Chromosome Abnormalities

(asked on 20th December 2019) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve outcomes for children born with BP deletion syndrome.


Answered by
Jo Churchill Portrait
Jo Churchill
Minister of State (Department for Work and Pensions)
This question was answered on 13th January 2020

Steps to increase awareness of rare conditions amongst health care professionals and improve outcomes for those living with rare diseases are being taken through the implementation of the UK Rare Disease Strategy, which is available at the following link:

https://www.gov.uk/government/publications/rare-diseases-strategy

The Department published an update to its implementation plan for achieving the commitments in the Strategy in England in February 2019 to coincide with Rare Disease Day, which can be found at the following link:

https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england

A second update to the implementation plan is due to be published in Spring 2020.

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