Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what recent assessment he has made of the adequacy of treatment provision for people diagnosed with Raine syndrome.

Raine syndrome is a rare congenital condition that largely affects the craniofacial area. Individuals with this condition will access a range of locally and nationally commissioned services according to their specific clinical needs. For example, NHS England commissions specialised assessment, surgery and follow up services for craniofacial conditions in children, including those caused by congenital conditions. The service specification can be found at the following link:

https://www.england.nhs.uk/wp-content/uploads/2013/06/e02-craniofacial.pdf

NHS England monitors the quality of all specialised services it commissions via its Quality Surveillance Team (QST). The QST produce annual profiles of services based on self-assessment against core requirements of the service specification, clinical outcomes and external monitoring such as Care Quality Commission assessments, undertaking peer review processes as required. Specialised paediatric craniofacial services are regularly monitored via this process.