Epilepsy

Debate between Lord McCabe and Jim Cunningham

Tuesday 29th November 2011 Westminster Hall

[Steve McCabe (Birmingham, Selly Oak) (Lab)]

Good morning, Mr Scott. It is a pleasure to serve under your chairmanship.

I am very pleased to have secured this debate. To be honest, it is so long since I began trying to secure it that I cannot entirely remember all the motivations for doing so. Recently I have had two different groups claiming ownership of the idea for it, and I am quite happy to accept that they are both right. I do not regard myself as an expert on epilepsy and I am not particularly motivated by self-interest or by the experience of relatives or close friends. Like many other MPs, I am motivated by constituents who have come to me to talk about their own experiences of epilepsy and by the interest of the various groups and charities that set out to help people with epilepsy. Consequently, any mistakes and omissions in my contribution this morning are entirely my fault, but I am extremely grateful to various groups for the facts in my speech and the good advice that I have received. They include Epilepsy Action, the Joint Epilepsy Council, Epilepsy Bereaved, the National Centre for Young People With Epilepsy, which is now called Young Epilepsy, and of course the all-party group on epilepsy—whose secretary in 2007 was, I note, the MP for Witney, who is now the Prime Minister.

[Mr Jim Cunningham (Coventry South) (Lab)]

Like my hon. Friend, I have a number of constituents who are affected by epilepsy. The Dattani family lost their son, Ravin, in February because of epilepsy, and with the help of others, in particular the local newspaper, the Coventry Telegraph, they have raised about £19,000. They point out that epilepsy causes more than 500 deaths each year in the UK, and one of the issues they have raised in correspondence with me is that often parents do not know the right questions to ask a doctor. That view is reflected in other correspondence that I have received on this subject, and it is a point that we should look into. In addition, the majority of people do not realise that epilepsy can end in death. Will my hon. Friend congratulate the Dattani family on their efforts to do something about epilepsy after the loss of their son, and particularly on raising about £19,000 with the help of our local newspaper?

[Steve McCabe]

I certainly congratulate the family on that fundraising, and the point about lack of information on epilepsy is crucial. The full title of the debate is “Prevention of avoidable deaths from epilepsy”, but given the nature of the subject I may occasionally stray into more general territory; I hope that you will forgive me for doing so, Mr Scott.

Epilepsy is defined as a tendency to have recurrent seizures, when a sudden burst of excess electrical activity in the brain causes a temporary disruption in the normal message-passing between brain cells. Epilepsy is not one condition but a composite of about 40 different types of seizures and up to 50 different syndromes. It affects about 600,000 people in the UK, which is one in every 103 people or about 930 people in each parliamentary constituency. It is estimated that about 69,000 people with epilepsy could have their seizures controlled with good treatment; about 74,000 people are taking aggressive drugs unnecessarily, because of misdiagnosis; a quarter of people who are known to learning disability services have epilepsy; half of the 60,000 young people with epilepsy are estimated to be underachieving academically relative to their intellectual capacity; and people with epilepsy have been shown to be twice as likely as those without epilepsy to be at risk of being unemployed.

Some studies suggest that the likelihood of early death in people with epilepsy is two or three times higher than in people without epilepsy. As my hon. Friend the Member for Coventry South (Mr Cunningham) indicated, the biggest risk appears to be poor seizure control, with the risk of early death increasing as the number of seizures that an individual suffers increases. A phenomenon that people are now starting to come to terms with is sudden unexpected death in epilepsy, or SUDEP. I understand that in 2009 about 1,150 people in the UK died of epilepsy-related causes. That means that, each day in the UK, approximately three people with epilepsy die, and at least a third of those deaths—one death each day—are potentially avoidable.

I am very grateful to Lucy Kinton, a consultant neurologist at Basingstoke and North Hampshire NHS Foundation Trust, who says that there is not enough research into SUDEP, which frequently affects young people who otherwise could be expected to have a fairly normal life. Indeed, she points out that our investment in research into epilepsy is much lower than our investment in research into other frequently occurring conditions, such as diabetes.

