measure, even for an experienced professional.

Shockingly, research shows that 40% of children in Britain are not securely attached by the age of one. Of course, that does not mean that they will all go on to have behavioural or relationship problems, because other life events will also play a key part, but it does mean that they will be less robust in their emotional make-up to meet the challenges and disappointments of life. They may also struggle as parents later in life to form strong attachments to their own babies, thus perpetuating the cycle of misery through generations.

I draw some conclusions from that. Poor attachment may well lie behind the UNICEF report that shows that British children are the unhappiest of those in the 21 countries in the developed world. Poor attachment might also account for our high teenage pregnancy rate, as mums who are themselves children are looking for love, and for our high divorce rate, with many adults being unable to form long-lasting relationships. Some of the statistics issued by the Office for National Statistics over the past decade show that almost 80,000 children and young people suffer from severe depression and that 95% of imprisoned young offenders have a mental health disorder. All those facts point to the devastating consequences of poor early relationships.

Human misery is only one feature of insecure early attachment; there is also the vast financial impact on the public purse of dealing with its consequences. The charity, Railway Children, estimates that up to 100,000 children are at risk on the streets in the UK every year. Each looked-after child costs the taxpayer £347 a day, or £126,000 a year. Each adult prison inmate costs the taxpayer £112 a day, or £40,000 a year. Each person in acute psychiatric in-patient care costs the taxpayer £225 a day, or £82,000 a year. No assessment is available for how much of that expense is the direct consequence of poor attachment, but in the terrible case of baby Peter, I remember asking myself what mother could allow her boyfriend literally to torture her baby, unless she simply had no bond with him? What would have become of him had he lived to grow up with his appalling babyhood experiences?

Therefore, what can we do to promote better infant mental health? The astonishing thing is that if we tackle insecure attachment early enough, ideally before the baby is one, it can be turned around quickly, to the huge benefit of baby and carer, and to the public purse. I was chairman for nine years, and remain a trustee, of the Oxford Parent Infant Project, which is an Oxfordshire-wide charity providing specialist psychotherapeutic support for families struggling to bond with their babies. OXPIP has worked successfully with Oxfordshire social services, health visitors and GPs for 12 years. Highly trained parent-infant psychotherapists work with a carer, usually the mum, but sometimes the dad, grandparents or foster parents, to improve the quality of their relationship with the baby. It sounds incredibly simple, but it has dramatic consequences for the baby’s lifelong mental health

The average cost of OXPIP-style intervention is £75 a week for each family, and in many cases 10 visits are enough to make a significant improvement in the quality of attachment and to set the family on a positive path. In other cases, families receive support for up to a year or more, at a cost of around £4,000. In a small number of cases, OXPIP provides expert evidence to the family courts when a baby is deemed to be at risk. OXPIP receives self-referrals from desperate parents and also sees clients referred by health visitors, GPs and social services. There is no doubt that it saves lives, and a fortune. The cost of helping a family for a year in that way is around £4,000, whereas keeping a child in care for a year costs £126,000.

I will finish with a specific call to action for the Government. I know that so much good work is being done already through the Centre for Social Justice and the review that the hon. Member for Nottingham North (Mr Allen) is carrying out on behalf of the Department for Work and Pensions. I pay tribute in particular to my right hon. Friend the Secretary of State for Work and Pensions, the right hon. Member for Birkenhead (Mr Field) and the hon. Member for Nottingham North for their commitment to helping children have a better future. There is plenty more than can be done, costing little to the public purse but giving huge benefit to human happiness and the health of our society.

First, I would like the Government to reconsider the 15 hours of educational help for each disadvantaged two-year-old. Instead of money being spent on preparing the toddler for school, it should go to supporting the parent-baby relationship before the baby’s first birthday if the home life is chaotic or frightening. Helping parents to support their baby is the best route to helping the most disadvantaged children in our society.

Secondly, I applaud the Government’s decision to provide 4,200 new health visitors. They do such valuable work for families, but they receive little training in the critical importance of secure early attachment. I urge the Government to require every health visitor and social worker to be trained to understand and spot families at risk. OXPIP provides such training, and it is highly valued by the recipients.

Thirdly, there needs to be an opportunity for onward referral to specialists in parent-infant psychotherapy when a health visitor identifies a real need. I recognise that the budget to do this kind of work is not available right now, but I urge the Government to consider a pilot scheme, perhaps as a result of the review that the hon. Member for Nottingham North is doing, and proactively to seek the evidence that would prove the value of early years intervention.

