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Written Question
Hospices: North West
Thursday 14th March 2024

Asked by: Lisa Nandy (Labour - Wigan)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of her Department's funding for (a) hospices in the North West and (b) Wigan & Leigh Hospice.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service-funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.

The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices, including Wigan and Leigh Hospice, and many other hospices in the North West and the rest of England, are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.


Written Question
Hospices: Children
Tuesday 12th March 2024

Asked by: Daisy Cooper (Liberal Democrat - St Albans)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how she plans to distribute funding through the Children's Hospice Grant in the 2024-25 financial year.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.

The distribution of the 2024/25 funding to children’s hospices will be via integrated care boards (ICBs), in line with the wider move to a devolved National Health Service, in which ICBs are best placed to meet the health and care needs of their local population.

The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.


Written Question
Hospices: Standards
Tuesday 12th March 2024

Asked by: Rachael Maskell (Labour (Co-op) - York Central)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help ensure that people receive a good standard of hospice care if they reside in an area covered by an integrated care board that provides less than the national average level of funding for hospices.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

Whilst the majority of palliative and end of life care is provided by National Health Service staff and services, we recognise the vital part that voluntary sector organisations, including hospices, also play in providing support to people, and their families, at end of life. Most hospices are charitable, independent organisations who receive some statutory funding for providing NHS services. Charitable hospices are autonomous organisations that provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.

In July 2022, NHS England published statutory guidance for commissioners on palliative and end of life care, setting out the considerations required for integrated care boards (ICBs), in order to meet their legal duties. This can be found at the following link:

https://www.england.nhs.uk/publication/palliative-and-end-of-life-care-statutory-guidance-for-integrated-care-boards-icbs/

NHS England has also published service specifications, for both adults and children and young people, which provide guidance on undertaking assessments to enable high-quality commissioning of services that meet both the population need and preferences. These can be found at the following link:

https://www.england.nhs.uk/publication/service-specifications-for-palliative-and-end-of-life-care-adults/

https://www.england.nhs.uk/publication/service-specifications-for-palliative-and-end-of-life-care-children-and-young-people-cyp/

The Department is in ongoing discussions with NHS England about the oversight and accountability of NHS palliative and end of life care commissioning. We remain committed to improving patient access to, and quality of, palliative and end of life care, and are working with NHS England to reduce disparities in the standard of palliative and end of life care across the country.

From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.


Written Question
Hospices: Children
Thursday 7th March 2024

Asked by: Karin Smyth (Labour - Bristol South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how she plans to distribute the £25 million committed to children’s hospices in 2024-25.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.

The distribution of the 2024/25 funding to children’s hospices will be via integrated care boards (ICBs), in line with the wider move to a devolved National Health Service, in which ICBs are best placed to meet the health and care needs of their local population.


Written Question
Hospices: Finance
Wednesday 6th March 2024

Asked by: Peter Gibson (Conservative - Darlington)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether she (a) has made an assessment of the potential implications for her policies of the report of the APPG for Hospice and End of Life care entitled Government funding for hospices, published in January 2024 and (b) plans to take steps in response to the findings in that report.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

The Department is already taking actions which will address many of the recommendations of the All-Party Parliamentary Group on Hospice and End of Life Care report.

As part of the Health and Care Act 2022, the Government added palliative care services to the list of services that an integrated care board (ICB) must commission, which will ensure a more consistent national approach and support commissioners in prioritising palliative and end of life care.

In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs in order to meet their legal duties. The guidance makes specific reference to commissioners defining how their services will meet population needs 24 hours a day, seven days a week.

The majority of palliative and end of life care is provided by National Health Service staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.

NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities and ensure that funding is distributed fairly, based on prevalence.

Additionally, as of April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. These meetings will provide an additional mechanism for supporting ICBs to continue to improve palliative and end of life care for their local population.

The Government have also provided additional funding to help deliver the one-off payments to eligible staff employed by non-NHS organisations, who employ their staff on dynamically linked Agenda for Change contracts. Organisations were able to apply for the funding and needed to show they had been negatively financially impacted by the pay deal, and that their staff are employed on dynamically linked Agenda for Change contracts.


Written Question
Hospices: Children
Wednesday 6th March 2024

Asked by: Peter Gibson (Conservative - Darlington)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether she has made an assessment of the potential merits of guaranteeing the children's hospice block grant for three years.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

No specific assessment has been made of the potential merits of ring-fencing the funding for children’s hospices, or of the potential merits of guaranteeing the children’s hospice funding for three years. Details of 2025/26 funding will, however, be confirmed in due course.

