Endometriosis Workplace Support

Debate between Alec Shelbrooke and Geraint Davies

Wednesday 9th February 2022 Westminster Hall

[Geraint Davies (in the Chair)]

Before we begin, I remind hon. Members to observe social distancing and wear masks.

[Alec Shelbrooke (Elmet and Rothwell) (Con)]

I beg to move,

That this House has considered the matter of supporting people with endometriosis in the workplace.

What a pleasure it is to have you in the Chair this afternoon, Mr Davies.

It would take 20 days, at 24 hours a day, to name every woman in this country who suffers from endometriosis. That is the scale of the problem that we are dealing with. It is bad enough that it takes eight years on average to get a diagnosis, and that there is a lack of settled opinion on the surgery required. It is also bad enough that the blunt truth is that, even in today’s age, the main coverage given to this debilitating disease seems to be when a man stands up and talks about it. I have fantastic support from people such as the hon. Member for Livingston (Hannah Bardell) and other hon. Members, who have supported at every step of the way the debates that I have brought to the House; there is absolute cross-party support for tackling women’s health issues.

Unfortunately, I am often asked, “Why are you doing this, as a man?” I remind people that as Members, we represent everybody in our constituencies, and for most of us, probably over 50% of our constituents are women. It seems bizarre to question why a Member of Parliament would raise issues about the opposite sex; to me, a constituent is a constituent. Endometriosis is such a wide-ranging affliction that affects so many women, and it is so unrecognised.

Today I seek to talk about women’s suffering in the workplace, which mainly comes about through a complete lack of knowledge about this disease. I will start by describing endometriosis. I am grateful to Heather Guidone, board certified patient advocate and surgical programme director at the Centre for Endometriosis Care, for sending me the text entitled “A riddle wrapped in a mystery inside an enigma”, which states:

“Endometriosis is a systemic, inflammatory disease characterized by the presence of endometrial-like tissue found outside the uterus. Endometriosis has significantly negative impact on the physical, emotional, reproductive, and sexual health, financial security, relationships, careers and schooling of those affected. Commonly located in the abdominopelvic region, the disease has also been found in virtually every organ system including the lungs. Mistakenly referred to by some as simply ‘painful periods,’ symptoms are not limited to menstruation and often become chronic over time. It is also entirely possible for those who do not menstruate e.g., adolescents, post-hysterectomy, post-menopause to struggle with endometriosis. This extraordinarily complex illness has body-wide impact, with sustained inflammation, angiogenesis, adhesions, fibrosis, scarring, and local and neuronal infiltration leading to a multitude of systemic issues. Chronic pain, anatomic distortion, adhesions, organ dysfunction, non-menstrual abdominal and pelvic pain, infertility and pregnancy loss, painful sex, bowel and bladder pain and dysfunction, lower back and leg pain, severe bloating, crippling fatigue, debilitating period pain among those who menstruate, even lung collapse and much more are hallmark of endometriosis. Despite the preponderance of systemic symptoms and effects, however, many patient complaints are unfortunately trivialized or outright dismissed at the healthcare level. The disease is also rarely present alone and is commonly associated with multiple comorbidities and secondary pain drivers including various gynepathologies; chronic fatigue; coronary heart disease; rheumatoid arthritis; adverse obstetrical outcomes like loss, preterm birth, spontaneous hemoperitoneum in pregnancy, obstetric bleeding, pregnancy-induced hypertension, preeclampsia and more; painful bladder syndrome; and even an increased risk of certain cancers. Often called a ‘disease of theories,’ definitive causes have been under debate for over a century, yet no single theory yet explains endometriosis in all affected. Most likely, a composite of several mechanisms is involved.”

With millions of sufferers and long-standing recognition of the disease, it is shocking that women suffer such enormous discrimination in the workplace for a common disease. To summarise, I will quote from a paper I was sent by Victoria Williams, a researcher at the Open University, from her PhD thesis, “The experience of endometriosis in the workplace and the influence of menstrual policy: leaning to precarious work to manage a ‘precarious condition’”. She says:

“Endometriosis often hinders the ability to work to the same capacity every hour on every day of a traditional working calendar, and as such participants talked of not being able to hold down full time work, leading to multiple part time roles or precarious work situations, drawn by the flexibility they offered. However, the supposed flexibility is often a double bind with lack of stable contracts, loss of state provisioning and the financial impact of having to take time off for surgery (often multiple surgeries). As such, precarious work may be appealing to people with endometriosis because of the promise of flexibility but they may equally feel and be even less protected.”

