It is a solemn privilege to close this debate, which has been extraordinarily moving. I start by paying tribute to the Backbench Business Committee and my hon. Friend the Member for Eltham and Chislehurst (Clive Efford). Whenever I see him, he says that he is the person to ask me the awkward questions—quite rightly. He always does so with great courtesy, and he speaks with great passion on behalf of the infected blood community. As has been recognised across the House, he does remarkable work as chair of the APPG. He has an able and loyal deputy in the hon. Member for Perth and Kinross-shire (Pete Wishart), who supports that work and puts a great deal of time into it.
I thank the shadow Minister, the hon. Member for Kingswinford and South Staffordshire (Mike Wood), for the tone of his remarks. I echo what he said about the right hon. Member for Salisbury (John Glen), who I worked with and faced across the Dispatch Box when I was the shadow; he has continued that work since. I also thank the hon. Member for Hazel Grove (Lisa Smart) for the constructive tone that she took.
I thank the right hon. Members for New Forest East (Sir Julian Lewis) and for East Hampshire (Damian Hinds), the hon. Member for East Grinstead and Uckfield (Mims Davies), and my hon. Friends the Members for Newport East (Jessica Morden), for Sheffield Brightside and Hillsborough (Gill Furniss), for Beckenham and Penge (Liam Conlon), for Blyth and Ashington (Ian Lavery), for Llanelli (Dame Nia Griffith), for Bury St Edmunds and Stowmarket (Peter Prinsley), and for Rugby (John Slinger). They all made significant contributions and spoke powerfully on behalf of their constituents.
At the outset, I make the general point that many moving individual cases have been raised in this debate, as well as some specific points. My hon. Friend the Member for Blyth and Ashington raised the case of Sean Cavens, on whose behalf he has spoken many times. To be clear, the change that I made in the third set of regulations allows someone to switch from receiving support scheme or periodic payments to a lump sum. I am concerned to hear what he has said is happening to Sean. I say to my hon. Friend and others that they should follow up this debate with details, so that I can come back to them. I would say exactly the same thing to the hon. Member for East Grinstead and Uckfield. I was very moved, listening to her talk about her constituent Josie. I remember writing to the hon. Lady about that case, so I would very much like the details of what has happened in that claim process.
My hon. Friend the Member for Newport East spoke movingly about the Smith family. Their dignity in the face of extraordinary grief after the loss of Colin has been nothing short of inspirational over the years, and my hon. Friend speaks very powerfully for them. I note that some constituents, including those of my hon. Friend the Member for Rugby, would prefer not to be named, and I completely understand that, but I would be very grateful for the details of their cases.
I would like to acknowledge the contribution of my hon. Friend the Member for Beckenham and Penge, who spoke about his constituent Susan and her two daughters, one of whom, Louise, is in the Public Gallery. He spoke powerfully in memory of George. I pay tribute to the work that my hon. Friend does for them. It is very meaningful that the family have come along to the debate; I am grateful for their time this afternoon.
More broadly, I want to mark all the progress that has been made. As so many right hon. and hon. Members have said, this scandal was decades in the making, and many decades passed before any form of acknowledgement or justice started to be delivered. As has been pointed out, over £2.7 billion of compensation offers have been made, and more than £2.1 billion has been paid in compensation.
Members have quite rightly sought to hold me to account today on speed of delivery, and I will come back to that in a moment, but we should acknowledge in this debate those who waited so long, especially those who are no longer with us. We owe it to them to take the time to recognise the hardships that they suffered. We must also recognise the extraordinary resolve of the infected blood community.
The topic has been debated many times in this House, and I hope that Members will have seen that I always try to make every effort to be here for the debates. I think it is important that I personally hear what right hon. and hon. Members are saying. Indeed, when my right hon. Friend the Member for Kingston upon Hull North and Cottingham (Dame Diana Johnson) brought forward her amendment to the Victims and Prisoners Bill in 2023, I supported it, while in opposition.
Driving forward this work has been a key priority for the Government. Since I became the Minister responsible for this issue, I have brought three sets of regulations before the House. Most recently, we held a public consultation that asked for feedback on proposed changes to the compensation scheme, and I updated the House in April with the changes that the Government will be putting in place. I will shortly bring before the House a fourth set of regulations to make those legislative changes, and I am very grateful to the shadow Minister for saying that his party will support those regulations.
The compensation scheme is rightly the largest that any Government have ever launched. Alongside the £1.4 billion of interim payments, over £2.1 billion has now been paid out, but I totally recognise and hear that there is still a great deal of work to be done. Let me pick up the issue of IBCA’s approach to payments. IBCA is operationally independent, and it is very important that it is, given Sir Brian Langstaff’s recommendations. That said, IBCA uses a test-and-learn approach to delivery. That means that at the start of a process, the numbers are small, but then there will be an exponential increase. That is what happened with the number of infected people who were paid towards the end of 2025.