We recognise the vital part that voluntary sector organisations, including hospices, play in the availability and delivery of high-quality, personalised palliative and end of life care for people of all ages, and their loved ones.

As made clear in the Health and Care Act 2022, it is the statutory duty of integrated care boards (ICBs) to commission palliative and end of life care services in response to the needs of their population, including for children and young people.

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.

NHS England has worked closely with sector experts and sector representatives in establishing the current prevalence-based approach to deciding allocations, as well as in determining the proposed mechanism for continued funding in 2024/25.

Funding in 2024/25 will be distributed via ICBs, in line with National Health Service devolution. All ICBs in England will be formally notified of the distribution method to be used very shortly. The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.


Written Question
Hospices: Children
Wednesday 6th March 2024

Asked by: Peter Gibson (Conservative - Darlington)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether she has made an assessment of the potential merits of ring-fencing the block grant for children's hospices.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

No specific assessment has been made of the potential merits of ring-fencing the funding for children’s hospices, or of the potential merits of guaranteeing the children’s hospice funding for three years. Details of 2025/26 funding will, however, be confirmed in due course.

We recognise the vital part that voluntary sector organisations, including hospices, play in the availability and delivery of high-quality, personalised palliative and end of life care for people of all ages, and their loved ones.

As made clear in the Health and Care Act 2022, it is the statutory duty of integrated care boards (ICBs) to commission palliative and end of life care services in response to the needs of their population, including for children and young people.

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.

NHS England has worked closely with sector experts and sector representatives in establishing the current prevalence-based approach to deciding allocations, as well as in determining the proposed mechanism for continued funding in 2024/25.

Funding in 2024/25 will be distributed via ICBs, in line with National Health Service devolution. All ICBs in England will be formally notified of the distribution method to be used very shortly. The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.


Written Question
Hospices: Children
Thursday 29th February 2024

Asked by: Lord Hunt of Kings Heath (Labour - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government whether integrated care boards (ICBs) have been informed of the details of the Children’s Hospice Grant for children’s palliative care, including (1) the amounts awarded to each ICB, and (2) the distribution method to be used.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need. Funding will be distributed via integrated care boards (ICBs) in line with National Health Service devolution.

All ICBs in England, including those in the West Midlands, were notified of the amount of funding that each ICB will receive during week commencing 19 February 2024. Additionally, all ICBs in England, including those in the West Midlands, will be notified of the distribution method to be used very shortly.

The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices in the coming weeks.


Written Question
Hospices: Children
Thursday 29th February 2024

Asked by: Lord Hunt of Kings Heath (Labour - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government when integrated care boards (ICB) in the West Midlands can expect to be informed of the details of the Children’s Hospice Grant for children’s palliative care, including (1) the amounts to each ICB, and (2) the distribution method to be used.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need. Funding will be distributed via integrated care boards (ICBs) in line with National Health Service devolution.

All ICBs in England, including those in the West Midlands, were notified of the amount of funding that each ICB will receive during week commencing 19 February 2024. Additionally, all ICBs in England, including those in the West Midlands, will be notified of the distribution method to be used very shortly.

The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices in the coming weeks.


Written Question
Palliative Care: Children
Friday 16th February 2024

Asked by: Fleur Anderson (Labour - Putney)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what recent steps her Department has taken to improve (a) services for children who require end of life care, (b) services for children with life threatening conditions and (c) services for children with life limiting conditions.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care for children locally, and they are responsible for ensuring that the services they commission meet the needs of their local population.

At a national level, in line with the NHS Long Term Plan, NHS England has provided approximately £12 million of match-funding to participating ICBs, and formerly CCGs, between 2020/21 and 2023/24. This was committed to invest in children and young people’s palliative and end of life care, giving a total investment of £24 million. In addition, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. NHS England has confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.

The Department is in ongoing discussions with NHS England to explore improving oversight and accountability of all-age NHS palliative and end of life care commissioning. Additionally, The Department, through the National Institute for Health and Care Research, is investing £3 million in a new Palliative and End of Life Care Policy Research Unit. This will help build the evidence base on all-age palliative and end of life care to inform policy making in this vital area.

NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners, and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care.

From April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together all relevant data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, including children, enabling ICBs to put plans in place to address and track the improvement of health inequalities.