I am hoping to establish a pilot parent-infant service in my constituency of South Northamptonshire, and I am confident that other pilots could be established and evaluated in children’s centres around the country at a low price to the public purse. In fact, the director of children’s services in Northamptonshire told me that, in a previous role, he was able to balance his children’s services budget by focusing on early prevention. He was able to save on the budget for looked-after children and bring the cost of the entire service down by prevention. The impact on the public purse as well as on the human happiness of children is key.

Fourthly, where a baby spends more than a few hours a day in a child care environment, there should be protocols in the nursery that ensure that the attachment needs of the baby are addressed. They could include a far greater focus on the key worker relationship, so that one adult carer does all the intimate activities with the baby such as nappy changing, feeding, and morning and evening handover to the parents. There are plenty of opportunities to maximise the sensitivity of the child care environment to support the attachment needs of the baby.

Some nurseries and many child minders and nannies make the baby’s emotional well-being a high priority. Some of them recognise the importance of what they do; for others, it is instinctive. One research establishment—again, in my county of Northamptonshire, the Penn Green nursery in Corby—is specifically researching the impact on the very young of life in a sensitive nursery. Such research could be used to develop protocols for all nurseries.

Fifthly, training in early attachment for child care workers is critical. The turnover of staff in nurseries is high, and often the staff are young and inexperienced. All those factors contribute to a greater risk of insensitive care in child care settings.

Sixthly, in the small percentage of cases where the family’s life is chaotic, frightening and violent, and there are child abuse concerns, adoption should be swift, ideally before the baby’s first birthday. I urge the Government to look again at the adoption legislation with a view to putting a greater focus on the attachment needs of the baby. Foster adopter arrangements, where foster parents may adopt the baby if things do not work out with the birth parents, offer much less risk to the baby in cases of doubt. The baby is able to form a bond with the foster parents, who may become the adoptive parents, and the birth parents until such time as a decision is taken in the baby’s best interests. Research shows that the approach has been successful for the baby because the adults bear the risks rather than the baby.

By coincidence, the first time I spoke in the Palace of Westminster about infant mental health was in 2002, on the day that the Victoria Climbié report was issued. Today, almost nine years later, I am speaking on the day that a baby Peter report is coming out. Please, do not let it take another nine years for some real action to prevent the next appalling tragedy. Prevention is not just kinder: in these times of austerity, it is also much cheaper than cure.

Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I wish to make a brief contribution to this debate. We are all the product of many complex factors, and therefore we always have to keep an eye on the whole situation. Having said that, I have had a long-term interest in attachment theory. This shows my age: I still have the original John Bowlby book, which was part of my set reading, on my bookshelf. It became a little unpopular because the women’s libbers of the 1970s were not too keen on the emphasis on mother staying at home, but it is interesting that attachment theory has come to the fore again. We see it in a much wider context, and we understand the point about primary and also secondary attachments. I would like to make a few points to the Minister.

Parts of what we are saying are so obvious when one starts playing with a baby, as the hon. Member for South Northamptonshire (Andrea Leadsom) said. The Worldwide Alternatives to Violence Trust showed me a presentation of an adult ignoring a baby—it almost seemed cruel—and one saw how the baby switched off entirely, and how totally different the situation was when someone engaged with the baby. However unscientific that might seem, all my instincts say that we really must take that on board.

From that follows the importance of early intervention. I applaud the coalition Government for setting up the review. There has been a great deal of work showing right across the board that if we invest huge sums of money in early intervention, we will save in the long run, but the decision was a brave one. It is important to have a formalised review and to plan how we go about early intervention.

I would like to focus on the whole-family approach because, as I said earlier, there are always so many complex factors that affect the life of a child. One might focus on parent or carer relationships with the child, but adult social services issues need to be addressed at the same time. A concern that I have expressed many times in speeches is that if we put the focus on children by splitting children’s services away from adult social services, in some authorities—this is not the case in all authorities by any means—the whole-family approach can be lost. It is vital that we have back-up services to deal with the parent-child situation. Indeed, there could be information from adult social services, such as information that there was an addiction of some kind among the adults. There is a lot of wraparound there.

The figure of 40% of children not being securely attached is striking and makes one think. I have heard of the excellent work carried out by OXPIP, and I congratulate the hon. Lady on that.

