Alison Thewliss
Main Page: Alison Thewliss (Scottish National Party - Glasgow Central)Department Debates - View all Alison Thewliss's debates with the Leader of the House
(3 years, 7 months ago)
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Mr Rees-Mogg
I thank my hon. Friend for raising this issue with the House. It is of great concern, and I offer my sympathies to Alfie Aldridge and his family. As constituency MPs, we all know that these are the most heart-rending cases, and the families go through so much in looking after a child who is unwell.
The Government recognise that ALD is a devastating disease and acknowledge that the physical, mental and financial effects harm not only the individual but their families. The UK National Screening Committee advises Ministers and the NHS in all parts of the United Kingdom on aspects of population screening and supports implementation. The UKNSC continually reviews the evidence for newborn screening tests and is currently reviewing the evidence on screening for ALD, following a public consultation, which closed on 30 January.
Comparison of population screening programmes such as the newborn blood spot with other health systems can be misleading. In the UK, newborn screening is quality-assured and includes all parts of the pathway for babies, through tests, retests, referral, diagnosis and treatment. In other countries, such as the USA, that is not necessarily the case. I would therefore recommend, in the first instance, that my hon. Friend apply for an Adjournment debate, but I will of course pass on the issue she has raised to my right hon Friend the Secretary of State for Health.
Alison Thewliss (Glasgow Central) (SNP) [V]
Around this time last week, the residents of Kenmure Street in Pollokshields safely and peacefully assembled to prevent a Home Office immigration removal van from leaving. The cry, “These are our neighbours—let them go!” rang out in the streets for many hours. I am still awaiting a response from Home Office Ministers as to why they sought to remove two of my constituents in a pandemic and on Eid al-Fitr. Can we have a debate on the practice of so-called dawn raids and why they have no place in civilised society?