Huntington's Disease

(asked on 4th September 2015) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, if he will establish a cross-government Huntington's Disease strategy.


Answered by
George Freeman Portrait
George Freeman
This question was answered on 14th September 2015

There were less than six admissions with a primary diagnosis of Huntingdon’s Disease for Plymouth Hospitals NHS Trust in the year 2013-14; this is not a count of people as the same person may have had more than one admission episode within the same time period. This does not include any cases there may have been with independent providers.

The Department published a UK Strategy for Rare Diseases in 2013 and established the UK Rare Disease Forum to monitor the progress against the UK Strategy. The UK Rare Disease Forum is due to report on the progress made against the recommendations made in the UK Strategy in 2016.

Patients with Huntington's disease already have access to a range of NHS services including those provided by general practitioners and associated health professionals, neurology services, occupational therapists, speech and language therapists, local mental health services and palliative care where appropriate.

Patients with Huntington’s disease will benefit from the implementation of the UK Rare Disease Strategy that will lead to further improvements in the diagnostic pathway for this condition.

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