I want to expand on that by talking about the sufferers of this terrible disease and the effects it has in the workplace.

We have all been ill. Unfortunately, we have all had a rather nasty stomach upset at some point. We may have been at work when we were suddenly taken short and had to nip out to the bathroom. I do not want to get too graphic—we all know what that feels like. I am sure we have all had a very embarrassing incident at some point in our life. Mr Davies, can you imagine experiencing that fear—and, indeed, that incident—every single day in the workplace?

I have been given examples of that particular situation by women who have been at work, in a meeting, when a sudden bowel movement has given them seconds to get out and get to the right place. Yet one person who gave me such an example told me that her employers tutted and said she was unreliable: “She’s always nipping off to the bathroom.” I do not believe that people are mean or bad. I fundamentally believe that most human beings in society want to do the right thing by people, but if people do not know about the situation, ignorance can have some very nasty consequences. We have to start raising a higher level of awareness of this issue.

National Endometriosis Survivors Support has sent me a catalogue of quotations, with more than 60 patients outlining their experiences. I am going to share about 20 of them with hon. Members.

No.1:

“Having endometriosis has made my career a mine field. I cannot progress how I wish to due to time taken off sick. I have been undermined and people have compared my condition to other conditions with complete ignorance:—suggesting that I was exaggerating my symptoms. Working life is not compatible with suffering from endometriosis—it’s too much and no one understands!”

No. 2:

“I was asked what I was going to do to make things better and stop myself being sick. It’s an incurable disease.’

No. 3:

“I’ve almost lost my job due to discrimination because I couldn’t work as fast when I was in crippling pain.”

No. 4:

“Almost lost my job in a major company despite them saying they’d treat endometriosis occasions of absence separately that wasn’t the case. Also wouldn’t let me home when I was covered in blood to change my clothes and made me go purchase new clothes and told me to use work showers.”

No. 5:

“I was in hospital due to my endo a little over a month ago, I couldn’t walk. Had to call in for work, which I rarely do unless I genuinely can’t help it, they asked if I was being admitted because if I wasn’t they wanted me to ‘make up for it’ by working the next day.”

These are real experiences from real people in the workplace. There is lots of evidence out there.

No. 6:

“Due to the fact that I had two laparoscopies, I had a large gap in my employment record. Despite a very good CV, my applications were rejected because employers saw only the employment gap.”

No. 7:

“I haven’t been able to work for 7 years now and it depressing.”

No. 8:

“Was misdiagnosed as IBS for 4 yrs, my boss said I was exaggerating it, refused to let me do flexi time to help. After surgery, I was signed off for an additional week, and when I called to tell her, she swore and slammed the phone down. Ended up severely depressed. I was suicidal. She brushed it off, and kept calling me Menopausal Mandy.”

I have said it before on the Floor of the House and I will say it again: women are dying. They are killing themselves. They are spending day after day in chronic, crippling pain and do not even have the support of a workplace. That level of destruction of women’s lives is killing women, and it has got to stop. We have to get a better understanding of what millions of women are going through in this country.

Trade Union Bill

Debate between Alec Shelbrooke and Geraint Davies

Monday 14th September 2015 Commons Chamber

[Alec Shelbrooke]

I thank the hon. Gentleman for his comments, because I am coming on to that point. I was about to say that I do not agree with the position my party’s leadership took then, nor the praise that was given to the strike breakers, but I give this warning: my opinions are couched in a life after the trade union reform the hon. Gentleman mentions. I was literally in nappies when the Grunwick affair took place. What it shows is that it is necessary to make sure that relations between workers who need support and the trade unions do not become part of a proxy political battle. I agree with the hon. Gentleman about the need for workplace representation, and I welcome that that rule was brought in.

The popularity among the public and leading politicians of strike breakers was a direct consequence of trade union militancy, using the power of strike action as a political tool, even under a rather left-wing Labour Government, rather than a tool of grievance, so that when strike action was genuinely needed—as I believe it was in that case—the cause and effect were lost in a wider political argument.

