Asked by: Baroness Finlay of Llandaff (Crossbench - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what consideration they have given to introducing time-limited interim access pathways for rare cancer treatments where published clinical evidence and specialist expertise already exist but routine commissioning routes are not yet in place.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government supports Scott Arthur’s Private Members Bill on rare cancers which will make it easier for clinical trials into rare cancers, including metastatic ocular melanoma patients, to take place in England by ensuring the patient population can be easily contacted by researchers. This will ensure that the National Health Service will remain at the forefront of medical innovation and is able to provide patients with the newest, most effective treatment options, and ultimately boost survival rates.
The Department remains committed to ensuring that rare cancer patients, including those with metastatic ocular melanoma, have timely access to treatment and tailored medical support.
Tebentafusp is a licensed treatment for uveal melanoma and has been recommended by the National Institute for Health and Care Excellence (NICE) and funded by NHS England since December 2024. Since funding commenced, over 100 patients have been registered to start treatment. At present, NHS England is not aware of any delays in access to Tebentafusp for eligible patients.
Alongside Tebentafusp, a policy proposition for melphalan chemosaturation was accepted onto the NHS England policy development work programme in March 2025, in line with the Methods for National Clinical Policies. Development of this policy is ongoing following receipt of the external evidence review. Progress updates are published through the NHS England Clinical Commissioning Work Programme, and NICE is concurrently updating its guidance. Until revised guidance is issued, the NHS continues to follow the recommendations in the current version.
The development of a Clinical Commissioning policy will determine both if the evidence is now sufficient to enable making the treatment routinely available and, if it is, whether to allocate service development funding to implement it across the NHS in England.
NHS England’s Individual Funding Request (IFR) Policy provides the framework through which requests outside routinely commissioned arrangements are considered. The IFR framework was last reviewed in 2022 and ensures fairness, consistency, and transparency in decision‑making across all applications relating to medicines, devices, or surgical interventions that fall within NHS England’s commissioning responsibilities.
Asked by: Baroness Finlay of Llandaff (Crossbench - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what interim arrangements are in place to ensure timely access to clinically appropriate treatments for patients with rare cancers, including metastatic ocular melanoma, while longer term commissioning decisions are under consideration.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government supports Scott Arthur’s Private Members Bill on rare cancers which will make it easier for clinical trials into rare cancers, including metastatic ocular melanoma patients, to take place in England by ensuring the patient population can be easily contacted by researchers. This will ensure that the National Health Service will remain at the forefront of medical innovation and is able to provide patients with the newest, most effective treatment options, and ultimately boost survival rates.
The Department remains committed to ensuring that rare cancer patients, including those with metastatic ocular melanoma, have timely access to treatment and tailored medical support.
Tebentafusp is a licensed treatment for uveal melanoma and has been recommended by the National Institute for Health and Care Excellence (NICE) and funded by NHS England since December 2024. Since funding commenced, over 100 patients have been registered to start treatment. At present, NHS England is not aware of any delays in access to Tebentafusp for eligible patients.
Alongside Tebentafusp, a policy proposition for melphalan chemosaturation was accepted onto the NHS England policy development work programme in March 2025, in line with the Methods for National Clinical Policies. Development of this policy is ongoing following receipt of the external evidence review. Progress updates are published through the NHS England Clinical Commissioning Work Programme, and NICE is concurrently updating its guidance. Until revised guidance is issued, the NHS continues to follow the recommendations in the current version.
The development of a Clinical Commissioning policy will determine both if the evidence is now sufficient to enable making the treatment routinely available and, if it is, whether to allocate service development funding to implement it across the NHS in England.
NHS England’s Individual Funding Request (IFR) Policy provides the framework through which requests outside routinely commissioned arrangements are considered. The IFR framework was last reviewed in 2022 and ensures fairness, consistency, and transparency in decision‑making across all applications relating to medicines, devices, or surgical interventions that fall within NHS England’s commissioning responsibilities.
Asked by: Baroness Finlay of Llandaff (Crossbench - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the impact of delays in commissioning decisions on (1) outcomes, and (2) quality of life, for patients with rare cancers.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government supports Scott Arthur’s Private Members Bill on rare cancers which will make it easier for clinical trials into rare cancers, including metastatic ocular melanoma patients, to take place in England by ensuring the patient population can be easily contacted by researchers. This will ensure that the National Health Service will remain at the forefront of medical innovation and is able to provide patients with the newest, most effective treatment options, and ultimately boost survival rates.
The Department remains committed to ensuring that rare cancer patients, including those with metastatic ocular melanoma, have timely access to treatment and tailored medical support.
