Rare Diseases

(asked on 21st June 2018) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to revise the rare disease strategy ahead of the UK leaving the EU.


Answered by
Steve Brine Portrait
Steve Brine
This question was answered on 28th June 2018

With the aim of improving the lives of all those affected by a rare disease, the United Kingdom Government published the UK Strategy for Rare Diseases in 2013, a high-level framework containing 51 commitments which sets out a 7-year strategic vision (2013-2020).

The Government is committed to implementing the Strategy’s commitments and has, in January 2018, published Implementation Plans setting out its actions for England.

The UK Rare Disease Policy Board is the UK-wide body responsible for facilitating the co-ordination of policy development and meeting the commitments set out in the UK Strategy for Rare Diseases. The Strategy is kept under review to take account of new developments including the outcome of negotiations with the European Union.

Reticulating Splines