Baby Loss Awareness Week

Andrea Leadsom Excerpts

Thursday 23rd September 2021 Commons Chamber

[Cherilyn Mackrory]

Thank you, Madam Deputy Speaker, for your words and my hon. Friend the Member for Cities of London and Westminster (Nickie Aiken) for intervening.

Today, I wish to extend my sincere condolences to anyone who has experienced the loss of a baby. To anyone to whom this has happened, despite what they may see, I say that the sun will shine again. It does not feel like it now, but one day it just does. For me, the dark clouds of shock, anger, guilt and dreadful, dreadful sadness do eventually dissipate—

[Dame Andrea Leadsom (South Northamptonshire) (Con)]

I pay huge tribute to my hon. Friend for her courage in coming to this place to share her views. I know that she is speaking for so many people who have such a tough time, whether through miscarriage or stillbirth. This was her terrible experience of a child who was not going to make it, but all of us here have her back. We all agree with her, and there are so many people here who would like nothing more than to see much more done in that critical period of maternity. All our thanks go to her for her bravery today.

[Cherilyn Mackrory]

I thank my right hon. Friend for her intervention and kind words.

I entered Parliament and suddenly had the opportunity to speak with many people who had experienced the loss of a baby. Unlike me, many have no idea why their baby had died. As well as prevention of baby loss, which I will come to later, my focus in this place is on the care for bereaved families. The all-party group was instrumental in the creation of the Government-backed national bereavement care pathway, which seeks to improve the quality and consistency of bereavement care received by parents in NHS trusts in England after pregnancy or baby loss.

There are different experiences from place to place. While the Department of Health and Social Care strongly urges the trusts to take part in the pathway, mandating it and its nine standards would lead to greater time, funding and resources being made available to healthcare professionals to deliver this. Poor bereavement care, from the moment of diagnosis and the breaking of bad news, exacerbates the profound pain felt by parents. Although approaches to bereavement care in the UK have greatly improved in recent years, inconsistency still remains, often resulting in a postcode lottery for parents.

As of last month, all NHS trusts in England have either expressed interest in, or formally committed to, implementing the pathway within their hospitals and their services. Trusts require additional funding, however, to fully implement the standards, especially to ensure that every hospital has an appropriate bereavement suite, specialist staff and training.

As I mentioned earlier, the care that we received in Cornwall on the weekend that we lost Lily was second to none. However, while I was able to access bereavement counselling through my work, my husband has never been offered anything. It is my opinion that supporting partners and the wider family are not being looked after in the way that we would hope. Because the mother births the child, dads and supporting partners often feel the need to be “strong”—to be there for them. People often ask how mum is, but may not ask how dad is. That is not healthy. What about the wider family? Grandparents are grieving for their lost grandchild and wondering how best to support. Siblings are wondering what has happened.

My daughter was only four when we lost Lily. She knew I was pregnant and we tried to explain what had happened in an age-appropriate way. She seemed to accept this as children do and did not mention it again—until a couple of weeks ago. Completely out of the blue and without warning, she said, “Mummy, when I was four, you were going to have a baby but then didn’t.” Crikey! Wham! What do you do? On the hoof, I needed to explain calmly to my now almost seven-year-old what had happened. I do not know whether I explained it in the right way, but she knows now that, if there are questions, we are always here. I do not want it to be a spectre on her childhood to wonder what happened to her mystery sister. It reminded me that a child’s mind can often make up what they do not know, and we need to make sure that siblings and the wider bereaved family are cared for long after the event.

--- Later in debate ---

[The Parliamentary Under-Secretary of State for Health and Social Care (Maria Caulfield)]

I thank all Members of the House who have taken part in the debate this afternoon. The shadow Minister, the hon. Member for Tooting (Dr Allin-Khan), is right to say that this is an issue that unites us all and puts politics aside. The loss of a baby is never easy to discuss, whether it is the loss of your own baby or a baby known to you, or the experience of a constituent, it is a hugely emotional and sensitive area, and time is often not the great healer it is made out to be. This debate has raised some difficult but important issues.

I also thank the co-chairs of the all-party parliamentary group on baby loss: my hon. Friend the Member for Truro and Falmouth (Cherilyn Mackrory), who spoke extremely bravely about her experience of losing baby Lily; and my right hon. Friend the Member for South West Surrey (Jeremy Hunt), who also helped to secure this debate. The response and strength of feeling shows how many lives have been affected and touched by this issue. There have been so many moving contributions, and I cannot name them all, but they included those from the hon. Member for Pontypridd (Alex Davies-Jones), my hon. Friend the Member for Bracknell (James Sunderland) and the hon. Member for North Ayrshire and Arran (Patricia Gibson), who talked about baby Kenneth.

