Asked by: Elliot Colburn (Conservative - Carshalton and Wallington)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to help improve the knowledge of GPs on the symptoms of young onset dementia.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
We want all general practitioners to have received appropriate training, in order to provide high quality care to people with dementia, regardless of the person’s age or individual needs.
The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies who set the outcome standards expected at undergraduate level and approve courses and Higher Education Institutions to write and teach the curricula content that enables their students to meet the regulators outcome standards.
Whilst not all curricula may necessarily highlight a specific condition, they all nevertheless emphasize the skills and approaches a Health Care Practitioner must develop in order to ensure accurate and timely diagnoses and treatment plans for their patients, including for dementia.
The NHS Long Term Workforce Plan, published on 30 June 2023, sets out NHS England’s commitment to improving training for workers caring for people with dementia.
The Long Term plan also sets out the plan for there to be more healthcare staff working in and with GP practices, which will mean people will be able to get an appointment with the right professional depending on their needs. This means that those with dementia will be able to access the most appropriate support more quickly.
The plan will include more GPs, nurses and 20,000 additional pharmacists, physiotherapists, paramedics, physician associates and social prescribing link. These bigger teams of staff will work with other local services to make sure people, including those with dementia, get better access to a wider range of support for their needs.
We are seeing more people from younger cohorts with multimorbidity. Multimorbidity challenges the specialised approach to medicine, which has improved our ability to successfully treat single diseases. The Long Term Plan also addresses the increased need for medical and other clinical professionals with generalist and core skills to manage and support patients with seemingly unrelated diseases.
There are also a variety of resources available on the NHS England E-learning for Health platform, including a programme on dementia care, designed to enhance the training and education of the health and social care workforce.
Asked by: Peter Dowd (Labour - Bootle)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that health and social care professionals are trained in Parkinson’s-related dementia care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies. They set the outcome standards expected at undergraduate level and approve courses and Higher Education Institutions to write and teach the curricula content that enables their students to meet the regulators outcome standards.
Whilst not all curricula may necessarily highlight a specific condition, they all nevertheless emphasize the skills and approaches a health care practitioner must develop in order to ensure accurate and timely diagnoses and treatment plans for their patients, including for dementia.
Individual employers across health and social care are responsible for ensuring their staff are trained and competent to carry out their role, and for investing in the future of their staff by providing continuing professional development (CPD) funding. The required training needs are set out in the Dementia Training Standards Framework, which is available at the following link:
https://www.skillsforhealth.org.uk/info-hub/dementia-2015-updated-2018/
The framework was commissioned and funded by the Department, and developed in collaboration with the sector. It sets out the essential knowledge, skills, and expected learning outcomes applicable across the health and care spectrum.
It is applicable to health and social care staff who work with people living with dementia, staff providing direct care and support, and those who provide leadership in transforming care, including social care managers and leaders.
To supplement local National Health Service employer investment for CPD, the NHS Long Term Workforce Plan, published on 30 June 2023, sets out NHS England’s commitment to continue national CPD funding for nurses, midwives, and allied health professionals. There are a variety of resources available on the NHS England e-learning for health platform, designed to enhance the training and education of the health and social care workforce. This includes a programme on dementia care, and modules in Parkinson’s disease in geriatric medicine.
Asked by: Mary Glindon (Labour - North Tyneside)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to provide training in Parkinson’s-related dementia care for health and social care professionals.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies. They set the outcome standards expected at undergraduate level and approve courses and Higher Education Institutions to write and teach the curricula content that enables their students to meet the regulators outcome standards.
Whilst not all curricula may necessarily highlight a specific condition, they all nevertheless emphasize the skills and approaches a health care practitioner must develop in order to ensure accurate and timely diagnoses and treatment plans for their patients, including for dementia.
Individual employers across health and social care are responsible for ensuring their staff are trained and competent to carry out their role, and for investing in the future of their staff by providing continuing professional development (CPD) funding. The required training needs are set out in the Dementia Training Standards Framework, which is available at the following link:
https://www.skillsforhealth.org.uk/info-hub/dementia-2015-updated-2018/
The framework was commissioned and funded by the Department, and developed in collaboration with the sector. It sets out the essential knowledge, skills, and expected learning outcomes applicable across the health and care spectrum.
It is applicable to health and social care staff who work with people living with dementia, staff providing direct care and support, and those who provide leadership in transforming care, including social care managers and leaders.
To supplement local National Health Service employer investment for CPD, the NHS Long Term Workforce Plan, published on 30 June 2023, sets out NHS England’s commitment to continue national CPD funding for nurses, midwives, and allied health professionals. There are a variety of resources available on the NHS England e-learning for health platform, designed to enhance the training and education of the health and social care workforce. This includes a programme on dementia care, and modules in Parkinson’s disease in geriatric medicine.
