Neurofibromatosis

(asked on 9th September 2020) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department will take to improve awareness amongst nurses and general practitioners of neurofibromatosis Type 1.


Answered by
Helen Whately Portrait
Helen Whately
Minister of State (Department of Health and Social Care)
This question was answered on 30th September 2020

Over the last few years, there has been an increase in the awareness of neurofibromatosis type 1 (NF1) through more training of doctors and nurses, particularly through community paediatricians, development of guidelines with nurses, and links with genetic and neurology clinics. Professionals at the expert NF1 centres, based in Guy’s and St Thomas’ NHS Foundation Trust and Manchester University NHS Foundation Trust, including consultants and specialist nurses also undertake the usual range of activities to raise awareness of the condition by giving lectures and presentations, attending conferences and publishing papers in medical journals.

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