Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, how many cases of Ehlers-Danios Syndrome have been diagnosed in each of the last five years.
These data are not held centrally by the Department.
Ehlers-Danlos Syndrome (EDS) is a complex group of heritable disorders of connective tissue with an estimated prevalence of one in 20,000. As EDS appears in a variety of forms rates of diagnosis can be underestimated.