Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department for Environment, Food and Rural Affairs:
To ask His Majesty's Government what plans they have to dismantle the border control posts at UK ports, following the publication of Safeguarding the Union in January (CP 1021).
Answered by Lord Douglas-Miller - Parliamentary Under-Secretary (Department for Environment, Food and Rural Affairs)
SPS facilities have always been necessary under all scenarios, as the Government has made clear, in order to administer red lane checks on goods moving on into the EU. This is reflected in the fact that the plans were brought forward, and the business case for the facilities was being prepared, during the passage of the Northern Ireland Protocol Bill.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Home Office:
To ask His Majesty's Government what assessment they have made of efforts to reduce the numbers of illegal border crossings into the UK.
Answered by Lord Sharpe of Epsom - Parliamentary Under-Secretary (Home Office)
The Home Office’s priority is to deliver a safe and secure border and we will never compromise on this. We are relentless in our pursuit of those who seek to enter the UK illegally. Border Force have robust measures in place to detect clandestine entrants into the UK and stand ready to respond to any methods deployed.
Border Force, Immigration Enforcement and other law enforcement agencies work tirelessly, deploying to risk using tested, but continually assessed, intelligence and targeting techniques.
The Home Office publish irregular migration to the UK statistics on the GOV.UK website: https://www.gov.uk/government/statistics/irregular-migration-to-the-uk-year-ending-december-2023. In 2023, there were 36,704 irregular arrivals, one-third (33%) fewer than in 2022, and 80% of these arrived on small boats.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Home Office:
To ask His Majesty's Government how many (1) asylum seekers, and (2) other migrants are being housed in hotel-style accommodation; and how much financial support they are providing in support of these arrangements.
Answered by Lord Sharpe of Epsom - Parliamentary Under-Secretary (Home Office)
Data on the number of supported asylum seekers in accommodation (including in contingency hotels and other contingency accommodation) is published in table Asy_D11 here: Immigration system statistics data tables - GOV.UK (www.gov.uk).
Data on other immigration groups is published in table Reg_01 of the Regional and local authority data. This includes the number of people accommodated in interim accommodation as part of the Afghan Resettlement Programme.
The standard weekly allowance is £49.18 for each supported asylum seeker in self-catered accommodation and £8.86 for each supported asylum seeker in catered accommodation. Further information on what support asylum seekers receive can be found in the attached link: https://www.gov.uk/asylum-support/what-youll-get.
Individuals on our resettlement schemes with Indefinite Leave to Remain (ILR) in the UK have access to mainstream benefits and services to enable their integration; and we are working across Government to ensure these services meet the needs of refugees.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department for Environment, Food and Rural Affairs:
To ask His Majesty's Government what steps they are taking to support the UK fishing industry to ensure sustainable management of UK fishing waters and the livelihoods of British fishermen.
Answered by Lord Douglas-Miller - Parliamentary Under-Secretary (Department for Environment, Food and Rural Affairs)
We are ensuring the sustainable management of UK fishing waters and livelihoods of British fishers by developing Fisheries Management Plans and through the £100m UK Seafood Fund, which has provided £3.9m in grant funding to projects in Northern Ireland. This includes a £2.8m project at Portavogie Harbour that will replace and enhance the existing boat cradle and winch.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what provisions are in place to support the families and caregivers of individuals with rare diseases.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
Each year since 2021, we have published an England Rare Diseases Action Plan. On 29 February 2024, we published the third England Rare Diseases Action Plan. In this plan we recognised that significant challenges exist with access to mental health and psychological support for people living with rare conditions, as well as their families and carers. During this year we have taken steps to further understand the challenges faced through a workshop, and have begun to address these needs by developing resources to better equip the workforce to provide support.
The enormous contribution of unpaid carers, including those caring for individuals with rare diseases, is reflected throughout the Next Steps to Put People at the Heart of Care, published in April 2023. Furthermore, the Better Care Fund in 2023/24 includes £327 million for carers support, including short breaks and respite services for carers. This also funds advice and support to carers, and a small number of additional local authority duties. The Accelerating Reform Fund also provides support for unpaid carers. The Government is developing a new survey of unpaid carers which will capture the wide range of experiences, circumstances, and needs of unpaid carers across England. Through the National Institute for Health and Care Research, an evaluation of the support provided to unpaid carers funded through the Better Care Fund has been commissioned, which will improve the understanding of what support works best for unpaid carers.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to ensure equitable access to specialised care and support for patients with rare diseases across England.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
In January 2021, the Government published the UK Rare Diseases Framework, providing a national vision for how to improve the lives of those living with rare diseases. The framework lists four priorities, collaboratively developed with the rare disease community, which are: helping patients get a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; better coordination of care; and improving access to specialist care, treatment, and drugs. The principles of the UK Rare Diseases Framework commit the four nations to ensuring that any impacts on health inequalities are considered when developing action plans.
