Endometriosis and Polycystic Ovary Syndrome

David Mundell Excerpts
Monday 1st November 2021

(3 years ago)

Westminster Hall
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David Mundell Portrait David Mundell (in the Chair)
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Before we begin, I encourage Members to wear masks when they are not speaking. This is in line with the current Government guidance and that of the House of Commons Commission. I remind Members that they are asked by the House to have a covid lateral flow test twice a week if coming on to the parliamentary estate. This can be done either at the testing centre in the House or at home. Please also give each other and members of staff space when seated and when entering and leaving the room.

I am sure that most Members will be aware that this debate was originally scheduled to take place on 18 October. It was delayed so that Members could pay tribute to our colleague and friend, Sir David Amess. His loss was felt acutely across the House, but it is a testament to him that his loss will have touched many well beyond these walls. I know it will have been particularly felt by many of those watching or with an interest in today’s debate, as Sir David was a champion of those living with endometriosis, having chaired the all-party parliamentary group on endometriosis since its inception in 2018. He was a crusader for the cause long before that, after a constituent contacted him about their struggles with the condition. His signature passion, charm and humour will be sorely missed from today’s debate, but I am confident that Members here will make contributions that do justice to a cause he cared so much about and, in so doing, pay tribute to him.

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Taiwo Owatemi Portrait Taiwo Owatemi
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I thank the hon. Member for raising that important point, which absolutely highlights that need.

The Government urgently need to invest in research projects and create more streamlined diagnostic practice. That must start with better GP training, as hon. Members have highlighted, so that GPs no longer inadvertently gaslight or misdiagnose anyone with endometriosis or PCOS. It must extend to more accurate and less invasive screening technology to confirm the diagnosis. Once women are finally diagnosed, there is currently no targeted treatment for endometriosis—none at all. Similarly, there is no drug or treatment on the UK market that has evidence-based approval to treat PCOS. We need funding for this research, as well as facilities to carry it out.

There is only one dedicated PCOS clinic in the whole of the UK, and I am proud to say that the clinic is in my own city of Coventry. I visited the clinic recently and spoke with the head researcher, Professor Harpal Randeva, and their specialist nurse, Danielle Bate. They stressed the importance of treating PCOS as a disease in need of its own funding body. Currently, the limited funding for PCOS and endometriosis alike is attached to funding bundles for several other diseases, as is clear from the Government’s response to the petition. We should not be attaching research funding for these conditions as addendums to general funds for fertility diseases or other endocrine diseases. Endometriosis and PCOS impact millions of women in the UK. They are not afterthoughts, and we cannot continue to treat them as such in funding discourse. We should encourage funding charities to set up independent boards for PCOS and endometriosis.

Earlier this year, a Department of Health and Social Care consultation acknowledged the importance of improving research into women’s health. The strategy for that improvement is, according to the Government, now in development, and it would be great to hear from the Minister what progress is being made. I also ask the Minister whether the strategy will commit to establishing independent well-supported funding bodies for research into both endometriosis and PCOS, which are so desperately and deservingly needed.

I will end my remarks by thanking all the brave women suffering from endometriosis or PCOS who continue to fight for increased resources. Without their remarkable self-advocacy and will to advocate for each other, I am certain that we would not be here today. I hope the debate will provide an opportunity for the Government to listen and act.

David Mundell Portrait David Mundell (in the Chair)
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As a lot of Members want to speak, I ask Members to stick to about three and a half minutes so that everybody who wants to speak gets the opportunity to do so. I call Emma Hardy, and then Jackie Doyle-Price.

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Jackie Doyle-Price Portrait Jackie Doyle-Price (Thurrock) (Con)
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May I associate myself with your words, Mr Mundell, and with the words of the two previous speakers in regard to Sir David Amess, who was a great personal friend of mine? I was so happy to be able to work with him on this cause. He brought to it his characteristic passion and commitment, and frankly, he was good at keeping us all on the ball. We will miss his leadership, but we will endeavour to make sure that the points he campaigned for are delivered. As has been mentioned, he took up this issue when he was visited by his constituent, Carla Cressy. The cause is one of the main beneficiaries from the sales of his book, “Ayes & Ears”, which is available in all good bookshops; I encourage everyone to make their donation there.

