Oral Answers to Questions

Debate between Baroness Blackwood of North Oxford and Andrea Jenkyns

Tuesday 7th February 2017 Commons Chamber

[Nicola Blackwood]

We are working hard on that exact point.

[Andrea Jenkyns (Morley and Outwood) (Con)]

20. As the Health Secretary is aware, my constituent Abi Longfellow is suffering with a rare kidney condition—dense deposit disease. What plans do the Government have to increase access to specialist drugs for those such as Abi with ultra-rare diseases?

[Nicola Blackwood]

The National Institute for Health and Care Excellence and NHS England are working together to better manage access to new drugs and medical technologies for rare diseases. We are also working on the UK strategy for rare diseases and its implementation. It has 51 commitments to be implemented by 2020 to improve the lives of constituents such as my hon. Friend’s.