Policing (West Midlands)

Debate between Lord McCabe and Jim Cunningham

Tuesday 16th November 2010 Westminster Hall

[Steve McCabe (Birmingham, Selly Oak) (Lab)]

I congratulate my hon. Friend the Member for Coventry South (Mr Cunningham) on securing this important debate. I know perfectly well that the aim of the coalition—its ideological ambition—is to achieve a smaller state and that it has concluded that it can do that by cutting deeply into public services and blaming the previous Government for that reckless gamble. I understand that. The reality is that the people of the west midlands will deliver the final verdict on the coalition’s plans, but my fear is that we may witness a law-and-order disaster and an explosion in crime before the electorate are afforded that opportunity.

I have been involved in policing matters since I first came to the House in 1997. I have always believed that it is the duty of Government to give the police the numbers and the resources to do their job. I am proud of the Labour Government’s record in raising police numbers to record levels and in leaving office with crime lower than it was when we came in. Ours was the first Government to achieve that since the first world war. In addition, like everyone else here, I am proud that 16,000 police community support officers were put on the streets.

I do not know what happened to the review of the future of PCSOs that was to have been conducted by the former shadow Home Secretary, the right hon. Member for Epsom and Ewell (Chris Grayling). Some people may recall that it was announced with great fanfare at the Police Federation conference last year. I do not know whether it ever reached a conclusion.

[Mr Jim Cunningham]

If my hon. Friend wants to know what happened to the right hon. Gentleman, I can tell him that he was demoted.

[Steve McCabe]

Actually, I was referring to the right hon. Gentleman’s proposal to review the future of PCSOs. I do not know whether that reached a conclusion, but the reality is that unless the west midlands force receives the grant necessary to sustain PCSOs, they will disappear from the streets of places such as Selly Oak. We shall suffer the folly of front-loaded cuts, as my hon. Friends have said. We shall see the destruction of a decade of improvements.

We are likely to see two effects on West Midlands police. The funding cuts will result in job losses for civilian staff. It will be called the reverse civilianisation policy. That means that the previous policy of recruiting civilians to perform crucial support but non-direct-policing tasks, thus freeing up police officers to fight crime, will be put into reverse. As a result, civilian staff numbers will fall and officers will be taken off the streets to perform clerical and administrative duties—and that is from a Home Secretary who claims that there is too much bureaucracy and she wants crime fighters rather than form-fillers. People will ring up only to be told that no officer is available; they are all too busy manning the CCTV cameras, typing up reports and answering the phone.

As my hon. Friend the Member for Birmingham, Erdington (Jack Dromey) said, it will not stop there. As the budget tightens, the chief constable will be forced to pay off some of his older and most experienced officers in a desperate attempt to save money. The West Midlands force risks being reduced to the status of a reactive response unit. Some estimates suggest that we will lose as many as 40 officers per constituency in Birmingham.

Initiatives that are the cornerstone of community-based and partnership policing—the very thing that the hon. Member for Halesowen and Rowley Regis (James Morris) supports—will be the first to go. Youth programmes that are designed to attract young people to sporting activities, such as those that I have witnessed at Chinn Brook recreation ground, and to prevent them drifting into vandalism and mindless antisocial behaviour will be lost. Local innovations such as police reward cards, which the police have pioneered in the west midlands to engage young people at a level that they appreciate and understand, will go. Social programmes, through which officers have worked with schools such as Kings Heath boys’ school and Highters Heath, Billesley and Hollywood primary schools, will be lost. Finally, as the force shrinks, crime will of course rise.

It is not too late for the Government to rethink their priorities. It is not too late for the coalition to wake up to the enormous gamble that it is about to take with law and order. It is not too late to recognise that having created an age of austerity, the last thing we should do is cut the police. There is still time to accept that the political gamble of police commissioners does not make sense when every spare penny should be used to keep police officers on our streets. Who else would pick this moment to blow £100 million on a reckless political gamble, when we should be trying to keep the force at a strength that will enable it to do its job?

The picture that I have painted is not inevitable, but it will be the inevitable outcome of the decisions that the coalition is taking: it will be the consequence of a Government who, by their choices, have demonstrated that they misunderstand policing. For the sake of our communities in the west midlands, I hope that the Minister will tell us that he is prepared to listen and to think again about the measures that are necessary to preserve high-quality policing in Birmingham and the west midlands.