We must take this example into consideration, because there is a difference between a public and a private sector dispute. The free market dictates that private companies exist according to supply and demand: if the company sinks, the market will reshape and another company will fill the void, whereas the state is solely responsible for the delivery of key public services. When conditions in the private sector are so bad that a strike has been called, the striking workers will weigh up the consequences to their ongoing conditions. In comparison, a public sector striker will go back to work having lost the day’s pay they were on strike for. They will not face a salary drop, probably will still get a pay rise and will have a very good pension. That is not the case in the private sector, where it can mean job losses, unresolved disputes and sometimes worse pay than at the start. After the general strike of 1926, the miners’ pay was worse than at the start. Those are heavy considerations for those in the private sector taking strike action, but those in the public sector do not have to worry about them. I therefore ask the Secretary of State to reconsider the proposals in the Bill to allow private sector companies to employ agency workers during strikes. There are key differences between the services provided by the private and public sectors, and that should be recognised in the Bill.

Public services are paid for by the taxpayer, and they often have terms and conditions of employment beyond the dreams of those working in the private sector. When those in the public sector strike, those in the private sector—whose taxes pay the wages of those on strike—often lose pay themselves owing to a lack of transport or childcare. That is why it is right that thresholds should be set. Such thresholds would not have made a difference to the recent tube strikes, but they would clearly indicate the strength of feeling involved. With the current ease of striking, and the consequences to members’ livelihoods that that involves, it is no wonder that only 14% of those working in the private sector take up union membership, compared with more than 50% of those in the public sector.

[Geraint Davies]

Will the hon. Gentleman give way?

[Alec Shelbrooke]

No, I want to crack on. I have given way a couple of times, and a lot of people want to speak.

Above all else, the Bill will start the process of restoring faith in the trade union movement so that those in the private sector can feel that they have workplace representation without a militant tendency that could destroy their livelihoods or funding a political party that they do not agree with.

That brings me on to the question of opting into the political levy. How can unions offer independent workplace representation to people who desperately need their help if they are tied to the Labour party by funding it automatically? I accept that this does not apply to every union, but hard-working people’s fees are often used in that way.

As I mentioned earlier, I was a founding member of Unite. I wanted to opt out of the political levy, but it was no easy task, with advice in short supply on how to do it. In the busy workplace, I never got to action this, as my requests were always forgotten or complicated. I helped to support the 2010 general election campaign of my hon. Friend the Member for Pudsey (Stuart Andrew), who stood against a Unite-funded lackey. That cannot be right, and it clearly goes against my political beliefs.

The opt-in will need to be closely monitored. Affiliated votes in the Labour leadership campaign accounted for about 200,000 of 4.3 million trade unionists. If 1 million people suddenly opt into the political levy, something is going on. To be blunt, I believe that that could involve intimidation. Such tactics were used only last week in my constituency. Members of a protest group called the People’s NHS were knocking on doors and telling my constituents that the Government were selling off the NHS to an American company via the Transatlantic Trade and Investment Partnership. We all know that that is tosh, especially as on 8 July 2015 the European Parliament voted by 436 to 241 to exclude public services from the scope of the TTIP deal. So these people knocking on the doors of the elderly and vulnerable in my constituency are scaremongering with lies. But who are they? Well guess what—they are funded by Unite. The trouble is, having parachuted a Unite candidate from London into my seat at the general election—giving me the largest ever Tory vote in my seat, for which I am grateful—the union is now trying to lie to people to get its own way.

But it is worse than that. My constituents know me well, so they are quick to contact me with their concerns. One constituent contacted me to say that she felt “intimidated to agree” and that people

“had no choice but to put up their propaganda signs, because they were told everyone else was doing it and they would be the only ones who didn’t”.

This constituent even found comments in her name reported in the local press, which she did not agree to. Not only are those people nasty, ill-informed bullies and a disgrace to trade unionism, but to top it all they then tried to get my constituents to join Unite. My right hon. Friend the Secretary of State will have to bring in mechanisms to ensure that the opt-in is not abused by union thugs bullying people into signing up. We received warnings about this only last weekend from the former Home Secretary, David Blunkett, who fears a return to the bullying and intimidation of the 1980s in the labour movement.

