Question to the Northern Ireland Office:
To ask the Secretary of State for Northern Ireland, if she will meet families of cystic fibrosis sufferers in Northern Ireland who are seeking to secure the availability of Orkambi on the NHS; and if she will make a statement.
Thank you for raising this important issue. I realise that the availability of Orkambi is currently the subject of negotiation involving Vertex Pharmaceuticals, NHS England and the National Institute for Health and Care Excellence (NICE).
As these negotiations are ongoing, I will ask my officials to monitor progress on this issue and update you as soon as there is greater clarity.