Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what steps his Department has taken to ensure that young people with idiopathic pulmonary fibrosis are made aware of their possible suitability for lung transplants.

There are a number of lung diseases of childhood, including pulmonary fibrosis that may require lung transplantation, depending on disease progression and severity.

These conditions should be referred to, assessed and initially managed by a tertiary paediatric respiratory unit, who would confirm the diagnosis and monitor treatment.

If the treatments failed to hold the progression of the disease, then a referral to one of the two paediatric lung transplant centres, Newcastle and Great Ormond Street may be appropriate.