I believe that people should have workplace representation. I class myself as a trade unionist because I believe that a union of people in a trade can negotiate better with someone representing them as a group, so that those who simply do not have it in them to stand up and speak out publicly can have representatives who will. The TUC in the 19th century recognised this and wanted to support working-class MPs to enable them to represent workers politically. That is a long way from today’s practice of using members for their leadership’s own political games. The public are tired of it, and these reforms are now being demanded. I believe that there needs to be a distinction between the public and private sectors, but fundamentally I want all workers to be properly represented in the workplace, independent of party politics.

Cost of Living

Debate between Alec Shelbrooke and Geraint Davies

Tuesday 14th May 2013 Commons Chamber

[Geraint Davies]

That is a key point.

We are always hearing that everything is all right in the UK and the problems are someone else’s fault. The EU does have problems, but there are emerging opportunities in China, India, Brazil and elsewhere. The Queen’s Speech should have provided a strategic platform for international trade to help us access the newly emergent and massive middle classes who want to take our consumer goods and who form the basis of inward capital investment. But no, we are busy being the one nation, fish and chip shop, Eurosceptic Britain—the nation of shopkeepers that Napoleon described us as. It is frankly pathetic. The Conservatives are not fit to be in government.

Between 1997 and 2008, we saw growth of 40%. Not enough Labour Members stand up and defend that. If our debt to GDP ratio is going from 55% to 85%, how can we sort it out? One way is to cut debt and to stamp on the poor for the recklessness of the bankers, which is what the Tories are doing. The other is to increase GDP so that the ratio goes down. Under Labour, GDP went up by 40% up to 2008. In 2008, my right hon. Friend the Member for Kirkcaldy and Cowdenbeath (Mr Brown) and President Obama put together the fiscal stimulus. The EU’s fiscal stimulus was 2% of GDP. In the United States, it was 5% of GDP. Indeed, the United States put in $2 trillion of quantitative easing, whereas the EU put in nothing. Britain did put in something, but we still have the economics of austerity here and in Europe. In the United States, where the economy was stimulated, growth is projected to be 3% in the next year. In the EU, it is projected to be 1%. Why was nothing done about that in the Queen’s Speech?

We have seen the emergence of massive youth unemployment. In Greece, the rate is more than 60% and in Italy it is 38%. In Greece, people are moving towards the Nazis and extreme communists. In Italy, 25% of people voted for a comedian. I notice that that is the same percentage of people who are voting for UKIP here. The British National party’s support has gone up fourfold from 1% to 4%. The response of the Tories is to run for the hills and emulate UKIP.

Why has support for UKIP gone up? The first reason is that the Prime Minister has given it credibility by saying that he will hold a referendum. People who used to say to me when I knocked on their doors, “You must be joking. We’ve got millions of jobs involved in trade with Europe. It’s the platform into China, India and the United States”, are now thinking, “Hold on. Cameron’s offering us this option, so it must be a credible choice.” That gives oxygen to UKIP.

[Alec Shelbrooke]

What is the hon. Gentleman’s reaction to the hon. Member for Lewisham West and Penge (Jim Dowd), who said that their party should support a referendum on Europe?

[Geraint Davies]

Obviously, I disagree with that. I do not agree with a referendum, but if the overwhelming majority of people in Britain want one, I accept that we should have one. I am simply saying that the case for a referendum has been whipped up because of the Conservatives’ fear of UKIP. They have fed it red meat, and it is coming back for more.

It is the same with immigration. Everyone is going, “Oh no, there’s too much immigration. It’s terrible, isn’t it?” However, immigration was part of the reason for our economic growth. We prematurely let in some of the people from Poland who would have been able to come here anyway, and meanwhile Germany is saying that it needs more immigrants to pay for the generation that is growing old. We obviously need to manage immigration properly and carefully, but we should consider that 6% of immigrants are on benefits compared with 16% of indigenous people.

We are providing ammunition for people to blame immigrants, and what was in the Queen’s Speech? Private landlords and health providers will have to find out whether someone is an immigrant and whether they are legal. What will be the easiest test of that? “Are you white or are you black?” It is institutional racism. We are feeding the UKIP voters by saying, “The austerity problems aren’t Tory austerity problems, they’re because of all the immigrants.” Is that helping anyone and creating a united and strong Britain with a one nation future? No, it is creating a weak, divided nation of people who are being crushed by the Tories, and the poorest are blaming the immigrants. It stinks.