Endometriosis Workplace Support

Debate between Alec Shelbrooke and Stephanie Peacock

Tuesday 29th October 2019 Westminster Hall

[Alec Shelbrooke]

I am most grateful to the hon. Lady, who speaks with a great deal of personal experience. We have been friends for a long time—since we came to this place. We are two West Yorkshire MPs, despite being on different sides of the aisle. I am grateful to her for making those points. As I said, it is important that the Department for Education and the Department of Health and Social Care take this forward. Other Members may wish to try to secure debates that are responded to by those Departments. I know that my hon. Friend the Minister will certainly feed those issues in.

I apologise for citing a lot of stories, Mr Pritchard, but it is important to set out the context. Another lady said:

“I had stage 4 (severe) endometriosis. I had a 7 year wait for diagnosis. From my referral to the hospital, I had a year and a half wait for surgery. My surgery was lifesaving as my bowel was 50% blocked with a mass of adhesions that had grown through the bowel. I was in constant pain, slept for 3 or 4 hours a day and was unable to care for my son properly, I considered putting him into care. If it wasn’t for him, I would have given up on everything. Despite being told in 2010 I ‘probably had endometriosis’ I was still given pain killers and mefenamic acid for years to manage the pain and symptoms. Throughout this time the endo was worsening, it is progressive. Had I been diagnosed earlier I may not have needed the bowel resection I needed and will have bowel issues for life. I was on the pill for 15 years, which is still considered a ‘treatment’. It is not. The same year I came off it (2010) I was at the GP with SEVERE bowel pain during my period (It was fused to my womb). The pill masked the symptoms, but it was quietly progressing. Please ban the use or presentation of the pill as ‘treatment’.”

[Stephanie Peacock (Barnsley East) (Lab)]

I congratulate the right hon. Gentleman on securing this incredibly important debate. One in five women will suffer from this disease, and it has been shown that, as that story shows, it can take up to seven years to convince a doctor. That is completely unacceptable. We have an issue in this country with what has been called the gender pain gap. We need to put more money into research and funding to look at proper cures and support for women when they need it most.

[Alec Shelbrooke]

I entirely agree with those sentiments. As I said, I hope this debate will go beyond the Department for Work and Pensions. I thank the hon. Lady for that contribution; it is spot on.

Endometriosis affects 1.5 million women in the UK. It takes an average of eight years to diagnose and there is not really a cure.

I will share a few examples from women who have spoken out through the digital platform. One said:

“I have suffered with endometriosis since the age of 15 and I was diagnosed aged 22. The worst thing about endometriosis is the lack of awareness. Even some doctors haven’t even heard of it which is very frustrating! I’ve had 4 surgeries to try to alleviate the symptoms. Unfortunately, this hasn’t worked. I want to try to basically create more awareness of endometriosis, especially online, as much as I can.”

Another woman said:

“I was diagnosed with endometriosis in May 2016. I would say 2 years was spent actively pursuing a diagnosis. But the previous 9 years I often went to the doctors, complained of pain and heavy flow and I was told ‘it’s just a bad period, it’s normal’. The hardest part of endometriosis for me would be the mental health side of things, coming to terms with the fact my body has limits and my life probably isn’t going to take the direction I thought it would.”

Someone else said:

“I was 17 when I was diagnosed with endometriosis. I’ve had 6 surgeries since. The thing I hate most about endometriosis is not being able to plan ahead because you don’t know how your pain is going to be that day. You could be absolutely fine, or you could be crippled.”

A young woman said:

“I was diagnosed with endometriosis on the 14 February last year, I was only 15. It took me 3 years to get diagnosed. For those 3 years, I was told I had unexplainable abdominal pain.”

Another story comes from a woman who said:

“I was diagnosed when I was 25 when I had a miscarriage. I had been struggling since I was a teenager with all the common signs of endometriosis. It just wasn’t picked up until I had my first surgery. What I hate most about endometriosis is that it takes time away from my children. Especially when I have to just go and rest in bed. I would love to be able to make it more aware for children, especially young girls and in schools, to be able to support them through this and see the early signs and educate GPs on the signs and symptoms.”