Asked by: Damian Collins (Conservative - Folkestone and Hythe)
Question to the Department for Digital, Culture, Media & Sport:
To ask the Secretary of State for Culture, Media and Sport, pursuant to the Answer of 20 March 2024 to Question 18418 on Sports: Concussion, who the members of the Sports Concussions Research Forum are; and what terms of reference were set for that forum's formulation of a report to identify priority research questions.
Answered by Stuart Andrew - Parliamentary Under Secretary of State (Department for Culture, Media and Sport)
The Sports Concussion Research Forum’s terms of reference are to develop a prioritised list of translatable research aims relating to concussion in sport, to be drawn from both the sports and academic communities, including consideration of such research that may extend beyond sport-specific areas, where appropriate.
The further aim of the Forum is to encourage academic institutions, foundations and other organisations to make concussion in sport one of their priorities and to focus their work in this area around the Forum’s prioritised list of research aims, which is expected to be published in 2024.
The members of the Sports Concussion Research Forum are:
Asked by: Andrew Rosindell (Conservative - Romford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she has taken to support research and development of the ACI-24 Alzheimer’s disease treatment.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department funds research through the National Institute for Health and Care Research (NIHR). The Government is strongly committed to supporting research into dementia, including Alzheimer’s disease treatment, and has committed to doubling funding for dementia research to £160 million per year, by the end of 2024/25.
In addition, the NIHR’s infrastructure provides funding for clinical expertise, specialist facilities, the workforce, and support services, which underpin research across a range of clinical areas, including Alzheimer’s disease treatments. Specifically, the NIHR’s Oxford Health Clinical Research Facility (CRF) has enabled the delivery of the ABATE part 1 trial, which seeks to study the effects of the ACI-24 vaccine in those diagnosed with early-stage Alzheimer’s disease. The NIHR’s CRFs are purpose-built facilities for early-phase, experimental medicine, and supporting life science companies throughout the research process from study, design, data collection, and trial management.
Asked by: Gregory Campbell (Democratic Unionist Party - East Londonderry)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether Northern Ireland will receive funding through the Dame Barbara Windsor Dementia mission; and what her planned timetable for delivery of the mission is.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Spending and delivery plans for the Dame Barbara Windsor Dementia Mission are currently in development. The Dementia Mission Co-Chairs Hilary Evans and Professor Nadeem Sarwar have, and continue to, engage extensively across the sector to understand and develop the missions’ key aims, ensuring it addresses the challenges the sector faces and that patient voices are heard. This has informed the missions focus on three key pillars: biomarkers and experimental medicine; clinical trials infrastructure and innovation; and end-to-end implementation.
In March 2024, the Government hosted a roundtable and reception where charities, academics, investors, business leaders, and people with lived experience came together to further accelerate efforts to tackle this devastating illness, and to thank all those involved in supporting dementia research, including charities across the United Kingdom. This event made a series announcements, including: awarding a share of the £6 million of funding to 10 projects through Innovate UK’s Small Business Research Initiative (SBRI) dementia biomarker tools competition; the appointment of Scott Mitchell as the People’s Champion for the Dementia Mission; the appointment of Dr Ruth McKernan CBE as Chair of the Scientific Advisory Board for the Neurodegeneration Initiative, which will be a public-private partnership delivering the mission's objectives around biomarkers, boosting the number and speed of clinical trials in dementia and neurodegeneration, and working with regulatory bodies around the implementation of new treatments; and the appointment of the Medicines Discovery Catapult as the delivery partner for the establishment of the Neurodegeneration Initiative. The Dame Barbara Windsor Dementia Mission continues to develop its deliverables, and will announce further plans for their delivery in due course.
Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether they intend to license the drug Lecanemab for the treatment of dementia and Alzheimer’s disease; and if so, when.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Medicines and Healthcare products Regulatory Agency will review any marketing authorisation application received, and will consider the drug with regard to quality, safety and efficacy. We do not comment on application status or applications in progress, until a full and timely decision is made with consideration of the recommendation of Commission on Human Medicines as needed. We continue to advise that patients consult with their respective healthcare professionals regarding treatment and management options for dementia and Alzheimer’s disease.
Asked by: Andrew Rosindell (Conservative - Romford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how much funding was provided for (a) dementia and (b) cancer research in the 2022-23 financial year.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Government responsibility for delivering dementia research and dementia research funding is shared between the Department of Health and Social Care, with research delivered by the National Institute for Health and Care Research (NIHR), and the Department for Science Innovation and Technology, with research delivered via UK Research and Innovation.