As the House has rightly observed, the target of paying the first affected person before the end of 2025 was met, but the affected numbers are relatively small at the moment because they will go into that exponential phase. As I have said to the House before on many occasions, yes, we have what I call the backstops, which are the bulk of infected people being paid by the end of 2027 and the bulk of affected people being paid by the end of 2029, but those are not targets. I stand ready to assist IBCA to ensure that we can drive forward with delivery as quickly as possible. The reason the numbers of affected people are small is precisely because of the test-and-learn approach, and I will hold IBCA to account on the moment at which the speed of those payments increases.
I have been on more than one occasion to IBCA’s office in Newcastle. As a number of right hon. and hon. Members have reflected today, the claims managers and the staff are dedicated and diligent, and are certainly building a system that, I believe, is sympathetic. I will be frank with the House: I am troubled by some of the contributions that have mentioned the level of evidence being required, and I say that for two reasons. First, there is often an ask for evidence of things that happened a long time ago, and secondly, we know from Sir Brian Langstaff’s inquiry that there was deliberate document destruction. For those two reasons, I have repeatedly said from the Dispatch Box that I expect not just a sympathetic approach to evidence but some assistance and pointers as to where evidence, if required, might be obtained. I hope that when Members write to me about individual cases, they give me specific examples of where there have been issues regarding the level of evidence. I am more than happy to take up that issue.
I have set up a new feedback mechanism for the scheme. That was one of the things that I was expected to do, and Sir Brian Langstaff was clear that he expected that to be done. I was not prepared to just create some sort of correspondence-sifting mechanism; I wanted to create a system whereby the concerns raised went to the appropriate level. In some cases that will be IBCA’s board, but in others it will be things that have to be elevated back to the Cabinet Office and to me. I expect to publish the first quarterly summary of issues raised through the mechanism in early July, but I will continue to push forward to ensure that it is working in the way it should and that victims have a voice going forward.
I will try and go through the different themes.
I pay tribute to the work of my right hon. Friend to move things forward. When he receives representations from the infected and affected community, how does he intend to put those into effect and change the compensation process? That is what they approach us about and we are all raising a number of those representations, asking for changes in the regulations he is about to lay before the House.
It depends on the nature of the change. For example, on the issue being described as burden of proof, I have already repeatedly mentioned from the Dispatch Box the sympathetic approach that I expect. It depends on the specific issue being raised. In some cases, they will be things that I expect IBCA’s board, rather than me as a Minister, to deal with. The point is that I want the issue raised to go to the appropriate level to ensure that it has an appropriate response. We will see how the mechanism works, and I am sure that my hon. Friend, through the all-party parliamentary group, will start to see people having experience of it. I will be interested to hear that feedback.
Unethical research has been raised across the House today. I do not think that any amount of money could ever make up for the experimentation on children that happened as a consequence of this scandal. The right hon. Member for East Hampshire, who represents Treloar’s, will be aware from his constituents of how frankly heinous the situation was.
When I became the responsible Minister, I accepted a recommendation—it was one of the first things across my desk—from Sir Robert Francis, who had conducted a review of the scheme. He recommended that there should be an amount of money that does not in any sense reflect the totality of the harm done, but that is there, as an amount within a much larger amount, as a marker of what was particularly heinous in the experimentation. That is the context behind the unethical research awards; they were lower sums than those before the House today, but I accepted the recommendation because I thought it important to have that in the scheme. The amounts that we see are not the totality of the settlement.
The right hon. Member for New Forest East asked about the differences between the compensation awarded to living and deceased infected people. I recognise that financial loss awards may be lower for awards to estates— I think that was his point—but that is because the future financial losses for estate claims are paid to the infected person’s dependants rather than the estate.
A point was made about psychiatric disorders. The Government have certainly been looking at how to make the severe health condition award for psychiatric disorders more accessible, with a less intrusive ask for evidence. We examined using types of evidence—these are such difficult issues—such as suicide to qualify for the award, but in my view imposing a retraumatising requirement would place an unconscionable burden on families who have already been through decades of mental suffering. When designing any compensation scheme, the Government have to ensure that no mechanism or award criterion inadvertently creates a risk to potentially vulnerable people. Instead, the new special category mechanism of a severe health condition award allows applicants to access more compensation for mental health problems that they have experienced, in excess of the core route—without, I repeat, an unreasonable ask for evidence.
A really important point was raised about the recognition of carers. The care award is provided to a person making a claim as an infected person or as the representative of a deceased infected person’s estate. A living infected person claiming compensation can, however, instruct IBCA to pay all or some of the award to an eligible affected person who provided them with care.
