One of the interesting developments with the Best Start family hubs is that local councils are being tasked with having dedicated SEND practitioners in each of them. Dyscalculia comes under the umbrella of those conditions, and I know that its profile is being raised and better understood, not least because of the noble Baroness’s efforts. As with anything else, the earlier it is picked up, the better.
My Lords, a Labour MP’s visit to a school in his constituency in Bristol was cancelled by members of the National Education Union purely because he is Jewish. What message does that send about the long-term outcomes for our children?
I am not apprised of the actual details. Obviously, this is something that has been picked up and will be looked at very seriously going forward.
I cannot give the detailed answer on the numbers that the noble Lord is after, but I am very happy to write to him. We have this experience in a whole range of other medicines, but I appreciate the noble Lord’s particular interest in this. This is a very difficult area. It is for NICE to look at the best way forward on providing medicines that give the best results and value for money and achieve the right outcomes. This is an ongoing situation, and I am happy to write to the noble Lord on the detail.
My Lords, I witnessed a close family member suffer with this dreadful disease, and the Minister is right to say that she cannot comment on the actual drug and NICE’s decision. However, before this drug is administered, you require blood-clotting platelets so that the drug can have the best effect. However, there is a big shortage of platelet donors within the NHS, as the noble Baroness may be aware. Waiting for NICE’s decision may be part of the administration cost of administering this drug, but one thing it may use to say it cannot do it is a shortage of donors, so perhaps we can proactively ask the NHS to look into how we can get more donors for platelets.
The noble Lord touches on a very sensitive matter that could be replicated around a variety of issues. Looking for more people to come forward is a perpetual challenge, and I am sure that everything should be done to encourage people to do so. I am sure that many people do not know that this is an issue, and some promotion could be helpful.
We will have a Cross-Bencher first.