Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of Ehlers-Danlos Syndrome.

Steps to raise awareness of rare conditions such as Ehlers-Danlos Syndrome are being taken through the implementation of the of the UK Strategy for Rare Diseases, which is available at the following link:

https://www.gov.uk/government/publications/rare-diseases-strategy

The Department published an update to its implementation plan for achieving the commitments in the Strategy in England in February 2019 to coincide with Rare Disease Day, which can be found at the following link:

https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england

A second update to the implementation plan is due to be published in spring 2020.