Ehlers-Danlos Syndrome: Diagnosis

(asked on 26th May 2016) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, how many cases of Ehlers-Danios Syndrome have been diagnosed in each of the last five years.


Answered by
George Freeman Portrait
George Freeman
This question was answered on 7th June 2016

These data are not held centrally by the Department.

Ehlers-Danlos Syndrome (EDS) is a complex group of heritable disorders of connective tissue with an estimated prevalence of one in 20,000. As EDS appears in a variety of forms rates of diagnosis can be underestimated.

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