Cystic Fibrosis Drugs: Orkambi
Debate between Gerald Jones and Paul Scully(5 years, 5 months ago)
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Paul Scully
The hon. Gentleman is absolutely right. Northern Ireland must surely be in there too.
Gerald Jones (Merthyr Tydfil and Rhymney) (Lab)
This debate is primarily about the availability of Orkambi in England. The 540 of my constituents who signed the petition and Rebecka and Matthew Bow, who contacted me on behalf of their daughter, Sofia, are really keen to see progress in Wales. Does the hon. Gentleman agree that it is important for health across the UK that we work together to ensure that there is a co-ordinated approach with Vertex to make Orkambi available right across the United Kingdom?
Paul Scully
The hon. Gentleman is right. Cystic fibrosis is a rare disease that particularly affects this part of the world, so we must find a way of working together across the whole of the UK.