Orkambi: Northern Ireland

(asked on 19th November 2018) - View Source

Question to the Northern Ireland Office:

To ask the Secretary of State for Northern Ireland, if she will meet families of cystic fibrosis sufferers in Northern Ireland who are seeking to secure the availability of Orkambi on the NHS; and if she will make a statement.


Answered by
John Penrose Portrait
John Penrose
This question was answered on 26th November 2018

Thank you for raising this important issue. I realise that the availability of Orkambi is currently the subject of negotiation involving Vertex Pharmaceuticals, NHS England and the National Institute for Health and Care Excellence (NICE).

As these negotiations are ongoing, I will ask my officials to monitor progress on this issue and update you as soon as there is greater clarity.

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