Tebentafusp is a licensed treatment for uveal melanoma and has been recommended by the National Institute for Health and Care Excellence (NICE) and funded by NHS England since December 2024. Since funding commenced, over 100 patients have been registered to start treatment. At present, NHS England is not aware of any delays in access to Tebentafusp for eligible patients.
Alongside Tebentafusp, a policy proposition for melphalan chemosaturation was accepted onto the NHS England policy development work programme in March 2025, in line with the Methods for National Clinical Policies. Development of this policy is ongoing following receipt of the external evidence review. Progress updates are published through the NHS England Clinical Commissioning Work Programme, and NICE is concurrently updating its guidance. Until revised guidance is issued, the NHS continues to follow the recommendations in the current version.
The development of a Clinical Commissioning policy will determine both if the evidence is now sufficient to enable making the treatment routinely available and, if it is, whether to allocate service development funding to implement it across the NHS in England.
NHS England’s Individual Funding Request (IFR) Policy provides the framework through which requests outside routinely commissioned arrangements are considered. The IFR framework was last reviewed in 2022 and ensures fairness, consistency, and transparency in decision‑making across all applications relating to medicines, devices, or surgical interventions that fall within NHS England’s commissioning responsibilities.
Asked by: Baroness Finlay of Llandaff (Crossbench - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether they have considered changes to the use of individual funding requests for rare cancer treatments, particularly the requirement for exceptionality, for patients who have no alternative clinically appropriate treatment options.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government supports Scott Arthur’s Private Members Bill on rare cancers which will make it easier for clinical trials into rare cancers, including metastatic ocular melanoma patients, to take place in England by ensuring the patient population can be easily contacted by researchers. This will ensure that the National Health Service will remain at the forefront of medical innovation and is able to provide patients with the newest, most effective treatment options, and ultimately boost survival rates.
The Department remains committed to ensuring that rare cancer patients, including those with metastatic ocular melanoma, have timely access to treatment and tailored medical support.
Tebentafusp is a licensed treatment for uveal melanoma and has been recommended by the National Institute for Health and Care Excellence (NICE) and funded by NHS England since December 2024. Since funding commenced, over 100 patients have been registered to start treatment. At present, NHS England is not aware of any delays in access to Tebentafusp for eligible patients.
Alongside Tebentafusp, a policy proposition for melphalan chemosaturation was accepted onto the NHS England policy development work programme in March 2025, in line with the Methods for National Clinical Policies. Development of this policy is ongoing following receipt of the external evidence review. Progress updates are published through the NHS England Clinical Commissioning Work Programme, and NICE is concurrently updating its guidance. Until revised guidance is issued, the NHS continues to follow the recommendations in the current version.
The development of a Clinical Commissioning policy will determine both if the evidence is now sufficient to enable making the treatment routinely available and, if it is, whether to allocate service development funding to implement it across the NHS in England.
NHS England’s Individual Funding Request (IFR) Policy provides the framework through which requests outside routinely commissioned arrangements are considered. The IFR framework was last reviewed in 2022 and ensures fairness, consistency, and transparency in decision‑making across all applications relating to medicines, devices, or surgical interventions that fall within NHS England’s commissioning responsibilities.
Asked by: Baroness Maclean of Redditch (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the influence of (1) social media, and (2) greater public awareness, on self-diagnosis and subsequent formal diagnosis of mental health conditions; and what guidance they have provided to clinicians about those influences.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
In 2019, the UK Chief Medical Officers published a commentary on the findings of a systematic review on screen-based activities and children’s mental health. They found an association between screen-based activities and mental health but could not establish causality. The commentary is avaiable in the document attached.
On 20 January 2026, the Government announced a forthcoming consultation on how to ensure children have a healthy relationship with devices, introduce rapid trials on measures to reduce screentime and limit access at night, and produce evidence-informed screentime guidance for parents of children aged five to 16 years old. This three-month consultation will be evidence-led, with input from independent experts, and will include determining the right minimum age for children to access social media. It will report in the summer.
Over the past decade, greater public awareness and reduced stigma around mental health have coincided with a rise in common mental health conditions and increased demand for National Health Service support, highlighting the need to better understand and address people’s needs.
The independent review into the prevalence and support for mental health conditions, attention deficit hyperactivity disorder, and autism will therefore examine a range of potential drivers of mental health conditions, the impact of clinical practice, including the role of diagnosis, opportunities for prevention and early intervention, and models of support within and beyond the NHS.
The review’s Terms of Reference are published on the GOV.UK website, in an online only format.
Asked by: Lord Kamall (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what plans they have to ringfence funding for brain cancer research.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
Research is crucial in tackling cancer, which is why the Department invests over £1.6 billion per year in research through the National Institute for Health and Care Research (NIHR). Cancer is a major area of NIHR spending at £141.6 million in 2024/25, reflecting its high priority.