This is the sixth year that a debate has been held to mark Baby Loss Awareness Week, and I am honoured to take part as the new Minister for primary care and patient safety and to work with all hon. and right hon. Members across the House to make a difference in an area as vital and important as maternal and neonatal safety. It is perhaps fitting that the debate is happening so soon after I have taken on this role, as it has sharply focused my mind on the huge amount of work there is to do in improving the outcomes for families and babies.

The Government’s maternity ambition is to halve the 2010 rates of stillbirth, neonatal and maternal deaths and brain injuries in babies occurring during or soon after birth by 2025. The ambition also includes reducing the rate of pre-term births from 8% to 6%, and we are making progress on that. Since 2010, there has been a reduction of 25% in stillbirth rates and a 29% reduction in neonatal mortality rates for babies born after 24 weeks gestation. There is, however, progress to be made on reducing maternal mortality rates, brain injury rates and pre-term birth rates, because progress has been slower than any of us would have hoped. There are pilot schemes in place, however, including those introduced under the brain injury reduction programme, which saw £9.4 million-worth of investment during the spending review last year going towards reducing the incidence of birth-related brain injuries. The pilots will produce cutting-edge training and expert guidance, and I hope to report back to the House on their impact.

My hon. Friend the Member for Truro and Falmouth raised some incredibly important points, and I want to touch on a few of them. Financial investment can of course make a difference in improving maternity services. NHS England announced earlier this year an additional £95 million of recurrent funding for maternity services to support the recruitment of 1,200 midwives and 100 consultant obstetricians and the implementation of the actions arising from the Ockenden report. NHS England and NHS Improvement are also providing an additional £52 million to fast-track a long-term plan commitment for all women to be able to access their maternity notes and information via a smartphone or other device by 2024.

Money is not the only solution, however. One key way to improve outcomes is to look at what has gone wrong in the past, and the perinatal mortality review tool is important in that regard. The Health Departments in England, Wales and Scotland collectively fund the perinatal mortality review tool so that the deaths of all babies between 22 weeks gestation and four weeks old are reviewed to provide answers to bereaved parents about how their baby died and so that the NHS can learn lessons and improve care. All bereaved parents now have the option to be involved in a high-quality review of the death of their baby and, according to the last perinatal mortality review tool annual report last year, 84% of review cases in England, 86% of cases in Wales and 87% of cases in Scotland included parents in their final reports. It is by learning from parents and listening to their concerns that we will ultimately improve services for families and save lives.

The shadow Minister and my hon. Friend the Member for Truro and Falmouth raised the issue of tackling inequalities in perinatal outcomes for women from black, Asian and other minority ethnic groups. There are huge disparities in outcome across different communities. Earlier this month, NHS England and NHS Improvement published an equity and equality strategy, supported by a £6.8 million investment, to address the causes of inequalities in health outcomes, experience and access. It provides guidance for local maternity systems and focuses on black, Asian and minority ethnic groups, who currently experience poor maternal health outcomes. This is a priority area for me, and I take the point raised by my hon. Friend the Member for Truro and Falmouth about the importance of continuity of care.

In helping to support bereaved families following the tragic loss of a baby, I am delighted to hear that we have now reached the milestone of every NHS trust in England having expressed an interest with Sands in joining the national bereavement care pathway programme, and 65% of trusts are now members. We will continue to take a cross-Government approach to assessing what more needs to be done to support bereaved families.

I will discuss with my ministerial colleagues the point raised by the hon. Member for Lanark and Hamilton East (Angela Crawley), in particular, on leave for those who have experienced a miscarriage before 24 weeks.

Important points have been made about mandating a pathway and funding to ensure that every hospital has an appropriate bereavement suite and specialist staff and training. I will feed back to the House on our progress on that, as I recognise that we need to move swiftly.

My hon. Friend the Member for Truro and Falmouth, like many other hon. Members, commented on mental health support for bereaved fathers, parents, families and siblings. We heard from my right hon. Friend the Member for South West Surrey about the impact that the loss of baby Sarah had on his whole family. Losing a baby can have a massive impact on the whole family, and this Government are committed to expanding and transforming mental health services in England so that people, including those affected by the loss of a baby, get the help and support they need. My hon. Friend the Member for Guildford (Angela Richardson) could not have been more eloquent about the experience of not getting it right.

We have a long-term commitment that a further 24,000 women will be able to access specialist perinatal mental healthcare by 2023, building on the additional 30,000 women who can access such services this year.

[Dame Andrea Leadsom]

Does my hon. Friend agree that, along with all the things she is talking about, we need a joined-up set of start of life services, such as the Government are already working so hard to implement in their “Best start for life” work? If we could provide continuity of care and wraparound support for families, so many of the health disparities and terrible outcomes would be avoided.