I wish to touch on situations where we have not picked up on problems—we have many of them to deal with at present—and on fostering and adoption. Throughout the many Committees on children’s legislation that I have served on, I have been concerned that not enough attention has been given to delivering mental health services. In the last Children and Young Persons Bill, which dealt with looked-after children, I failed to get an amendment accepted on Report. We achieved a requirement for a mental health assessment of children who were to be fostered—that was important—but I could not get an amendment accepted that would have ensured that the necessary health care would follow. I was told that it was an education Bill, and we were talking about health money.

How can we bring all the services together for the child and the family? When we are picking up the pieces later on in life—at the point of fostering, when psychotherapy might be vital—how will we get funding if we are approaching the matter from within children’s services? How will that all come together? In a recent case, problems began to escalate at school when the child of dedicated adoptive parents got to about 12. He felt totally bereft of support. It is interesting that any damage that happened early on may not manifest itself in an unmanageable way until quite a long way into the child’s life. We need to be aware of that. Although we have moved on tremendously—I am proud to have played a part in the previous Government’s legislation to tackle the situation of looked-after children—parents with adopted children need a lot of support. Legislation says that they should have immediate support, but they might need it quite a bit further down the line.

Looking at Sue Gerhardt’s work, the one hopeful thing is that damage can be undone. It is obviously easier to tackle it early on, but with a lot of work, we can make things better for the children and young people who deserve our support so greatly.

All hon. Members will be concerned about the amount of resources in children’s and adults’ mental health services. I should be grateful if the Minister could assure us that these vital services will be protected. We could stray into all sorts of areas in which children need support from their local child and adolescent mental health services; children with autism, for example, face long waiting lists. Parents of children with autism often say that they are talking to somebody in CAMHS who does not understand their needs fully. We need to give better support generally, across the board, and in particular, we need to do our utmost to improve CAMHS.

John Pugh Portrait Dr John Pugh (Southport) (LD)
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It is a privilege to talk in the debate under your chairmanship, Mr Bone. It is a tribute to your unswerving party loyalty over the years that you have got to your position.

I congratulate the hon. Member for South Northamptonshire (Andrea Leadsom) on starting an important and significant debate. I think we would all agree that the human infant, as she has analysed, has definite needs that go beyond the basic biological necessities of food, water and shelter. The human infant requires emotional support and, as the hon. Lady and my hon. Friend the Member for Mid Dorset and North Poole (Annette Brooke) have argued, an element of attachment—a mother or mother substitute—in the early stages to bond or imprint with. This is essential for wholesome psychological development.

The evidence for a child’s emotional needs is strong. I am aware of an experiment conducted with primates, in which a young rhesus monkey was separated from its mother but given two alternative “wire” mothers—wire constructions. One was surrounded with soft cloth and the other had milk attached to it. The monkey’s behaviour was interesting. It went to one mother for feeding, but after being fed it needed some comfort and went to the other mother and cuddled up close against it, requiring some tactile contact that was not strictly necessary in terms of its biological survival, but clearly deeply emotionally necessary. Some horrific but illuminating experiments have been done in this field. One recalls the behavioural psychologist, Watson, who endeavoured to bring up his child without any tactile direct contact but provided him with all the necessary immediate needs.

It is obvious that we have a raft of emotional needs over and above our ordinary biological needs. The lack of such contact—and the evidence about this lack—is always fairly apparent, showing itself in infants in rocking behaviour, attention-seeking, unresponsiveness and slow development. We also believe that we have discovered, in addition to these obvious symptoms of emotional deprivation and abuse, other effects that we would not have picked up without the benefit of modern science. For example, it has been argued that hormonal effects lead in turn to neurological effects, some of which are long term. Heightened aggression, for example, is suggested to be an outcome of poor attachment, and other social handicaps may ensue. The hon. Member for South Northamptonshire mentioned that psychopathy can be a consequence of severe lack of attachment.

The exact causal link between all these factors is not as clear as we would like to believe. In particular, ways of treating infants and neurological and behavioural outcomes are matters for debate. The evidence is complex and can be oversimplified; it has been contested in some areas and can be interpreted speculatively. We do not know enough about the effects of cortisol to be totally sure in this respect. We do not want to go down the Watson behavioural route to sort this matter out, conducting horrible, elaborate experiments on infants to find out what bottom-line evidence we ought to rely on.

We must recognise that the emotional deprivation and abuse endured by people in infancy is also overlaid in time by subsequent social and cultural differences. That slightly clouds the picture as well, and makes it rather more difficult to establish the clear causal links that the hon. Lady implied existed. If people believe in free will, there is an element of individual mediation at the end of the day. Despite all this, it is not difficult to spot when a child is turning out underdeveloped, unhappy and antisocial. Even if we disagree, according to our different values, about what constitutes a truly well-adjusted child, we certainly know when we have a severely maladjusted child on our hands. It is impossible to dismiss the role of first experiences in constructing those outcomes—that has been established for some time.