Each year since 2021 we have published an England Rare Diseases Action Plan, with health equity highlighted as a focus area. On 29 February 2024 we published the third England Rare Diseases Action Plan, which is working to address these priorities. Several actions have been committed to in this year and previous year’s action plans, that relate to equitable access to specialised care and support for patients with rare diseases.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to support research and development of treatments for patients with haemochromatosis.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The National Institute for Health and Care Research is currently directly funding one ongoing study on haemochromatosis, and over the last five years, has funded infrastructure to support seven others.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to increase funding and support for Alzheimer's research to accelerate the development of effective treatments and improve early diagnosis techniques.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government is strongly committed to supporting research into dementia and has committed to double funding for dementia research, to £160 million per year, by the end of 2024/25. This will span all areas of research, including diagnosis and treatment of dementia, and more specifically Alzheimer’s disease.
The Government has allocated up to £120 million to the Dame Barbara Windsor Dementia Mission, which aims to speed up the development of new treatments through innovations in biomarkers, clinical trials, and implementation.
Alongside the mission, the Department, via the National Institute for Health and Care Research (NIHR), is funding a range of research to accelerate the development of effective treatments and to improve early diagnosis techniques. This includes investing almost £50 million into the NIHR’s Dementia Translational Research Collaboration Trials Network. This will expand the United Kingdom’s early phase clinical trial capabilities in dementia, speeding up the development of new treatments, and funding to the Blood Biomarker Challenge which could make the case for the use of a blood test in the National Health Service, to support diagnosis of dementia, including Alzheimer’s disease.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to improve early diagnosis and intervention for children with autism spectrum disorders.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise timely identification of autism can play an important role in enabling children and young people to get appropriate support, which is crucial in preventing escalation of needs. We expect integrated care boards (ICBs) to have due regard to National Institute for Health and Care Excellence (NICE) guidelines on autism when commissioning services. It is the responsibility of ICBs to make available appropriate provision to meet the health and care needs of their local population in line with these NICE guidelines, including in relation to autism assessment. While we want every area to meet NICE guidance, we recognise that this is not happening everywhere.
On 5 April 2023, NHS England published a national framework and operational guidance for autism assessment services in an online-only format. This guidance will help the National Health Service improve autism assessment services and improve the experience for people referred to an autism assessment service. This includes guidance to local areas on how to manage referrals and the support that should be available whilst people are waiting for an assessment and after.
In 2023/2024, £4.2 million of funding is available across England to improve services for autistic children and young people, including autism assessment services. We are also working in partnership with the Department for Education and NHS England on ‘Partnerships for Inclusion of Neurodiversity in School’ (PINS), with £13 million of funding to test ideas that will improve access to specialist support for neurodiverse children in mainstream primary schools.
Each ICB in England is expected to have an Executive Lead for learning disability and autism, supporting the Board in planning to meet the needs of its local population of people with a learning disability and autistic people, including in relation to appropriate autism assessment pathways. NHS England has published guidance on these roles.
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what measures are in place to train healthcare professionals in understanding and supporting the specific medical needs of individuals with autism.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
There are several measures being put in place to train healthcare professionals in understanding and supporting the needs of autistic people.
From 1 July 2022, the Health and Care Act 2022 requires providers registered with the Care Quality Commission to ensure their staff receive specific training on learning disability and autism appropriate to their role. We are rolling out the Oliver McGowan Mandatory Training on Learning Disability and Autism to support this. This training will help to ensure that staff have the right skills and knowledge to provide safe and compassionate care, including how to provide reasonable adjustments, for autistic people. Over 1.4 million people have completed the first part of Oliver’s Training, an e-learning package.
NHS England has commissioned the Royal College of Psychiatrists to deliver the National Autism Training Programme for Psychiatrists in response to the need and demand for better autism training from within the profession. The training is co-produced and co-delivered with autistic people and offers a short foundation training course for psychiatrists working across a variety of settings, and a longer, more enhanced development course, aimed at psychiatrists and higher trainees who are seeking to increase their specialist knowledge and skills in autism. The provision of this training will help reduce diagnostic overshadowing, play a significant role in preventing unnecessary admissions to mental health hospitals for autistic people and improve autism appropriate care. The ambition is that this may contribute to reducing the number of inappropriate admissions, interventions such as seclusion and segregation along with the length of stay for those who need hospital care.