UK Biobank: Data Protection

(asked on 13th November 2023) - View Source

Question to the Department for Science, Innovation & Technology:

To ask His Majesty's Government when and how members of the public were informed that the assurance that data held by UK Biobank would not be given to insurance companies would no longer apply.


Answered by
Viscount Camrose Portrait
Viscount Camrose
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
This question was answered on 27th November 2023

The assurance that identifiable data will not be shared with any organisation, including insurance companies, was provided to participants at the time of recruitment, and still applies. Members of the public invited to join UK Biobank were given information leaflets and a consent form that stated that de-identified data would be made available to researchers from across industry, academia, charitable and government sectors if the applications met the required thresholds of including a bona fide researcher and doing health-related research in the public good.

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