As the hon. Member for Kingston upon Hull West and Hessle (Emma Hardy) has outlined, Sir David led an inquiry for the all-party group on endometriosis. As many as 11,000 members of the public got involved in it, and that is quite an achievement for an all-party group. It is a testament to the fact that he always used good publicity to draw attention to the issues that he really cared about.

For a condition that affects 10% of women, there has been staggeringly little focus on endometriosis. If something affected 10% of men, would we be having this kind of debate? I think not. We really owe it to all the women who suffer for years with the most debilitating and chronic pain and disability because of this condition. I am grateful to the hon. Member for Coventry North West (Taiwo Owatemi) for mentioning the obsessive focus on fertility, because the truth of the matter is that women who suffer from endometriosis start to suffer from it the moment they start their periods.

We could do so much if we had a greater understanding of what a healthy period is. We are all brought up to think, “This is your lot in life; it’s all quite normal.” We might be struggling with the most debilitating pain and thinking that everybody else is going through the same thing, when in fact they are not and we are suffering from very unhealthy periods. We need much more understanding not just in the medical profession, but among girls, so they can be more alive to problems and not wait eight years for a diagnosis. As the hon. Lady said, endometriosis is often diagnosed only when women are trying to get pregnant, by which time so much damage might have been done. If the condition had been diagnosed earlier, treatment could have been given to alleviate it.

We often talk about funding, and one of the biggest challenges in the NHS is not so much the quantum of funding but whether we spend it wisely. If we gave people tools to look after their conditions and enable them to know when they are suffering from ill health, we would reduce the amount that the NHS has to spend on the condition. It is a no-brainer. I am pleased to see the Minister in her place. She has had to listen to me bang on about these issues many times—I never miss an opportunity to beat Ministers over the head when it comes to women’s health—but I know she gets it.

We need to think properly about the wellbeing of women, and the impact that their biology and gynaecology have on wellbeing, and we must think beyond childbirth and pregnancy. Only last year Baroness Cumberlege produced her report “First Do No Harm”, one of the headline conclusions of which was that women are not heard. When women seek medical advice, they are belittled, diminished, shunted along and told, “This is all very normal.” That must stop, because women are important. Women will have healthy pregnancies if they get support earlier. We will all be better off, because we will have less work absence, a more productive economy and less demand on the NHS. It is a no-brainer. I ask the Minister for more research into endometriosis and more awareness so that people can be diagnosed earlier.

David Mundell Portrait David Mundell (in the Chair)
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I will now impose a formal time limit of three and a half minutes on speeches.

Hannah Bardell Portrait Hannah Bardell (Livingston) (SNP)
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It is a pleasure and an honour to speak in this debate. As Members before me have done, I pay huge tribute to and give thanks for the work of Sir David Amess. He worked tirelessly to raise awareness and improve services for those affected by endometriosis. His loss is felt keenly across the House and among those involved in the causes that he fought so hard for, such as endometriosis. It will be a true honour and a privilege to follow in his footsteps with the hon. Member for Kingston upon Hull West and Hessle (Emma Hardy). We decided that it was important to make a cross-party effort to take on Sir David’s role, because that was the spirit in which he approached the issue. In fact, the last conversation I ever had with him was about how we could ensure that the report did not sit and gather dust, and how we could include and encourage local groups in our constituencies. I know we all have many of them in our constituencies.

I want to take a moment to mention and pay tribute to Endo Warriors in West Lothian, where Candice and Claire are tireless campaigners—that is why the fourth largest number of signatures to this petition came from my constituency. I also pay tribute to Endo Bonds, which works tirelessly across Scotland, and to Andrew Horne and Emma Cox at Endometriosis UK. There are many people in this space and a lot of sufferers, many of whom I have met. When we did that report, I took evidence from sufferers in Scotland. The stories were truly heartbreaking. That was in the middle of the pandemic, when those who suffer from endometriosis were having to wait longer than ever to get treatment and diagnosis. The number of Members who have taken an interest and want to speak in this debate shows that so much more time, effort, money and research must be dedicated to both endometriosis and PCOS, which devastates and blights the lives of women and sufferers across the UK.

