Asked by: Stephen Timms (Labour - East Ham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if NHS England will (a) fund and (b) publish a data dashboard to help integrated care boards commission children and young people’s palliative and end of life care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England has developed an all-age palliative and end of life care dashboard, which brings together all relevant local data in one place in an easily accessible format. The dashboard is accessible to integrated care boards (ICBs) and their commissioners and helps them understand the palliative and end of life care needs of their local population, including children and young people. This supports commissioners in their statutory duty for palliative and end of life care, enabling ICBs to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly based on prevalence.
Funding has been confirmed to ensure continued maintenance of the dashboard for 2024/25, with discussions ongoing regarding further development and use. There is, however, existing publicly available data, such as the Office for Health Improvement and Disparities ‘Fingertips’ data on palliative and end of life care.
Apr. 22 2024
Source Page: Quality Prescribing Strategy for Respiratory A Guide for Improvement 2024-2027Found: for treatment optimisation In children with asthma This guidance is not for children, therefore prescribers
Apr. 22 2024
Source Page: I. List of ministerial responsibilities. 88p. II. List of non-ministerial departments and executive agencies. 22p. III. Letter dated 19/04/2024 from Alex Burghart MP to the Public Administration and Constitutional Affairs Committee regarding documents for deposit, and copying them for deposit in the House libraries. 1p.Found: Making sure that local services protect and support children.
Mentions:
1: Sally-Ann Hart (Con - Hastings and Rye) Hastings and Rye, and Demelza House, which offers palliative care for children—largely through outreach - Speech Link
2: Barry Gardiner (Lab - Brent North) I wish to highlight the importance of palliative care for children and the amazing support that some - Speech Link
3: Jim Shannon (DUP - Strangford) Ireland Hospice provides specialist palliative care for more than 4,000 infants, children and adults - Speech Link
4: James Sunderland (Con - Bracknell) care for children aged between zero and 18 and supports their families. - Speech Link
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that seriously ill children and their families can access information on how to access emotional and psychological support.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The clinical team responsible for a seriously ill child’s physical healthcare should discuss and review their emotional and psychological status regularly with them, or their family, and support them with access to information and services for their mental health if needed. Commissioners are encouraged to ensure local pathways include assessment and ongoing support of patients’ mental and psychological wellbeing and cognitive status.
The Health and Care Act 2022 placed a legal duty on integrated care boards (ICBs) to commission palliative and end of life care services, which meet the needs of their whole population. To support ICBs in this, NHS England has published statutory guidance, along with service specifications for children and young people, which make reference to including a holistic approach to care. This includes links to social prescribing, assessing, and addressing the needs of children, young people and families, and clear referral pathways to other services such as children and young people’s mental health services. The statutory guidance and the service specifications for children and young people are available respectively at the following links:
Patients’ family members who feel they need emotional and psychological support should speak to their general practice, or can self-refer to NHS Talking Therapies online. Details are available on the NHS website.
Mentions:
1: Baroness Finlay of Llandaff (XB - Life peer) Although palliative care is now in legislation as a core service, contracting is not the same as ensuring - Speech Link
2: Baroness Hollins (XB - Life peer) I suggest that, as well as maternity care, we should have palliative care added to the 2024 pamphlet.Central - Speech Link
Apr. 17 2024
Source Page: Disability Assistance for Older People (Scotland) Regulations 2024: Equality Impact AssessmentFound: This is because, when children are in hospital th ey continue to require care and support, usually from
Apr. 17 2024
Source Page: Disability Assistance for Older People (Scotland) Regulations 2024: Equality Impact AssessmentFound: , executive and legal competence for disability benefits, including Disability Living Allowance for Children
Asked by: Briggs, Miles (Scottish Conservative and Unionist Party - Lothian)
Question
To ask the Scottish Government how many children and young people on average have been on waiting lists for community-based palliative care in each NHS board area in each year since 1999.
Answered by Minto, Jenni - Minister for Public Health and Women's Health
The information requested is not centrally available.
We are developing a new Palliative and End of Life Care Strategy which has an overarching aim that everyone in Scotland receives well-coordinated, timely and high-quality palliative care, care around death and bereavement support based on their needs and preferences, including support for families and carers. The strategy will cover children and adults, and care provided in all settings including in the community.
We have established a number of working groups to support the development of the strategy including a Children and Young People’s Palliative Care Working Group and we have completed a mapping survey of paediatric and neonatal palliative care provision to inform the development and delivery of the strategy.
Apr. 15 2024
Source Page: Supporting safer visiting in care homes during infectious illness outbreaksFound: Supporting safer visiting in care homes during infectious illness outbreaks