In 2022/23, we estimate that total Government spend on dementia research was £99.9 million, with £35.1 million of this being via the NIHR. The Department of Health and Social Care spends £1.3 billion per year on health research through the NIHR. NIHR research expenditure for all cancers was £121.8 million in 2022/23, and the NIHR spends more on cancer than any other disease group.
The NIHR funds research in response to proposals received from scientists rather than allocating funding to specific disease areas. The NIHR welcomes funding applications for research into any aspect of human health, including all cancers and dementia types. It is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.
Asked by: Stephanie Peacock (Labour - Barnsley East)
Question to the Department for Digital, Culture, Media & Sport:
To ask the Secretary of State for Culture, Media and Sport, what discussions her Department is having with relevant stakeholders to reduce the prevalence of Chronic traumatic encephalopathy (CTE) amongst sportspeople.
Answered by Stuart Andrew - Parliamentary Under Secretary of State (Department for Culture, Media and Sport)
The safety, wellbeing and welfare of everyone taking part in sport is absolutely paramount. National Governing Bodies are responsible for the regulation of their sports, and for ensuring that appropriate measures are in place to protect participants from harm. The government expects sports to do all they can to protect their players.
I welcome work by sports to provide practical support to former players who develop neurodegenerative conditions. This includes the work of player associations, who play a valuable role in supporting players by providing short and long-term support to those affected by sporting injuries. I have discussed the issue of dementia with the Chief Executive of the Professional Footballers' Association, specifically the need for the Premier League to make progress on their promise to allocate funding towards a new Football Brain Health Fund for players impacted by dementia. The Brain Health Fund was subsequently announced in September 2023. The fund aims to assist former players and their families who have been impacted by dementia and other neurodegenerative conditions.
The Government continues to take the issue of head injuries very seriously. In December 2021 DCMS published its Command Paper report on concussion in sport, outlining the steps the Government is undertaking to help reduce risks associated with head injuries by improving understanding, awareness, prevention and treatment of concussion in sport. As part of this, in April 2023 the Government announced the first UK concussion guidelines for grassroots sport, in conjunction with the Sport and Recreation Alliance. This guidance is intended to be a helpful tool in reducing the risks associated with concussion and marks an important step in making sport safer for thousands of people who enjoy sport at a grassroots level, as well as an aid to professional sports.
Further research on the links between health, dementia and contact sport is needed to better understand the issue. To that end, DCMS established a Sports Concussion Research Forum in July 2022 to identify key research questions that need answering in this important area. The research forum is now formulating a report to identify the priority research questions for the sector that need to be addressed, with the final report expected in 2024.
The Government remains committed to working with sports to build on the positive work that is already taking place to mitigate the causes and effects of concussion in sport.
Asked by: Stephanie Peacock (Labour - Barnsley East)
Question to the Department for Digital, Culture, Media & Sport:
To ask the Secretary of State for Culture, Media and Sport, what discussions her Department has had with professional sports associations on providing support for former professional sportspeople living with chronic traumatic encephalopathy.
Answered by Stuart Andrew - Parliamentary Under Secretary of State (Department for Culture, Media and Sport)
The safety, wellbeing and welfare of everyone taking part in sport is absolutely paramount. National Governing Bodies are responsible for the regulation of their sports, and for ensuring that appropriate measures are in place to protect participants from harm. The government expects sports to do all they can to protect their players.
I welcome work by sports to provide practical support to former players who develop neurodegenerative conditions. This includes the work of player associations, who play a valuable role in supporting players by providing short and long-term support to those affected by sporting injuries. I have discussed the issue of dementia with the Chief Executive of the Professional Footballers' Association, specifically the need for the Premier League to make progress on their promise to allocate funding towards a new Football Brain Health Fund for players impacted by dementia. The Brain Health Fund was subsequently announced in September 2023. The fund aims to assist former players and their families who have been impacted by dementia and other neurodegenerative conditions.
The Government continues to take the issue of head injuries very seriously. In December 2021 DCMS published its Command Paper report on concussion in sport, outlining the steps the Government is undertaking to help reduce risks associated with head injuries by improving understanding, awareness, prevention and treatment of concussion in sport. As part of this, in April 2023 the Government announced the first UK concussion guidelines for grassroots sport, in conjunction with the Sport and Recreation Alliance. This guidance is intended to be a helpful tool in reducing the risks associated with concussion and marks an important step in making sport safer for thousands of people who enjoy sport at a grassroots level, as well as an aid to professional sports.
Further research on the links between health, dementia and contact sport is needed to better understand the issue. To that end, DCMS established a Sports Concussion Research Forum in July 2022 to identify key research questions that need answering in this important area. The research forum is now formulating a report to identify the priority research questions for the sector that need to be addressed, with the final report expected in 2024.
The Government remains committed to working with sports to build on the positive work that is already taking place to mitigate the causes and effects of concussion in sport.