Too little is known about how to prevent, diagnose, and manage brain tumours. They remain one of the hardest cancers to treat and a challenging area for research. That is why we are committed to furthering our investment in brain cancer research and have already taken steps to stimulate scientific progress.
In December 2025, the NIHR announced an initial £13.7 million investment in the pioneering Brain Tumour Research Consortium to accelerate research into new brain tumour treatments. Significant further funding is due to be awarded shortly. The world-leading consortium aims to transform outcomes for adults and children and their families who are living with brain tumours, ultimately reducing lives lost to cancer.
The NIHR continues to welcome funding applications for research into any aspect of human health and care, including brain cancer. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to the public and health and care services, value for money, and scientific quality. Welcoming applications on brain cancer to all NIHR programmes enables maximum flexibility both in terms of the amount of research funding a particular area can be awarded, and the type of research which can be funded.
Asked by: Lord Bradley (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what action they are taking to extend independent prescribing responsibilities to occupational therapists.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
We support the expansion of non-medical professional groups being able to use legal mechanisms to prescribe, supply, and administer medicines to patients where it is safe to do so. There is a robust process in place for making such changes to ensure they are safe and beneficial for patients.
We are considering requests for the extension of existing medicines responsibilities and recently concluded a consultation on proposals to extend the medicines responsibilities of four professions. Further information can be found on the GOV.UK website.
Asked by: Lord Kamall (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government, what steps they are taking to identify regulatory barriers and evaluate reimbursement policies for brain cancer therapies.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government recognises that there are currently limited treatment options available for people who have been diagnosed with cancerous brain tumours and recognises the significant impact this rare cancer can have on patients, carers, and their families. All new licensed medicines, including medicines for brain cancer, are evaluated by the National Institute for Health and Care Excellence (NICE), which makes recommendations for the National Health Service on whether they represent a clinically and cost effective use of NHS resources. NICE is actively evaluating a number of new medicines for potential use in the treatment of brain cancers.
NICE works closely with companies and the medicines regulator, the Medicines and Healthcare products Regulatory Agency (MHRA), and aims to issue guidance on new medicines as close as possible to the time of licensing. The NHS in England is legally required to fund medicines recommended by NICE and funding from the Cancer Drugs Fund is available for cancer medicines from the point of a draft positive NICE recommendation, bringing forward patient access by up to five months.
The MHRA has several pathways which facilitate rapid assessment of medicines. This includes international collaborations such as Project Orbis and the Access Consortium. The MHRA has also introduced the International Recognition Pathway, which allows the MHRA to take into account the expertise and decision-making of trusted regulatory partners, and the Innovative Licensing and Access Pathway scheme, focussed on getting new and transformative medicines to patients in the UK health system more quickly. Recently, the MHRA also issued new regulations to make it faster and easier for cutting-edge cancer treatments and personalised gene therapies to be made right where patients are treated.
Asked by: Andrew Snowden (Conservative - Fylde)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions his Department has had with technology companies used by his Department on the automated processing of emails that contain personal health information.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department does not process personal health information. This type of information is handled by NHS England and other authorised health bodies.
We work closely with NHS England to ensure that any technology used across the health system meets the legal and ethical standards required for safeguarding personal health data. This includes data protection, information governance, and the safeguards required for handling health data. These checks ensure that any system we bring into use aligns with the rules that protect people’s privacy.
When personal data is processed as part of specific programmes, it is handled by approved delivery partners under strict governance arrangements. These partners act only on behalf of the Department and in line with data protection law and contractual controls.
Asked by: Helen Maguire (Liberal Democrat - Epsom and Ewell)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions he has had with NHS England on the publication date for the draft commissioning policy for Chemosaturation therapy.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department and the National Health Service in England are committed to ensuring that cancer patients have timely access to treatment and tailored medical support. In 2016, NHS England concluded that there was insufficient evidence to make chemosaturation treatment available to patients on the NHS. NHS England is currently in the early stages of policy development for chemosaturation to treat metastatic uveal melanoma where surgery to remove or destroy affected cells and tissue in the liver is not feasible.
National Institute for Health and Care Excellence (NICE) guidance recommends that chemosaturation can be used for patients with secondary liver metastases resulting from a primary ocular melanoma, provided special arrangements are in place. A special arrangements recommendation states that clinicians using the procedure should inform the clinical governance lead in their trust, tell the patient about the uncertainties regarding the safety and efficacy of the procedure, and collect further data by means of audit or research. NICE is in the process of updating its guidance, with final guidance expected on 15 October 2026. The first committee meeting, to discuss the evidence, is expected to take place on 16 April 2026. Further information is available at the following link:
https://www.nice.org.uk/guidance/indevelopment/gid-ipg10448