As we know, endometriosis is a gynaecological condition, but many do not know that it is as common as diabetes. It affects one in 10 women and those assigned female at birth, thus affecting millions across the UK. It is a condition with a wide spectrum of symptoms. I have friends who suffer from it, and it has such a profound impact on their lives. As other hon. Members have said, the response of some medical professionals simply needs to change. We need ongoing medical intervention and research to improve sufferers’ lives.

From an economic perspective, endometriosis costs the UK £8.2 billion per year through treatment, healthcare costs and the impact on work and employment. This is not necessarily about the financial impact, however; it is about the impact on the lives of those who suffer. Despite the prevalence and impact of endometriosis, there is very little research funding for it or widespread awareness about it, unlike with cancer or diabetes. Yet it is ranked by the NHS as one of the top 20 conditions involving pain so disabling that it can prevent sufferers from doing daily tasks. That list includes well-researched and well-funded conditions such as heart attacks, kidney stones, appendicitis and arthritis, to name a few.

Men have held positions of power for centuries and, as the hon. Member for Thurrock (Jackie Doyle-Price) said, if the sufferers were men, we would probably have a solution and a cure by now. The fact that Sir David was so determined to fight, in such an inclusive way, for the women who suffer from the condition is a reminder to us all of the need to take that work forward.

In 2018, only 2.1% of publicly funded research in the UK went on reproductive and menstrual health, down from 4.5% in 2014. In Scotland, we have committed to reducing the time taken to obtain a diagnosis from eight and a half years to 12 months during the life of the next Parliament—that is an ambitious target. So often, the nations of the UK are played off against each other. Of course, this is an area where we should compete, but we also need to work together so that we can share ideas, fresh thinking and opportunities. That is what the hon. Member for Kingston upon Hull West and Hessle and I will do in the all-party parliamentary group. We look forward to working with Members and having many more debates on endometriosis and PCOS so that sufferers do not continue to suffer, as they have done for so long.

David Mundell Portrait David Mundell (in the Chair)
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We really need to stick to the time if everyone is to have an opportunity to speak. I call Robert Largan.

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Bell Ribeiro-Addy Portrait Bell Ribeiro-Addy (Streatham) (Lab)
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It is a pleasure to serve under your chairmanship, Mr Mundell. I also want to pay tribute to Sir David Amess because, on coming into Parliament, I found it very impressive that for once a man was taking up an issue that affected so many women. I know it is usually the women in the House who put these issues forward, so we definitely have to pay tribute to Sir David Amess for the feminist that he was in that respect.

Even though the condition is so common and the impacts are so devastating, we have heard time and again that research is woefully lacking. PCOS is definitely one of the leading causes of fertility problems in women, and endometriosis can be as well. It can also have a devastating impact on someone’s self-esteem, and if not properly managed, it can lead to additional health problems later on.

I know this because I have endometriosis. My own experience began when I was young, and I did not think it was a particular issue. I always had extremely painful periods, and that was just life. With all these things that have to do with women, we are told, “Once you have a baby, you’ll be fine,” and on being diagnosed with endometriosis or potentially having it, I was told, “Once you have a baby, you’ll be fine.”

I remember that when things began to get bad one night in 2017, I was sitting up in the office of my right hon. Friend the Member for Hackney North and Stoke Newington (Ms Abbott), for whom I worked. I began to feel twinges while I was working late, and things got so bad—the piercing pain got so bad in my side—that I had hobble over the river to St Thomas’s Hospital. I was in so much pain that I was kept in for the next couple of days.

I then began waiting for an appointment from my GP. I had to wait so long for it that I called up and asked, and they were confused about what they were meant to do next. It was only after many months that I was able to get that appointment, and I then had to wait for the next appointment time, as we often do. That was a longer process, which went on for another two years.