It is easier to identify failure than absolute success. After all, as my hon. Friend the Member for Mid Dorset and North Poole suggested, none of us does a perfect job of bringing up our children. All children—all of us—are brought up by amateurs. People do not get a set of children to practise on first until they get good at it. One recalls a quote from Philip Larkin, which I will not use here because it contains unparliamentary language, about the effects of parents on one’s general well-being. But it is still true that some people mismanage the process far more than others, even if none of us succeeds in getting it totally right. I recall Jack Dee’s remark, questioning the point of having children, because they only grow up to be teenagers and slag you off at parties. There is an element of truth in that.

There is a social policy issue concerning how we reduce incompetence, especially the worst sorts of incompetence that lead to the catastrophic effects that the hon. Member for South Northamptonshire mentioned. It is important that we find out what the state can do to encourage success, given that most parents appreciate some guidance, having never done the job before, and crucial that we find out what the state needs to do to avoid catastrophic failure—as in the case of baby P and other cases we could specify—or general failure, if that is what is happening.

The hon. Lady suggested that there is a general failure in society and quoted UNICEF statistics. She suggested that, collectively as a society—as a social group—we have something to learn. In a sense, that is what the debate on child care in the first two or three years in life has been about. There has been strenuous and long-standing debate about the conflict between the role of the mother as breadwinner and home-maker; about whether the social gains of early interaction in a nursery or child care environment are offset by emotional security; about whether encouragement to return to work is encouragement to short-change one’s child; and about whether the high percentage of nursery and child-minded children in our society correlate in an interesting way with levels of general child happiness. I will pass over that debate and leave it to hon. Members around me who are more expert than me, but I want to make two observations.

It is hard to generalise in this matter. I have two grandchildren. One took to everyone in the family very early and is very social, at home with other children, confident and assured, and I had a close relationship with the child from an early age. The other granddaughter has only just convinced herself that I am not an ogre. For the first few months of her life, she clung to her mother in a way that the first child did not. Not all children are the same, and not all homes are the same, so the consequences of keeping children at home with mum differ depending on whether the mother is middle-class and has lots of books and blocks and things, or is a heroin addict.

I do not want to embroil myself in a matter in which I have no expertise—whether the recommended techniques for dealing with babies in the early stages are correct. I do not want to get into the routine versus emotional spontaneity debate, about which there is plenty of literature that is scoured by many young mums as they take their first steps. However, the fame of experts in that field is usually in direct proportion to their tendency to challenge common sense. Books do not sell if they suggest something that is part of motherhood and apple pie, and has been well understood for years.

My fundamental point is that parenting is an art, albeit a rough art, that in some homes goes disastrously and persistently wrong. I had a chilling experience recently on a train. A young child of perhaps three or younger was being controlled by what seemed to be her grandmother. The child responded by producing expletives, which would have been a disgrace even in a football ground. The grandmother responded by saying things such as, “Please stop that because the man doesn’t like it.” The child showed the classic symptoms of one who has been brought up in the wrong environment with the wrong cues and has been given the wrong sort of discipline. It struck me as a disastrous way of carrying on.

When one witnesses such incidents, which are repeated in many places, and recognises the terrible consequences for the individual and their emotional stability, and the huge collateral damage for society, one starts seriously to think about what society can do to support parenting in general and to support such parents who, for whatever reason—it may not be their fault—are not making a good fist of it. Should good parenting be taught in children’s centres? I certainly believe so. Do we need more health visitors? I certainly believe that we do. Do we need to build the skills of often damaged people? I certainly believe that we do.

One hugely overlooked dimension is that we simply do not do enough in schools to inculcate good parenting, or do what we can to get across to young people who are coming up to being parents how parenting sometimes works and sometimes does not.

Annette Brooke Portrait Annette Brooke
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My hon. Friend is making some important points. Does he share my vision that it should be considered normal to have parenting classes, and not a reflection on someone’s inability to do something? If someone has a perpetual headache, they go to their doctor, and if they have a perpetual difficulty with a baby or toddler, it should be the norm for them to seek assistance. My ideal is to reach the cultural perspective that seeking help is the thing to do. We would then be able to move forward.

