Health: Degenerative Brain Diseases

Debate between Earl Howe and Lord Soley

Wednesday 5th June 2013 Lords Chamber

[Lord Soley]

To ask Her Majesty’s Government what plans they have to encourage brain donation to assist scientific research, including into degenerative brain diseases.

[The Parliamentary Under-Secretary of State, Department of Health (Earl Howe)]

My Lords, as a nation we are deeply indebted to the many individuals who donate brain tissue. This donation enables vital research leading to new treatments for neurodegenerative diseases. The Medical Research Council, the National Institute for Health Research and research charities are all supporting work to encourage brain donation. The MRC network of brain banks is developing a strategy to encourage new donors and plans to hold a workshop in September this year.

[Lord Soley]

I am grateful for that Answer. I remind the Minister that when we talked originally of heart donation many people found that quite emotionally difficult, but now it is much more common. There is something very similar with brain donation yet it is profoundly important, not only for general research but particularly for degenerative brain disease. The research bodies are very concerned to get people to donate where they do not have a family history of brain degeneration because they need comparative samples. Can the Minister do all he can to promote this? I donated my brain some time ago and so far it has not been returned marked “not fit for purpose”. [Laughter.] In all seriousness, this is a very important issue. It can bring great improvement to people’s lives and to scientific knowledge generally and I ask the Minister and his department to do all they can to promote it.

[Earl Howe]

I endorse entirely the noble Lord’s ambition in this area. It is an extremely important area of tissue donation and contributes enormously to our understanding, particularly of neurodegenerative diseases. The network of brain banks I referred to has already begun work on its donation strategy, encouraging new donors to sign up for brain donation. Its plan is to target well characterised individuals, for example those in clinical cohorts, as, once donated, the tissue has lots of associated clinical information from life, which is highly useful to researchers. I know that a lot of the major charities are involved in promoting brain donation.