Throughout that time, I would have pain every day, as I do now, and I would have to wake up quite late, because I would have pain mostly in the night-time. For the majority of women, their bosses are not so understanding. However, thanks to my right hon. Friend, I was able to make it work with my times by coming into work slightly later and working slightly later to work around my pain. How many employers would be that understanding?

Eventually, I was given a date for a laparoscopy in May 2019—I will not mention the hospital, because it will be hearing from me—and it went so badly it was unbelievable. I was in and out of there so quickly: I had the procedure, those involved woke me up and told me they had not found anything, and they said I would come to soon and would go home. I was in so much pain that I could not walk, and instead of treating me any further, they said there was nothing they could do for me, put me in a wheelchair—still in the gown I had had on for the operation, with blood on—and wheeled me round to A&E.

Obviously, those in A&E were absolutely fuming, because the staff are not meant to do that, and they sent me back up to the gynaecological ward. Again, I was gaslighted there, as somebody told me that I would have to think about what I was doing because I clearly just had some sort of muscle pain. I tell this story today, with not much time, because I cannot tell you how many women have experienced that.

My diagnosis took five years. Thankfully, I went to King’s College Hospital, where I was born. I probably should have gone there first; I turned out okay, which shows that it is a good hospital. It was able to treat my condition, and I instantaneously felt the relief of having the endometriosis removed, as much as that is possible. But it grows back, so I am now on the list, with other women, waiting for further treatment. We cannot keep women waiting this long.

I can say from experience that the amount of pain you go through really does affect you every day, so I say to Members right across the House that if they ever see me looking at them slightly strangely, unless they have said anything particularly obnoxious, it may just be because I am in a lot of pain. Thank you very much, Mr Mundell, for allowing me—oh no, I still have some more time.

David Mundell Portrait David Mundell (in the Chair)
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No, the clock is going the other way.

Bell Ribeiro-Addy Portrait Bell Ribeiro-Addy
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In that case, thank you.

David Mundell Portrait David Mundell (in the Chair)
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I thank the hon. Member for her contribution.

John Lamont Portrait John Lamont (Berwickshire, Roxburgh and Selkirk) (Con)
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It is a pleasure to serve with you in the Chair this afternoon, Mr Mundell. I associate myself with your remarks and those of others during this debate about our colleague Sir David Amess, and my thoughts and prayers are with his wife and kids at this very difficult time.

I am pleased to participate in this debate today in order to recognise publicly the great work that Endo Borders, set up by Tao McCready—who lives in my constituency—is doing on behalf of women who suffer from this terrible condition. Mr Mundell, as the other Member of Parliament for the Scottish borders, I know that you are familiar with that group and the important work it is doing in our area. Tao was diagnosed with endometriosis in 2017, following multiple misdiagnoses, and went on to set up Endo Borders in 2019, giving up a career to focus on supporting the local community and raising awareness of the condition. Not only is it a fantastic group for women in the Scottish borders; it also reaches out to women across the country who are suffering from endometriosis. I had the privilege of attending a recent meeting of Endo Borders, and was really impressed by the courage of the women who were sharing their stories.

Endo affects one in 10 women in the United Kingdom, but despite its prevalence not much is known about it and relatively few people have heard of it—I certainly had not until I met that group. There is currently no cure for endo, and its exact cause is unknown. In Scotland, the average diagnosis time is eight years. The difficulty is that there is not a specific list of symptoms for endo, as the condition presents differently in different women. Research by Endometriosis UK found that 54% of the UK population were unaware of the condition, and 45% of women were unaware of its symptoms. To put that in perspective, a far greater proportion of the population has heard of diabetes, and endometriosis affects a similar number of people.

What can be done to help women suffering from this condition, particularly those who live in my constituency in Scotland? First, clearly awareness about endometriosis needs to be raised, and it is crucial to ensure that Scotland comes into line with England by providing menstrual health education at school. Without learning about the menstrual cycle at a young age, conditions such as endo will continue to go unrecognised, marginalised and misunderstood.