--- Later in debate ---
Anne Milton Portrait The Parliamentary Under-Secretary of State for Health (Anne Milton)
- Hansard - - - Excerpts

It is a pleasure to serve under your chairmanship, Mr Bone, which I have not done before. I start by echoing the comments by the hon. Member for Islington South and Finsbury (Emily Thornberry): it is a shame that more people do not listen to some of these debates. This debate has been of a high quality and is particularly poignant in that the serious case review on baby Peter is published today. Perhaps somewhere out there a member of the press will pick up on it, and realise that hon. Members across the House from all political parties are working together, to a large extent outside party political lines, to ensure that we get this issue right for families.

I congratulate my hon. Friend the Member for South Northamptonshire (Andrea Leadsom) on securing this important debate on a subject that is almost fundamental to everything else that we do. I am aware that she has maintained an active interest in infant mental health for a number of years as the former chairman and trustee of the Oxford Parent Infant Project. Its work was rightly recognised earlier this year when it was one of five winners of a national award from the Centre for Social Justice. I congratulate it on that; it is good to see its invaluable work recognised in that way.

My hon. Friend described with some clarity the significant impact of early parenting, the huge challenges that exist for some families, and the problems that ensue from poor parenting that falls short of the therapeutic, loving and securing attachment that children so desperately need. She mentioned the UNICEF report that cited us as the lowest of 25 industrialised countries. It is shocking that we are at the bottom of that table for the well-being and mental health of our children. She highlighted the fact that there is not one best route to get this right. The hon. Member for Southport (Dr Pugh) also talked about it. A huge variety of support is needed if we are not to lose people in the gaps. It is vital that we approach the matter from a multifaceted direction.

Early years intervention is being actively examined by the Minister of State, Department for Education, my hon. Friend the Member for Brent Central (Sarah Teather). We are working closely together. I have been hugely impressed by the work that we have achieved to date and the work that is ongoing. There is no doubt that we will not achieve what we want if we come at the issue from different silos of Government Departments. My hon. Friend the Member for South Northamptonshire is right to cite the growing evidence for what interventions work and to refer to fostering, looked-after children, adoption and a number of other issues on which I can assure her that I am working and will continue to work with other Departments.

There is increasing evidence about the importance of early life and warm parenting. An infant’s early experiences have a long-lasting impact on their future health, relationships and happiness. There are also important intergenerational effects. Warm, positive parenting and a strong bond between a mother and baby, as well as the father, lay the foundation for health and happiness throughout life.

I am a mother of four children, aged from 26 to 14. I feel like getting out my 26-year-old from a cupboard and saying, “This is one I prepared earlier,” to demonstrate to those who are struggling through the teenage years with their children that it does all turn out right in the end. However, parenting, from whatever background we come, is a challenge. I found it challenging. Even though we might not be in quite the situation that other parents are—we might be better resourced; we might have more money and be in better housing—all of us, in our lives as parents, have had a taste of the tensions and stresses that people feel, and can only imagine what things might be like if we did not have adequate housing and were living with three children in a one-bedroom flat.

The Government are determined to ensure that all families have the right support at the start of life. Health visitors are central to that by providing advice and support through pregnancy, after birth and through the pre-school years, supporting healthy child development and promoting parent-child attachment and positive parenting models. It was a pleasure for me to talk at the health visitors conference last week and re-emphasise our support for health visitors. We want more people in the profession and more people back in the profession to ensure that we have that universal visiting service. That is why, as my hon. Friend will be aware and as hon. Members mentioned, we are investing in 4,200 new health visitors by the end of this Parliament. That is an ambitious target, but we will do everything, pull out all the stops, to ensure that we achieve it. In last week’s spending review, my right hon. Friend the Chancellor of the Exchequer confirmed that the money is there to recruit and train those health visitors.

We also have the healthy child programme to provide the opportunity for health professionals to identify where additional parenting support is needed. Leading and delivering the healthy child programme, health visitors are well placed to identify those families, give them extra support and help them to access more specialised services. We have seen quite a significant decline in the number of health visitors, from just over 13,000 in 2004 to just over 10,000 in 2010, at a time when the birth rate is increasing, and we need to turn that round. The message must go out loud and clear to health visitors: “We want you, we need you and parents and the future generation need you.”