The right hon. Member for East Hampshire asked about criminal prosecutions. The House will realise that it is not for me as a Minister, or indeed for any other Minister, to make prosecutorial decisions—that is rightly independent of Government and is a matter for the Crown Prosecution Service—but I thought that the House would welcome an update.
Given the nationwide scope of the independent infected blood inquiry, and in the absence of a clear lead police force, the National Police Chiefs’ Council has engaged experienced senior investigators to conduct a review of the available evidence. They have been assessing extensive information provided by the inquiry, which has been supporting the investigation fully, and legal advice to look at next steps.
In March, I wrote to the National Police Chiefs’ Council to reaffirm my and the Government’s commitment to make any and all relevant information around the infected blood inquiry available to the prosecuting authorities, where requested, so that an informed decision could be based on the evidence. In May, as the right hon. Member for East Hampshire may already be aware, the National Police Chiefs’ Council published a statement that its initial review, which focused on events at Treloar’s, did not provide sufficient information for a viable criminal investigation. However, terms of reference are now being developed for a further review of the remaining chapters. Decisions on that investigation and the timeframe are obviously for the NPCC, but the House should be assured that I stand ready to assist in providing evidence in any way possible.
My hon. Friend the Member for Llanelli asked about the eligibility of affected estates. It is right that following the inquiry’s additional report, we have amended the scheme so that the estate of a deceased affected person is now eligible to claim compensation where an affected person passed away between 21 May 2024 and 31 March 2031. The recommendation from Sir Brian Langstaff was a cut-off of 31 December 2029, but we have actually extended that a couple of years further.
The issue of interferon was raised by a number of Members. The Government have accepted the inquiry’s recommendation to introduce a new higher level award for infected people who were treated with interferon. The new level 2b core compensation award will provide more financial loss and care compensation for the full two years after treatment and will be available to anyone treated with interferon who would otherwise be receiving a level 2 award. I did not recognise the point made by the hon. Member for East Grinstead and Uckfield about a 12-week minimum, but when I look at the detail of the case, I can look into that.
The point being made to me was twofold. The first point about evidence and transparency was made by the hon. Member for Perth and Kinross-shire. A technical expert group gives advice to Government. One of the things I have said is that we need transparency on its members, its minutes and its evidence, and my attitude is that we should publish it so that it is out there and people can see it. The second point about the long-term impact was raised by a couple of Members. If someone has experienced long-term impacts following interferon treatment that have impacted on their ability to work or their need for care, they may be eligible for additional compensation through the special category mechanism severe health condition award. That ensures that those with long-term side effects receive additional financial support.
The hon. Member for Rutland and Stamford (Alicia Kearns), who is no longer in her place, raised a point about inheritance tax and secondary transfers. That is a matter that I hope I have rectified and that was announced in the Budget last year, but I will certainly follow up with her on the specific case that she raised.
A number of Members mentioned the duty of candour. The House should be in no doubt about my commitment to the Hillsborough law and the duty of candour. I believe that we are well over 90% of the way there. As the House has been told in previous updates, the outstanding issue on the Hillsborough law is how exactly we strike that balance between a duty of candour and the work of the security and intelligence services, but I am very confident that we can resolve that satisfactorily. I look forward to driving forward the work on the Hillsborough law, which will be a landmark moment in terms of the legal duty that we are talking about in this House.
When we think of so many of the scandals that have come before us, even in my 11 years as a Member of Parliament, they all have a similarity. Sir Brian Langstaff said in his inquiry that it was not really about specific people who were involved in a conspiracy—if that was the case, we could identify them and they could be prosecuted. He said it was about a culture of institutional defensiveness—that, actually, what people do when terrible things happen is to protect either their own reputation or the reputation of the institution in which they serve. We will have a landmark moment when that law goes on the statute book, but beyond that there will be a need to drive cultural change to ensure that terrible scandals such as this do not happen in the future.
This compensation scheme exists because it is absolutely the right thing to do, but it exists because of the way that campaigners over many, many years continued in the face of state denial to drive this forward because of their suffering and that of their families. We cannot in this House change the past, but we certainly can mark it and remember it. It was a solemn privilege for me to attend the service of remembrance organised by the Infected Blood Memorial Committee in St Paul’s cathedral last month. It was designed by the community, for the community, and it was a profoundly moving moment, and I was privileged to speak to the members of the committee, very ably chaired by Clive Smith. They are continuing their important work towards a national memorial, and I know they take a very open approach to seeking the community’s views at every opportunity.
For me, that service of remembrance underscored the importance of getting this right. As my hon. Friend the Member for Beckenham and Penge pointed out, it is absolutely crucial to get the compensation scheme right, but it is one of a number of Sir Brian Langstaff’s recommendations. We owe it collectively as a House to get that right for future generations, to ensure that nothing like this can happen again. I believe that is the very least we can do.