Secondly, although there are three specialist centres for endo in Scotland, the all-party parliamentary group on endometriosis found that because those services have been commissioned at a local level, it can sometimes be difficult to get referrals to the different health board areas in which those services are based. It cannot just be a postcode lottery. My colleague Rachael Hamilton MSP recently called on the Scottish Government to present a credible plan for how to reduce their own waiting time target for diagnosing endometriosis from eight years to less than one year, and I eagerly await the publication of that plan.

Finally, I am absolutely clear that more can and should be done to improve research into this condition that affects so many women and the way they live their daily lives. I therefore support calls to ensure that funding is directed towards new research into the diagnosis and treatment of this terrible illness, ultimately focusing on a cure.

To conclude, I thank the petitioners for securing this important debate, and the team at Endo Borders for the invaluable work they do to support women suffering from this terrible condition.

David Mundell Portrait David Mundell (in the Chair)
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I share your praise for Tao McCready and the work of Endo Borders.

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Christian Wakeford Portrait Christian Wakeford (Bury South) (Con)
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It is a pleasure to serve under your chairmanship, Mr Mundell. I thank the hon. Member for Coventry North West (Taiwo Owatemi) for securing and leading this important debate. More importantly, I also thank the hon. Member for Streatham (Bell Ribeiro-Addy) for her own personal story, which I found very moving. In common with everyone else in the Chamber, it would be remiss of me not to mention Sir David Amess and the very important work that he did as chair of the all-party parliamentary group.

As we have heard, endo affects one in 10 women in the UK. It is a common, chronic, complex and fluctuating condition that brings about unimaginable pain. Like many Members here, I first found out about endo shortly after I was elected; I had never heard of it before. It was in a constituency surgery, where Katie came to meet me. She talked about her debilitating pain, the impact on her mental health and her endo sisters who were taking their own lives because of the pain while awaiting treatment. She described the gaslighting she had to go through—“It’s just a bad period.” That is just the norm for anyone suffering from endo, and we should all be ashamed of that.

It is clear from today’s debate, from previous debates and from constituents across the UK that, despite the severity of the condition, it is still taboo to talk about women’s health and gynaecological conditions. I remember speaking in last year’s debate on the Cumberlege report. It is a damning and concerning fact that we talk about and listen to women’s health issues only when men talk about them. Many in this Chamber have been giving their own personal stories, and I fear that we are at risk of still not truly understanding the issue because men are not talking about it. We spend so much more money on erectile dysfunction than on endometriosis—that shows where our priorities are.

Workplace attitudes often do not help. We have heard the stories over and over again in the House when it comes to endo: women are often not believed or supported by doctors, employers or even loved ones. It is shocking that in 21st-century Britain women are still being dismissed as lazy, unreliable, dishonest and a nuisance in the workplace. In the 2020 BBC survey on endo, almost all the women responded by saying that they felt that their careers had been hampered by having the disease.

If appropriate workplace support for employees suffering from endo and polycystic ovary syndrome is to be obtained, we need business leaders and managers to be equipped with the necessary information and knowledge to be compassionate when dealing with these cases. We should begin by encouraging employers to become endo-friendly, making sure that there is access to support for all those who suffer from it.

The current definition has been highlighted by the hon. Member for Kingston upon Hull West and Hessle (Emma Hardy). Unfortunately, endo sisters do not qualify for statutory sick pay because the condition is long-lasting and chronic. That is something we can quite easily and quickly fix. We have already heard that before covid it took, on average, eight years to be diagnosed with endometriosis. That backlog will only have become worse. We need to factor in GPs’ ability to understand the condition better. We can do so much more, and we have a duty to do so.

In conclusion, endometriosis costs the UK £8.2 billion per year through treatment, healthcare costs and the impact on work and employment. We need to deal with this, and not just from a financial perspective but from a moral one.

David Mundell Portrait David Mundell (in the Chair)
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I am going to call Barbara Keeley and then I will ask Alex Davies-Jones to make the final Back-Bench contribution.