The chief nursing officer is working with the Community Practitioners and Health Visitors Association to define what makes a modern health visitor. The hon. Members for Mid Dorset and North Poole (Annette Brooke) and for Islington South and Finsbury mentioned training and whether there is adequate training on things such as mental health issues. It is extremely important that we get that right. The service model that has been built makes clear the value of health visitors and the contribution that they make to better family and community health. Next year we shall move on to a national recruitment drive for health visitors, and we are working on better training options for returners and new recruits, so that a bit more flexibility can be built in to attract people into the profession.

I want to say a few words about family-nurse partnerships for the more vulnerable. The family-nurse partnership is a preventive, intensive programme for first-time teenage parents and their babies, whose outcomes are not good and fall well below those for other parents. Specially trained nurses work with girls from early in pregnancy until their children are two, giving them support to help them to adopt healthier lifestyles, provide good care for their babies and plan their future life goals. Following the spending review, we shall be extending the family-nurse partnership programme, so alongside the support that health visitors will offer for all families, there will be increased access to the highly targeted, highly specialised support that the most vulnerable families need. We shall set out our plans for that shortly.

The outcomes from family-nurse partnerships are very significant. Over the past 30 years, the evidence in the US has shown that family-nurse partnership children have better health development and better educational achievement and are less likely to be abused, neglected or involved in crime. Cost savings are also substantial. Early evidence in the UK is very promising. Family-nurse partnerships successfully engage disadvantaged young parents, including fathers; 87% of those offered a family-nurse partnership take up that offer, so they are significant.

There are many examples of mental health services for infants being improved. A number of regions have set up perinatal and infant mental health networks to encourage partnership working and the sharing of good practice. Volunteers from the charity Home-Start do valuable work in increasing the confidence and independence of families by visiting families in their own homes to offer support, friendship and practical assistance and by reassuring parents that their child care problems are not unusual or unique. My goodness, I could have done with someone from Home-Start myself. We believe that we are the only person going through what can feel like a rather traumatic experience. Those volunteers also encourage parents’ strengths and emotional well-being for the ultimate benefit of their children and try to get the fun back into family life.

Annette Brooke Portrait Annette Brooke
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I declare an interest in the point that I am about to make. Along with many other voluntary groups, organisations such as Home-Start are very concerned about their funding. I am a patron of my local Home-Start, and already there has been a cut. I ask the Minister to do everything that she can to support the vital work by the voluntary sector, because, as we all know, it can get into places that the statutory services cannot.

Anne Milton Portrait Anne Milton
- Hansard - - - Excerpts

I thank the hon. Lady for her intervention. She took the words out of my mouth: I, too, must declare an interest as a patron of my local Home-Start. The important message to councils is that when funding is tight, they should think about what works, and as is always the case with the voluntary sector, £1 of taxpayers’ money buys significantly more than £1-worth of care and services. Councils need to think imaginatively about how they spend their money and how they get good value for money. That often involves looking to organisations such as Home-Start. It can be extraordinarily short-sighted to cut back on such schemes at a time when they offer much better value for money than can be had almost anywhere else.

There is no doubt that the need for early intervention has been recognised by us all. The hon. Lady rightly pointed out in her speech the huge variety of reasons why we end up in life where we do. I, too, must admit to having been a mother of the Penelope Leach generation, holding baby in one hand and my Penelope Leach book in the other and trying to look up what exactly parents do at 4 o’clock in the morning when their child will not go to sleep. Having been a chairman of the Hackney and Islington branch of the National Childbirth Trust, I must also admit to having been influenced by the likes of Sheila Kitzinger and Susie Orbach, who added to my knowledge base. Some of Susie Orbach’s words might still haunt me now, as my daughter approaches the age of 17 and I wonder what sort of effect I have had on her.

The hon. Lady emphasised the point about the nonsense of seeing, say, the fostering of looked-after children through the eyes of one Department. Clearly, that is nonsense—we have to look at it across the board.

I can give the assurance that mental health remains a priority. The Department is working closely with stakeholders to put together a mental health strategy—a child and adolescent mental health services stakeholder event was held earlier this year—and the mental health strategy will take a life course approach. I am determined, and I know that the Minister of State, Department of Health, my hon. Friend the Member for Sutton and Cheam (Paul Burstow), who has responsibility in the Department, is determined that we have a mental health outcomes framework that sits alongside physical health outcomes. For too long we have concentrated on physical health, to the detriment of mental health.

The hon. Member for Southport went into some detail about the research, especially the problems with causality and, probably, the need for Governments to take account of continuing research that emerges, to see if we can better define why we are as we are. He is right that we do not do enough to talk about and inculcate parenting in school life and in the upbringing of our children. He is also right to highlight that one of the biggest determinants of educational outcomes is within the family.

