Cystic Fibrosis Drugs: Orkambi

Ranil Jayawardena Excerpts
Monday 10th June 2019

(4 years, 9 months ago)

Westminster Hall
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Paul Scully Portrait Paul Scully
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My hon. Friend is absolutely right to say that we are looking at that pipeline, which is so important. That is why this process is different from the kind that NICE is used to. I hope that NICE can be accommodating enough to suit the pipeline, and that Vertex can come back with its triple therapy, which will help so many people.

Ranil Jayawardena Portrait Mr Ranil Jayawardena (North East Hampshire) (Con)
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I congratulate my hon. Friend on opening this important debate. Although we can get hung up on process, NICE, NHS England and, dare I say it, Her Majesty’s Government, is it not true that real people’s lives are at the heart of this? As I understand it, Vertex has been offered the most generous settlement in the entire history of the NHS. Is it not time that the company now took the brave decision to accept a very generous deal?

Paul Scully Portrait Paul Scully
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My hon. Friend is absolutely right. Vertex has a pipeline that should help its shares—their value has doubled over the past few years, and I am sure they will do very well in future—but we must have a balance with shareholder value, so that the company can continue to invest and continue its research. As he says, this is about human beings, their quality of life and their lives.