Baroness Keeley Portrait Barbara Keeley (Worsley and Eccles South) (Lab)
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It is a pleasure to speak in the debate with you in the Chair, Mr Mundell. I thank my hon. Friend the Member for Coventry North West (Taiwo Owatemi) for the way she opened this important debate.

Endometriosis and polycystic ovary syndrome affect one in 10 women and those assigned female at birth in the UK. As we have discussed, that means that over 1.5 million individuals are enduring a painful condition that can affect every aspect of their life. It is staggering that these conditions are so under-recognised. Common symptoms for a diagnosis include severe pain and heavy bleeding, but for those who have these conditions, that description barely scratches the surface of the reality of living with such a severe gynaecological disease.

One constituent wrote to me with a powerful testimony about her experience of living with polycystic ovary syndrome. She told me of the wide range of debilitating symptoms of her condition. She felt lacking in confidence and scared for her health and future. She felt that no one understood her, and she felt alone and overwhelmed by the condition. Constituents who have contacted me about endometriosis or PCOS report significant diagnosis times of between four and 14 years. This is an unacceptable amount of time for patients to wait while not getting the right care or even having a name for the condition that is causing their symptoms.

I had endometriosis and it had a big impact on my life. I was not diagnosed until the age of 32. I had multiple surgical interventions over more than 10 years. Surgery, as we have heard from my hon. Friend the Member for Streatham (Bell Ribeiro-Addy), does not cure endometriosis; it just comes back and back. Delays in diagnosing and managing endometriosis and PCOS can affect quality of life. Worse than the impact on quality of life, they result in a dangerous progression of the disease.

We have all touched on the work of the all-party parliamentary group on endometriosis, and I join Members in paying tribute to the work of Sir David Amess as its chair. There was an excellent report produced following an inquiry. I recommend that report and its 34 recommendations to the Minister, particularly those on investment in further research into gynaecological diseases, so that the waiting time for diagnosis can be reduced.

To these recommendations, we must now add the need to address the gynaecology backlog made worse by the pandemic. NHS England data indicate that the waiting list for gynaecology services has seen the largest increase of all the specialties since the pandemic began. Endometriosis UK’s recent survey showed that four fifths of patients with confirmed or suspected endometriosis had had NHS appointments for their condition postponed or cancelled due to the pandemic, and a third had not been given a new appointment date.

Sarah Lambrechts told the Health and Social Care Committee about her experience of having surgery for endometriosis delayed due to the backlog caused by the pandemic. The delay is, in her case, going to be for 18 months to two years. She said:

“I am 25 years old. For the next 18 months or two years—however long—I cannot plan my life. I cannot plan my career progression. I cannot plan to have a family. I cannot take care of myself some days.”

It is very sad that Sarah and thousands of others have experienced such an impact from the disease. We need urgent action so that those who have lived with the debilitating symptoms of endometriosis and PCOS for so long are not suffering because of a long wait for treatment caused by the backlog in NHS care. We owe it to those who have lived with these symptoms, often for many years, as I did, to reduce diagnosis time, improve treatments and, eventually, find a cure.

David Mundell Portrait David Mundell (in the Chair)
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I now call Alex Davies-Jones, who will not be our last Back-Bench contributor. I did not realise that Gavin Robinson wanted to speak. We will be able to squeeze him in, I think.

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Kirsten Oswald Portrait Kirsten Oswald
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My hon. Friend is right: we have to listen to women’s experiences, and I think the hon. Member for Bury South (Christian Wakeford) referenced that too. That really matters here. I never imagined talking about my experience of menstrual irregularity, ranging from nothing at all to a full, continuous six months of periods, which was both debilitating and, frankly, somewhat concerning.

It is fair to say that these are the kind of challenges that women would really rather do without. We heard about the irregular nature of fertility, including irregular ovulation, or no ovulation, which is an issue for women with PCOS, who of course probably do not know that until they find out that they are not pregnant when they are trying to be; reduced fertility—difficulty becoming pregnant—can be the reason why many women become aware that they have PCOS. That was certainly my experience, and it explained many other things. I may have a wee glimmer of light in what is possibly a quite depressing contribution: I have two amazing sons thanks to just a wee bit of PCOS-related medical assistance.