In 2008, the hon. Member for Nottingham North (Mr Allen) and my right hon. Friend the Member for Chingford and Woodford Green (Mr Duncan Smith), now the Secretary of State for Work and Pensions—to whom my hon. Friend the Member for South Northamptonshire paid tribute—published “Early Intervention: Good Parents, Great Kids, Better Citizens”, which devoted a chapter to the importance of nought to three-year-olds and parental early intervention.

In July this year, the hon. Gentleman was asked by the Government to conduct an independent review of early intervention delivery. The review will focus on three key things: the identification of early intervention best practice, which goes back to the point about research; how we spread best practice, so we do not see the rather patchy outlook that we have at the moment; and new ways to fund early intervention in the future. What is impressive, and what we have seen again this morning, is the cross-party approach that has been adopted.

The Government have a role to play, but we all know that the first place that people turn to for help and advice is often their family and friends. We should not forget that. So, it is the individuals and organisations rooted in the community that can often have the greatest influence and impact, including local community groups, the voluntary sector and Sure Start centres.

Health visitors, as public health professionals working with families, are uniquely placed to bring people together across local communities to drive change on the problems that families face. As the health-visiting work force grows, there will be more opportunity for them to develop that wider role. We will provide support through a new training programme for health visitors, to be launched next year, to refresh and extend their community health skills.

The hon. Member for Islington South and Finsbury raised a number of issues. I hope that I have got them all down. I would like to touch on them before I conclude. We need to remember in so much of what we do that the issue is not necessarily about the quantity of money but how we spend it. We have an imperative to spend it more wisely than ever before, but the quality of what we get out of it is what matters, not necessarily the sum that goes in.

The hon. Lady rightly mentioned the importance of day care and the need for it to be of a high quality. It is not about whether parents stay at home or work, nor is it about making value judgments on how people live their lives. It is about providing a framework in which parents and children can thrive. Sure Start health visitors and the need for good-quality mental health awareness and intervention are crucial, and increasingly so. If one in four of us suffers from a mental health problem, we are looking at similar statistics among parents. The hon. Lady is right that universality is important—on stigma and access.

I must also point out that massive forms have been a feature of past Governments. They are always a feature of anyone trying to be a gatekeeper to scarce resources and are rarely effective. The Government are determined to banish them. The hon. Lady also mentioned early intervention grants. I can assure her that I met to discuss the matter with the Minister of State, Department for Education, my hon. Friend the Member for Brent Central, only yesterday. We are looking at it.

I have responsibility for public health, so I sit on a number of committees—a very large number—which is useful. I am in a group on families which the Prime Minister set up and a number of inter-ministerial groups, including the Cabinet Social Justice Committee. The same theme runs through all those areas—we have got to get this right, we have got to get the money focused in the right areas and we have got to get the money focused on areas giving us good outcomes.

In conclusion, I thank my hon. Friend the Member for South Northamptonshire for securing the debate. She made a number of important points about the mental health of infants. I hope that the NHS White Paper gives us a chance to refocus on achieving better results for them. The public health White Paper, which will be published later this year, will build on that. We also need an outcomes framework that will be a central driver of improvement, ensuring that the NHS treats the person as a whole—holistically—and not the disease.

Meeting parents’ needs effectively depends on good local partnerships. Groups such as the Oxford Parent Infant Project are a good example of that. I am keen on a strong dialogue with the voluntary sector. Indeed, the White Paper is all about opening the door to such organisations. By working together in that way, we can do much better for the mental health of our infants, families and communities. We have a duty to secure the future generation of parents.

Child and Adolescent Mental Health Services

Annette Brooke Excerpts
Wednesday 7th July 2010

(14 years, 5 months ago)

Westminster Hall
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Annette Brooke Portrait Annette Brooke (Mid Dorset and North Poole) (LD)
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I congratulate the hon. Member for Stalybridge and Hyde (Jonathan Reynolds) on securing this debate, and providing comprehensive coverage of the vital issues. I also congratulate the National Autistic Society on its “You Need to Know” campaign, because we must make services work better for people with autism. An important aspect of that is to make CAMHS services throughout the country work effectively for children with autism.

