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Select Committee
Formal Minutes 2021-22: List of closed petitions

Formal Minutes Sep. 02 2022

Committee: Petitions Committee

Found: ://petition.parliament.uk/petitions/562333 3341 Stop the funding cut for salaried route into primary 


Closed Petition closed 7th January 2022

Dedicate funding for research into Fibrodysplasia Ossificans Progressiva (FOP) - Final Signatures: 111,246

Invest in FOP research to support this ultra-rare disease community. Research into FOP could inform the understanding/treatment of many more common conditions such as osteoporosis, hip replacements, DIPG (a rare childhood brain cancer) and many common military injuries.

Debate: This petition was debated in Westminster Hall on 6th December 2021

The Government responsed to this petition on 12th October 2021 (View Full Response)
The Government recognises the challenges faced by people affected by rare disease, and funds research into rare conditions – including fibrodysplasia ossificans progressiva – via NIHR and UKRI.

Found: FOP causes the body’s bone to develop in areas where normally it wouldn't, progressively locking joints