I can tell hon. Members, as we heard so eloquently from others, that women with PCOS can have a difficult time in many ways, particularly with issues such as hirsutism—unwanted facial or bodily hair. I cannot emphasise strongly enough how women are influenced by this. Again, there is no solution. Imagine the impact on the self-esteem of young women in particular. However, PCOS does not only affect young women, and young women are not alone in facing a severe impact on their life from these kinds of issues. None of us wants to sprout a beard, feel unable to go swimming or have to cover up from head to toe. Noting symptoms as oily skin and acne do not really cover the magnitude of those either.

PCOS is often assumed to related only to fertility, and that is a big issue, but all these other issues affect how the world sees us and how we present ourselves to the world. Thinning hair—male pattern baldness, basically —2014 is crushing to have to deal with. Being overweight is so common among PCOS-affected women because our bodies metabolise differently. For some women, that has a significant impact on both their health and on how they interact with the world. There are also depressions and mood changes. If I went through everything, we would be here all day. So many things have a connection to PCOS but, again, we cannot say exactly what or why because the research is not there.

As a younger woman with no idea of where to go for support, it was heartening to hear of women, such as the hon. Member for Streatham, speak about communities supporting one another. That is really helpful when diagnosis is not straightforward or where the issues are not resolvable, but we need to do better than that DIY approach. For young women and teenagers, it is rubbish in the age of Instagram to have to deal with unexplained weight gain or hair growing where it should not, and worries about the future. As for menopause, I have no idea what it will mean, but I would certainly like to know. When I looked into aging women, the best I could establish is that it is thought to be a medical black hole. That is simply not good enough, and that is why research is needed.

To conclude, I thank all the women who have been in touch with me about this matter—so many of them. I thank Verity PCOS and my constituent Anji Sandhu, who is in the process of setting up a group to raise awareness of PCOS and its challenges so that we can talk about it more. That will help because so many women are affected and rely on us here to take it seriously. At the moment it feels to them like a big, dirty secret, and that is what needs to stop. That is why we need research, and I hope that the Minister has something positive to say on that.

David Mundell Portrait David Mundell (in the Chair)
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Before I call the shadow Minister, Alex Norris, I will say that I am sure he and the Minister will want to help me allow the hon. Member for Coventry North West a couple of minutes to wind up at the end of the debate.

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Taiwo Owatemi Portrait Taiwo Owatemi
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I thank all hon. Members who have spoken so passionately in this important debate. I look forward to hearing from the Government about their strategy to make funding for endometriosis and PCOS more readily available, and about how their strategy to improve research on women’s health will establish well-supported and dedicated funding bodies for both endometriosis and PCOS research.

I will highlight some of the many important remarks made during the debate. My hon. Friend the Member for Kingston upon Hull West and Hessle (Emma Hardy) underlined the fact that we do not know what causes endometriosis and that we need dedicated funding to determine the cause of the condition. I completely agree with the hon. Member for Thurrock (Jackie Doyle-Price) on the crucial point about the need to destigmatise and demystify many of the symptoms associated with endometriosis and PCOS.

Finally, I thank my hon. Friends the Members for Streatham (Bell Ribeiro-Addy) and for Worsley and Eccles South (Barbara Keeley), as well as the hon. Member for East Renfrewshire (Kirsten Oswald), for their powerful stories, which illustrated better than statistics or figures ever could the need to support women who suffer from these conditions. Simply put, we need more funding for research into endometriosis and PCOS so that we can combat both. I thank every Member who participated in the debate.

David Mundell Portrait David Mundell (in the Chair)
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Although I am sure that Mr Norris was correct in saying that Sir David would have been pleased with the terms of the debate, as the Minister said, I am sure that Sir David would also have been holding her feet to the fire afterwards.

Question put and agreed to.

Resolved,

That this House has considered e-petition 328570, relating to research into endometriosis and polycystic ovary syndrome.