I have been contacted by constituents asking me to support the campaign, and I want to begin my brief contribution by describing some of their experiences, because they illustrate all the general points that the National Autistic Society makes. One constituent wrote:

“I first realised there was something wrong with Jon’s development at the age of 2 but was told by my Health Visitor that I was comparing him to his older exceptionally bright brother and that he was fine. I continued over the next 2 years to say that ‘something wasn’t right’ until she eventually agreed to get his hearing checked—he wasn’t interacting with me, seemed in his own little world and wouldn’t even respond to his name. His hearing was fine so she referred him to a speech therapist as he didn’t talk much but after a few weeks of attending, he was discharged saying he was ok. It was only once he’d started school that he was referred”—

to the local hospital—

“But the consultant…decided that Jon must have a form of epilepsy as he would ‘switch off’ in the playground and was oblivious to his surroundings. He did months of tests but they revealed nothing”.

Eventually, Asperger’s syndrome was diagnosed, and my constituent went through years of seeking help. She continued:

“I have no idea what or how to access services which may or may not be available to Jon especially CAMHS. He is 17, 14 stone and 6ft 3, and can have tantrums like a 2 year old—just as sudden and just as violent. I asked my GP if there was some kind of Anger Management course available to him or if he could see a psychologist that could help him. He said I would have to see Jon’s consultant”.

And so it went on. My constituent believes that training is needed across the board for GPs, nurses and psychologists, as well as with direct CAMHS services.

Another constituent who works with children and young people with autism said:

“I feel that many health professionals are unaware of the battles faced by those living with autism. I have often found those from outside agencies quite hostile towards our clients…not realising that they need to be treated differently from neurotypical people. Most of these students have diagnosis in other things such as Obsessive Compulsive Disorder, ADHD and Pathological Demand Avoidance and attachment disorders.”

They say that it is

“hard to find people with the right expertise to deal with these disorders as they usually have not dealt with people with autism before, leaving these other diagnoses untreated. Add this to the fact that the provision for all of these services usually drop away once a person with autism reaches 19 and are transferred into adult services and it seems we are failing those with a diagnosis”

of autism.

Another constituent said:

“My experience with CAMHS for Sam has been quite negative. We saw an ASD Nurse Specialist from CAMHS for about 6 months. He knew very little about autism, in fact he used to borrow books on autism from parents”.

Another constituent wrote:

“We are consistently told by professionals that they are severely overstretched which from personal experience and talking to other parents leads to very few families receiving adequate support…Maybe if money was invested on these children as they deserve…then they would be more likely to develop into functioning adults who are able to contribute to society in a positive way rather than developing into adults with mental health issues who are totally reliant on the state.”

Those four experiences sum up many of the issues that we are debating.

Autism is not a mental health problem, which makes it difficult for people to access appropriate services. As we have heard from the hon. Gentleman, a large proportion of children with autism have mental health problems, which may develop because of the symptoms that they express and subsequent interaction with other people. They may become more socially isolated at school because of their characteristics. The problem snowballs if the symptoms of autism are not identified early, and the child’s journey does not include trained people who understand its complexities and varieties.

Mark Williams Portrait Mr Mark Williams (Ceredigion) (LD)
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The debate is rightly concentrating on the inadequacies of CAMHS, but my hon. Friend knows of my interest in teacher training and teachers’ awareness of identifying the characteristics of autism. There is understandable frustration among teachers at the lack of training facilities and opportunities available to them.

Annette Brooke Portrait Annette Brooke
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My hon. Friend and I, along with many others, have worked hard on education, and we are slowly making progress. Today’s debate takes us further afield because we have to get the whole package right for children with autism.

Being mindful of the time, Mr Benton, I would like to touch on two issues. First, I would like to emphasise the need for training for CAMHS professionals, which is vital for all the communication issues mentioned by the hon. Member for Stalybridge and Hyde. The issue is not straightforward, which means that there must be training; there must be flexibility, patience, skill and understanding. The local CAMHS commissioning process is designed to identify and address skills gaps in the local work force. What steps will the Government take to ensure that such gaps are identified and addressed with regard to autism?

I have been involved with the Every Disabled Child Matters campaign, and one area of concern that we have identified is the falling apart of services for disabled children during the transition period. There is a lack of forward planning for the transition, starting about age 14. That is particularly true for children and young people with autism, because they are likely to require ongoing mental health support and to need a smooth changeover between children’s services and those for adults. One issue that I have with children’s trusts is that in some local authorities, there is a great dichotomy between children’s and adult’s services. The best local authorities manage the transition well, but there is the potential for people to fall through the gap. How do the Government intend to ensure that CAMHS and relevant adult services work together to plan appropriate ongoing support for children with a mental health problem and an additional disability, such as autism, and for all young people who require ongoing mental health support?