Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, what assessment his Department has made of the ease of access to Everolimus for Tuberous Sclerosis Complex sufferers.
No assessment has been made of the ease of access to treatment and services for Tuberous Sclerosis Complex (TSC); any such assessment would need to carefully consider the wide-range of need associated with TSC.
Everolimus is a licensed oral treatment for TSC and has been licensed by the European Medicines Agency. NHS England’s process for introducing new treatments for use in the services that it commissions involves the production of a clinical commissioning policy; this process is currently underway for Everolimus in the treatment of TSC.